Hello lovely forum people. I usually reside in the UC forum. Will keep it short! Over the past year, I’ve had two spells of unusual symptoms, tingling, numbness, dizziness, muscle aches, sporadic...
I seem to be relatively safe on salofalk granules with little to no symptoms. All be it I’m only two years into my UC I do use salofalk suppositories every other night as well as my granules. They...
Hello everyone. I’ve hopped boards from my usual place which is UC. I’ve coming looking for some advice I think, or opinions. What ever you have to offer :) I’ve been experiencing some odd symptoms...
Ipoop! John, thank you for your reply. Yes feeling a bit strange as I would’ve assumed with a high calprotectin level that my symptoms would be worse all round. In the past they have correlated well...
Hi guys Longtime no speak I hope everyone’s well today. Back in August whilst on holiday I had an episode of blood in my stool along with urgency. This didn’t continue the following day. But I had...
Yes this what I think/thought to momtoboys.. her calprotectin levels are raised though. But not sure what else can cause this. I’ve only used it with my IBD. So of course a little fear has set in....
Yeah sorry guys. That wasn’t well written. Apparently when you are aged under 4, the top level is raised slightly due to it being naturally higher in infants. Interestingly after the age of 4 the...
So to cut a long story short. My littlest one (14 months old) seemed to have a bit of re occurring mucus in her poop last month so i requested a calprotectin test. She is very well otherwise, eating,...
So I thought I’d update you a little. Although nothing very exciting to say. 😂 Had more blood tests (surprised I have any left at this rate) All is fine, apart from my calcium is slightly low which...
Mucus is suggestive of allergies or slight food intolerances. I have a friend who is severely gluten intolerant, and whilst chatting poop one day he told me he has mucus with most BM’s I feel for...
I’ve had a trillion blood tests this week 😂😱 All is normal. They’ve checked everything from full count to crp and esr, cholesterol, still waiting in blood sugars. Bone health. Calcium sodium etc...
Thanks Quincy for being reassuring 🙈😂 I’m know I’m clutching at straws here. But I’m going to hold on to those for as long as possible 😂😂 x...
No i haven’t mentioned it yet. Yesterday I didn’t have it at all. I’m convinced it’s because of carrying the baby. Sleeping funny and anxiety. I’m going for the blood tests Tuesday so I will mention...
Really pleased you got a good results! :-)...
Thank you John! Very frustrating. But such is life! Hope you’re well! I shall update when I have some news .... just to continue the story 🤪😃...
So just an update... Saw a podiatrist Tuesday. She said my feet look “good” I have regular pulses and that aren’t abnormal sounding. Which is good. Had bloods. They need to be done again as they...
Well today I went to have bloods done and he’s order a very full blood panel. Even the nurse who I love said wow these are fancy 😂 he added to the form testing for autoimmune vascular disease. Fun...
It goes back to normal when it’s regular temperature. But can also look purple when normal temp as well. Hard to tell because my feet are always a little chilly. Goes normal when I rub it. It does...
Thanks for your reply beatUC Not really sure what’s going on really. Had a bout of what I thought was frostbite on a toe. Which then sort of left. But now that one toe randomly turns dark red or...
Blimey you have been “busy” haven’t you. 😫 I don’t think it should be classed as whiney when nausea hits. That sucks! Fingers crossed H-pylori comes back negative 🤞🏻🤞🏻 That way you will at least...
Well he’s sent off for a referral so I’ll expect an appointment in the next month. I usually avoid seeing this particular doctor which is a shame, because the practice I use is really lovely...
Thank you Quincy! I do actually have a pulse in my foot. I’ve checked several time today, And I really dislike the gp I saw today. But I will still take the referral and go from there. No harm in...
Will do! Thank you...
Well that sucks. Hopefully I won’t be adding a new disease to my list 🙄🤞🏻🤞🏻...
So after a two week stint with a random swollen toe that has now gone down. I headed off to the gp today as I noticed it keeps going very dark purple. Anyway. He checked my foot for a pulse... and...
This may or may not be gross. But I have wayyyy too many kids plastic dinner plates. They’re cheap and sit at the bottom of the bowl perfectly. I just use this and hasn’t been a problem :) I edited...
I understand the article, I’m sure so many things in this day and age are effecting us internally, externally and emotionally. I just wish they’d follow up with these things. Although discoveries are...
I don’t have any experiences to offer you but just wanted to empathise with how bloody frustrated you must be. If your current surgery is going well maybe just do asthe GI suggests and sit back and...
Could it be that you’re so used to getting the regular 2 a day job done nice and quick that you simply just get up before it’s all out? If it leaks out that quick it could just be something left over...
Not UC related as such. I just wanted to pop by and wish you all a merry Christmas as a lot of you have really helped ease my anxiety especially when I first got diagnosed a year ago. This site for...
Obviously be vigilant and take notice of changes, it is no joke as disease. And it is for life. But try not to waste your some what healthy days worrying about the what ifs. He’s got it now, no...
I just wanted to add that I hope your sons disease stays contained and with few problems. But also to say I started off with UP a year ago, but later discovered I have actually got pancolitis. My...
Ok thanks guys. My calprotectin was over 600 when I first got diagnosed. Then it when down and down since. But I know I have/had active inflammation in at least the distal proportion of my colon in...
So my calprotectin is really normal at 17 :-/ And I guess it is in line with symptoms to a degree.. They won’t give me enemas until mri results are back as they seemingly think I’m doing well on...
It is really quite difficult at times not to worry. I too am a born worry wart and like to chatasrophise most health related things. It’s incredibly draining when you have a bad phase: My nurse likes...
I’ve never heard such a saying! I like it.. I may try and use it over here in the uk and confuse people much like myself. It’s going to be a week or so before I can get any extra rectal meds such as...
Ha ha, not sure what cowbell is so I’ll have to try extra rectal meds for now anyway 😂...
I think this is a problem I have. I’ve been looking at the consistency to much. And unless I have a perfect shaped and formed stool I assume something has gone wrong. Although I do think this time...
No and annoyingly I saw her about 3-4 weeks ago. I’m sure it would take a while to try and see her again but I will ask if I need to. I suspect it could be a hemmie also as I’ve since passed normal...
Been on supps since March.. I’ve recently had to change brand due to some being discontinued. Which was a shame as I was getting along great with them. Been on oral and supps combined since July I...
I need enemas by the sounds of them! Thanks for all the answers as usual. I’m hoping this doesn’t turn into anything I can’t get a hold of 🤞🏻🤞🏻...
The nurse has sent me a sample pot to do before she will give me anything else or up my current dosage. Hopefully that will get done quickly. I will request enemas. Can I do this alongside...
Just going once or twice a day @quincy. Thank you Sam for your reply!...
Me again ... hoping for some insight whilst I await my nurses reply .. I have noticed over this past week or so that I will pass a normal poop, but alongside it will be some small flat pieces also....
They didn’t overly mention it in the report. But the guy that performed the scope said he saw “colitis” at the entrance of the TI. But biopsies confirmed it was nothing to worry about. My GI just re...
So just thought I’d update a little. Nothing much to report. But still like to fill you guys in :) as your always so good at replying to me. Had my follow up with my GI today. I asked the suggested...
I did actually have a FCP two weeks ago as I’ve been on my oral medication a couple of months now and wanted to see where I was at. It came back very normal at <14 I also had bloods a month ago where...
Thank you for your replies. I don’t have increased urgency or gas. I’ll keep a close eye on things tho: thankfully I have an appointment with my GI in two weeks anyway. I just feel susupicious of...
Hello I was wondering if some of you wouldn’t mind sharing what your early signs were before a flare up? I’ve recently changed the brand of suppositories I use, as asacol appears to be discontinued....
I’m not sure if you really can tell or not. Maybe for the veteran members they have more of a clue as regards to their bodies. But I initially got diagnosed with proctitis, then 6 months later I had...