Thank you very much Hep93 and Kitt for your responses /community/emoticons/smile.gif I'm back with an update. The doctor I saw was actually an Internist, she was very thorough and very good. She...
Hi Lindz, I've been on Tysabri for the last 2 years and am coming off it in Janurary. It has been a great drug for me, I had no relapses while on it and had increased energy and decreased symptoms....
I also had an ekg months ago when I had chest wall pain to rule out anything heart related......
Hello everyone, I'm hoping someone can answer this for me... I was at my Neurologists today and showed her that my lips turn bluish after standing for a minute. This has been happening for at least a...
Hi King, As someone with anxiety, and MS I thought I'd throw my two cents in.... With a clear MRI and two neuros adamant that you don't have MS, I'd say you don't have MS. Your symptoms don't sound...
Mine was my left leg going numb, then my arm, terrible fatigue and then heavy arms. I was diagnosed a couple weeks later after an MRI with many lesions....
Hi Rhonda... been watching a lot of CNN and thinking about you and your family. Please be careful and stay safe... and let us know how you are... big (((hugs))) Shar...
Hi Barb Thanks for sharing this. I just read the news story on Google after reading your post. I'm not sure what to think yet, they do state there is a one in a thousand chance of getting PML, and...
Hi Bella I too am on Tysabri and am overall very happy with it so far. I started it last November and unfortunately it can increase your risk of infections, which seems to be the case for me. I've...
Thanks Gretchen, I shall give that exercise a try. We don't have steps, but I'm sure I can find something to stand on, that hopefully won't collapse. lol. D'awesome it's great to wake up from a...
Hi all I've read a lot about spasticity, but still am not sure about something. I usually manage my lower leg pain pretty well with stretching, Clonazepam as needed, and the occasional spray of...
Oh that sounds like a good idea Gretchen... any idea where I could find one with inserts? Willow, your post reminded me why I haven't used that particular scarf since Florida, it has dark/mold? spots...
Thanks Gretchen for this and your last post, very good info! I've said it before, and I'll say it again. The cooling scarf is the only way this Canadian girl managed to survive the heat of Florida on...
Hi Elisha, nice to see you again! I have had 5 infusions of Tysabri, and it's going well. For me, it feels soooooo much better than Betaseron!! I won't go back to an interferon either. Tysabri has...
Thank you very much Razzle. I will check out those links. I guess I know what I need to do (cut these foods out) but am fighting it, with my MS and anxiety disorders, food is my "comfort". Although,...
Hi everyone, I normally post on the MS forum, but am having some issues with "allergies" as of late. Ten years ago an allergist gave me some skin prick tests and I had positive results for many...
Glad your appt went so well Gretchen, and good luck on the retraining!...
Hi Lynn, Thats great that you think your numbness is subsiding! This infusion was 3 weeks late for me, so I really got to see the difference again in my symptoms. I felt awful the day before my...
Thats really good Lynn. How are you feeling on it so far? I go for my 4th infusion tomorrow, can't wait!!...
Thanks for sharing Uppity! That is truly amazing. What patience and persistence you have. I am in desperate need of a hobby myself and think it's so cool that you found a passion to help pass the...
/community/emoticons/sad.gif Barb my heart dropped when I saw the title of your post. Phooey!!!!! Please do let us know what other options your neuro comes up with for you. I hope you're feeling...
Just wanted to add my thanks too!! You guys both have great attitudes and are an inspiration as well as helpful to everyone here. /community/emoticons/yeah.gif ...
I'm so sorry to hear this Barb, I too am hoping it's transient. I don't blame you one bit for being upset about this, how frustrating after all you've been through. It's out of your control though,...
Hi Lynn, I'm so glad you have the first one behind you, it was quite nerve-wracking for me too. The nurses also suggested to me eating some chips or something salty the night before infusions, I'm...
Hi Deb, That was sweet of you to think of me :) I saw my neurologist yesterday actually, and she recommended I delay returning to work for a couple months until I am more stable. I don't disagree...
How quickly things can change. After posting last night my leg started to feel funny, today it's burning. Great! Relapse # .. I've lost count! I'm so frustrated. I have an appt with the neuro about...
Thanks Lynn!! I can't wait to hear how you're doing once you get started /community/emoticons/smile.gif ...
Hi 1mom and thanks!!, Hmm.. where do I start? My history isn't very long, I was diagnosed just under 2 years at age 30 with multiple symptoms and lesions on my brain and spinal cord. MS runs in my...
Hi Kiera I'm sorry to hear about all you're going through. My fiance just got a kidney transplant in December and is doing really well. Before that, he was on dialysis for 5 years, the last 2 he did...
Hi everyone, I thought it was time to post how I'm doing on Tysabri. It's going well!! I had one infusion, then had to miss 2 months due to appendix surgery in which time I had a relapse. With that...
Hi Barb, I'm so sorry to hear this happened again. Darnit!! Please let us know when you find out what happens next... Take care, Shar...
I'm sorry, but that sounds like a flare to me, I've had numbness pretty much everywhere you can think of including my neck and torso. It's not something I've received any treatments for, but I do...
Hi and welcome to the forum /community/emoticons/smile.gif Last September I went to Disneyworld, and rented a scooter. It was awesome! I really wouldn't have made it one day without it. It's another...
Hi Rhonda, I'm so glad you found someone who sounds so determined to help! Yay! Let us know if you get some pain relief /community/emoticons/smile.gif Shar...
Hey Rhonda, Funny you should ask this question, I've been meaning to ask a similar one for a while now. For years now, off and on, I get an awful feeling in my chest if I am woken up suddenly, esp....
Hi Littlechina Isn't that a great site!? I have been a daily visitor for about a year now, and it sure helps lessen my morning crankies! I love how they have their own terminology!...
Hi Sunny... I'm sorry you're feeling this way, it pains me. You know I'm here for you. Shar...
Hi there, I am only on my 2nd Tysabri infusion, but so far so good! I was also taking Betaseron before I started, and I must say just stopping that made me feel WAY better! It was very draining to...
Hi Sheyna, I'm sorry to hear you are having to go through this. This is a wonderful forum full of very supportive people so you have come to the right place to ask your questions... My first symptom...
Hi Rhonda, I'm so sorry to hear you are going through this. Uncertainty on top of pain really stinks!! That's so great your appts are coming up so soon, I hope you get some answers just as fast. Hang...
Hi Kiera, I'm so sorry you are going through this uncertainty all over again! It must be more than frustrating. I can relate to your doctor getting you confused with other patients. It sure makes you...
Awesome, that sounds very promising Barb! I'm looking forward to my next infusion /community/emoticons/smile.gif ...
Yay Barb! it's nice to get the first one overwith isn't it? I hope you see some of the improvements I have soon /community/emoticons/smile.gif Shar...
Hi all, Well it's been 2 weeks since my first infusion and so far so good! I did have some of the expected side effects the first week such as headache, tiredness and some achiness, but that is all...
Hi there, I really like your quote! I hope you aren't suspecting MS on top of everything else you have listed... My first symptom was fatigue, but didn't realize that until after I was diagnosed. My...
Georgia, I wish I had some advice for you, but I don't. I'm also in Canada so things work a bit differently... BUT I wanted to say, what a great daughter you are!!! I was so moved reading your...
I was 30 and was diagnosed after my leg, then my arm went partially numb. I only had an MRI which showed multiple lesions and that was enough for the diagnosis....
Hi everyone.. thanks for all of your kind words and encouragement! Barb - no one mentioned anything to me about predosing with Tylenol, but I think that's probably a good idea. I got a mild headache...
Hi all, I said I would let you all know how it went...it went well /community/emoticons/smile.gif The nurse was really nice, she found a vein and was successful on her first try... phew! The infusion...
Hi Barb, Your reactions sound really horrendous, yikes. I know exactly how you're feeling right now.. so relieved at no more needles but nervous waiting for Tysabri to start. My first infusion will...