To all who replied to my post about fampyra, thanks for your input! Bad Mojo, I am so sorry that (f)ampyra didn't help you. I did a double blind study here in Halifax to determine if it effects on...
Has anyone used fampyra (here in Canada), Ampyra(in USA)? This is mainly used for walking and balance. If so, has it been beneficial and in what way?...
Hi Laura...thanks for your reply. I am assuming that TO is Toronto. So what is the bottom line on how ON is treated in TO? I really value your input! Dale...
Thanks for the info, Sunny. /community/emoticons/tongue.gif ...
Thanks Gretchen. I think that it would be fair to say that the general consensus,in both countries, is to let it resolve itself, unless it is a large flare as was in your case. Mine was relatively...
Please tell me someone might be able to answer my question about O.N. treatment with I.V. Steroid treatment, or letting O.N. resolve on its own. Thanks!...
Hi everyone, After 15 years+ with MS, I have just had my first attack of optic neuritis even though I progressed into SPMS 6 years ago. I guess my O.N. was comparatively mild as O.N. goes. I have...
Hollyhock, My guess is that your Dr. lives in some faroff parallel universe. Like Gretchen said...time for a new doctor. I have terrible pain as do many of my M.S. friends. Good luck. We are all...
Hi Linda, Yes, I definitely have problems with doing the mundane things that I did so easily in the past. Multi-tasking was my forte, not anymore! Fatigue seems to be a no win situation. Ants I can...
Nice to hear from you all. Thanks for your support and info on the site. Leg pain, spasm, and rigidity now rule my life. However I have ms and I refuse to let to let it own me or let it define who...
Hi Linda, Thank you for clearing up a number of things re: spms and its progression. I agree that it is a very different phase of this disease. I have been done therapeutic riding in the past and I...
Barbarann,.. I hope you stay on top of your breast cancer. Don't let everything be put down to MS, although the back and hip pain is most definitely consistent with MS. Is your back, hip and leg...
I am very sad to see the demise of this site...however it doesn't surprise me in the least. We need relavent information for those terrified with what is happening in their life. Sometimes that that...
Hi All, I am looking for some updates as I have been sick and off the board until just recently? Now have SPMS. Balance, walking, writing, hearing, night sight are not so great. Sense of humour, love...
Hi Folks I have heard of a newer theory and some evidence relating to a two-stage disability progression in multiple sclerosis. I thought that you might like to read it. The following is a link to...
Hi Linda, Sorry for your new diagnosis of SPMS. I received my news several years ago. Up until this last winter, things had been fairly calm for me. However, my affected side (right side) is getting...
Has anyone heard of this ms drug "Cladribine"? It is an oral therapy, particularly one that has no short term side effects. It is suggested that it is easy to use and that oral Cladribine, will have...
Thanks all. It is good to be back. I am feeling better than I have in ages. Now, if we could just put this winter behind us and have a great old fashion spring, then that would be the icing on the...
Hello to you all Hope everyone is surviving the winter. I have been away for quite awhile. I have missed you. Things are just getting back to normal. I had emergency surgery in November for a small...
Hi Kimmerz, I am wondering if your pre ms diagnosis is what we call benign ms. Sounds like you may have moved on to a more active form. I think that the lesions can be far more troublesome as to...
Hi CBK: Hope you don't mind if I weigh in. I remember the doc and nurses had me stay lying down from the time the procedure was started (that goes without saying) and then flat on my back without...
Thanks Uppitycats. I appreciate your imput. I go to a physiatrist in about 4 months, but that is a long ways off and this has really got me rattled. I knew someone on this site would come through. I...
Could anyone tell me if you could develop drop foot by being hit in the shin just below the knee which caused me to fall backwards and land on my bottom. Sort of like having someone pull the chair...
Ahhh Michelle...you are having one miserable time and your postings are great and we don't care how long they are or how often they are. That is why we are here to be extra support in trying times....
Hi Billo, My mom had ALS and passed away in 1979. Here is a site that may help you out. Good luck and keep us in the loop. Dale http://www.alstalk.org/ ? ...
Hi Michelle...great to see you back. We were really beginning to worry about you. Sorry you are still feeling pookie. Let us know what the surgeon says. We're all pulling for you. Dale :)...
Hi Hope, Uppitycats was giving you sound information. I will say that I don't think she was telling you that you have been misdiagnosed. However both Fibro and MS diagnoses can be a long process....
Hi Karen...I remember that when I went to UNB in the early 70s that the Stan Cassidy foundation gave me a bursary because my Dad was killed in a car accident coming home from Halifax after visiting...
Hi New to the club, Thanks for the male insight. I think we should all feel what it is like to be in someone else's shoes. Thanks for reminding me of that. When were you diagnosed and how are you...
Hi Karen, No, I am not on any drug modifying therapy and don't intend to even try them. I have enough problems without dealing with their side affects. I have no problem with those that have opted...
Hi Karen...I am in Saint John NB and wondering if the neuro guy you had was Sandy (Alexander)Macdougall. He was my doctor before he went to Halifax. I really missed him but the clinic I go to in...
Sorry you have had a bad time of it Karen. Are you have anything that would stress your system. Have you been dxed with MS as you do not say in your post. Listening is half the battle. Are you in an...
Glad to hear you are as brave as you are and rising from the ashes. I welcome you to the board and glad you are giving yourself permission to ease up a little. Your girls will love you anyway just...
Cheryl ... I too had a radical hysterectomy due to endometriosis in 95...2 years before I was diagnosed with MS. I learned early in my teen years not to complain about menstrual cramps. What would be...
Marie-Claire, jeshurun, Shashi I really liked your postings...we really deserve the best whether we are women or men. My emotions let me down when I am spiraling downward physically and I am confused...
You people from Down Under will have to tell me about your health care system. In Canada, ours is going to hell in a hand basket...excuse my bad language but at one time we used to have such a good...
Hi Annie, Sorry I have not gotten back to sooner than this about esophageal spasms in MS. They often can appear to be associated with ms but can the result of other medical problems as well, but as I...
Hi All For you that are having problems with esophageal spasms you may try a speech therapist or a speech language pathologist specially trained in problems for MS patients. It has done wonders for...
Hi Cece, Sorry for the delay in your diagnosis. I, too, took a long time to be diagnosed and even though I ended up in the hospital in a major flare, I was diagnosed with secondary progressive. I...
Hi Michelle, My heart goes out to you. I am so sorry you are still having a rough time and hope the doctor finds a solution soon. Get as much rest as you can...we will all keep our fingers crossed...
Hi Michelle, So glad that you are feeling much better. Glad you are on the mend and hope you can get out of the hospital soon and rejoin your family for a trouble free summer. :) Dale...
Hi Maggie, You have had a rough time of it. We, in New Brunswick in Eastern Canada, have watched with sadness as the horror unfolded and continues to unfold for victims of Katrina. Hope your parents...
Hi Gretchen, Thanks for the book name. I will pick it up as soon as I can. I know that non MSers don't know or care what we feel everyday so we have to care about ourselves. Thanks again for the book...
Hi Michelle, I am so sorry to hear that you are in pain and have to miss yet another important day. God love your hubby for being there to comfort you and support you. Hope they resolve the bowel...
Are you sure it is in your eye or caused by what they refer to to as trigeminal nerve pain. It strikes or can strike lightning fast and sometimes can appear to be in your eye area as it travels from...
Hi Marnie, Welcome aboard. Glad you have a helping hand. It makes a big difference! My 4 children are all grown now...the youngest being 22. I am glad they are making a life for themselves and having...
Hi Debbie, I see you are going through a stressful time. I know what that is like and I had a very sad divorce. I waited til the children all finished high school and then I made my unhappiness...
Hi All, I think the most painful part is that our "so called friends " often desert us. My true friends, I know who they are!! Without their love and care I would really go bonkers. We live in a...
Hi John, Glad you got to the party. Went to see Cabaret put on by our local Theatre group on Saturday night and had to have a power snooze before hand, but was glad that I did and glad that I went as...
Hi all, Hope you all had a nice long weekend. Thanks all that responded to this thread. It may not be for everyone but we need to explore the emotional side and know that there are those that...