Thank you for the reply! I have been having a lot of issues with my MS this year and was hoping to see Gretchen or Rhonda on here. Your name sounds familiar too. This forum was such a help when I was...
I haven’t been on in years I know, but it appears that no one is active here anymore....
I tried Copaxone last year, but had terrible stinging for about 30min. after injecting. And the knots I would get at the injection site wouldn't be gone by the same time the next week when I would...
I am not sure if the MS was a premature dx., but I also had low vit. D levels. They found that out after my ms dx. so I am not sure if it was low beforehand....
I take this for arm pain. Just at night though because it makes me drowsy. As long as I am consistent with it, it seems to help....
Just wanted to let you know that I am another one here that had a normal spinal tap but was dx'd with MS a little over a year ago. Also, I was just switched from Avonex to Copaxone, but have not...
Hey there! I had my neurologist appt. last Thursday but haven't had any time to get on and let you all know what he said. Good news! He said that my MRI was unchanged so no new lesions! He also...
Gretchen, That's a really good suggestion. I guess since my dx. is fairly new, I just hadn't considered it as a possibility. It's definitely something to think about . My PCP has a...
Sorry, just saw your post. Looks like Gretchen answered all your questions though. For some, it can be a difficult process being diagnosed with MS. It took almost a couple of years from my first...
That's what I am afraid of. I certainly don't want to have a tonsillectomy if the infections are just going to find a different [b] location. After I discuss this situation with the nuero, if I...
Hi Macs Mum, Just wanted to let you know that I take Neurontin for nerve pain and I have pretty good success with it. I take it only at night usually. I can take it twice a day if I have an attack...
Thanks Gretchen! I will definitely keep you posted. I go see the neuro next Thursday and will know more then. I did see a MS specialist over a year ago but he is a couple of hours away. I am going to...
Thanks Gretchen! Don't worry about the link...I am a fellow techno-dummy! I just go to my husband when I need any help with the computer...which is often! I know! My PCP doctor obviously wasn't...
Hey! Sorry I haven't been on in a long while so I am not sure if there has been a post about this recently. I apologize ahead of time if someone already asked this question. I have been having one...
Hi there! I completely agree with you. I have been dealing with MS a few years also (only dx. last year though) and reading the posts here helped me to feel less alone. Although I haven't posted in...
That sounds great, Willowmom! I know I will be getting some of those! I probably put way too much energy into those who aren't that supportive. Just my nature I guess. Thanks for the decorating...
Seems like there are alot of us out there with both. I was dx with IBS 10 years ago and with MS earlier this year. I was supposed to have a colonoscopy 10 years ago when I saw the gi doc, but I...
Hey Katie! I completely understand where you are coming from. My dx is fairly new, but I have been dealing with symptoms for over 2 years. It seems to me that families and spouses in particular have...
Hey Andy, Just wanted to let you know that you aren't alone. I have been on Avonex (in the muscle once a week) for about 6 months and although I have diligently taken my shots every week, I think and...
Thanks Shannon for your reply. Wow...11 family members! I think that would definitely qualify you all to be experts on the subject. I can relate to the doing too much and then feeling my body fading....
Thanks guys! Sometimes it is all very confusing, especially when symptoms come and go, come and go and so on, minute to minute, day today. You get the picture. Anyways, I feel more like myself still...
Hey everyone! Sorry I haven't been on much over the summer. I have checked in from time to time but haven't posted. The summer went by soooo fast. The kids kept me busy...whew! Thank goodness for...
Hi Carolynvb! I haven't been online much lately, but just happened to be on tonight and looking through some of the posts. I am in Chesapeake right now, but have lived in VB most of my life. I saw...
Willowmom, I'm coming into this post late, but I definitely related to your reaction to the Avonex. I have only been on it for a few weeks, so I am kinda new to it, but that first shot was horrible....
I'm new here too. Just wanted to say welcome and I will be thinking of you and praying for you. All of this MS stuff can be overwhelming, but this site is a blessing and everyone here helps to keep...
Hey everybody! Sorry it's been so long posting....I've been so busy with everything. Just had my second shot last night and the side effects weren't nearly as bad. I kept on top of the Ibuprofen and...
Sorry for the delay...I tried to post a couple of nights ago but our internet connection was down and I have just been swamped since then. Thanks so much for your replies! I did take Ibuprofen with...
Well, the shot itself wasn't too bad. My husband did really well for his first time. The nurse was here while he did it so I just looked away while he gave it to me. Wow...the side effects...are just...
Sorry John, I must have sounded pitiful. I guess that I am just trying to adjust to alot at once even though I have had the "probable MS" dx for awhile. My mom was just found to have colon cancer,...
It's really funny...most of my weakness is in my left leg too! Off and on the fatigue has been bad, but I haven't taken any meds for it specifically. I've heard of the Provigil before...what are the...
Hey guys, The last couple of days have been rough. I have been soooo tired and my legs have been soooo tired too. My walking leaves alot to be desired. My legs aren't so much numb as just weak and...
Your dollhouses are fantastic! My mother-in-law has a passion for dollhouses too. Last year she even said that she was going to make one for my two daughters but I told her she might want to wait a...
Rhonda, I just wanted to thank you for your words of encouragement to 1mom. Even though they were for someone else, I took them to heart. Like you said, sometimes you just need to be reminded. I take...
Thanks Uppity...the "not knowing"gets me everytime. And literally the "turning around" was what got me in the end when I fell! LOL Deb, was the waviness all the time or just sometimes? Just curious...
Thanks for all the replies! I did decide to call my eye dr...got an appt. set for Wed. am. They said it could be a type of migraine or maybe stress related, but it would be good to come in and get it...
Hey there! I had a strange visual thing happen yesterday. Besides only a couple of very brief blurriness episodes in my left eye and sometimes feeling like I have cotton in my eyes, I have not really...
Wow, Lindsay, sorry to hear about your reaction. It really sounds like a terrible experience. I am going to be starting Avonex soon, so I hope I don't have anything like that happen. Don't worry, I...
Hi Elaina, I too have had L arm pain (and left hand stiffness/pain). I started Neurontin last summer during a flare where the left arm pain was excruiating. It was very hard to do anything. I really...
Gary, it's good to hear from you. Sounds like you are having some of the same issues I am having with my neck and back. It seems to pop up everytime I have a flare. I can relate to your accounts of...
Gretchen, it was great chatting with everyone last night. I sure didn't have the slightest clue what I was doing at first but I think I got the hang of it.:) My husband even taught me a few little...
Thanks everyone for the welcome! I'm sorry Rhonda that you are still waiting for answers and please don't worry about missing me...family comes first. I have three little ones and a new puppy (always...
Thanks for your message! You're right...the limbo stuff is hard to deal with. My neuro and the MS specialist I saw a couple of times kept saying we are 99% sure you have MS, but didn't feel like they...
Hi everyone, I'm new here and have never posted on a forum before. I have to admit though that I have been perusing the forum off and on for awhile now. I am not sure why it has taken me so long to...