Hi, I had been on Celexa for 10 years, but after my illeostomy in April 2008, I found that it was no longer working. My doctor put me on Wellburtin. I started on 150 mg per day, which didnt help....
Thank you Theresa..hopefully the pain wil subside soon....
Also..I too have trouble pushing urine out! My surgeon said that during my surgery, my bladder was huge! And she did have a catheter in place with good output. She said my bladder looked...
Hello..I had a subtotal collectomy/ileostomy on April 3. The reason I had mine done was for two reasons..first chronic constipation due to the sphincter muscles not working because of...
I just wanted to note that the spasms and pain are not in the rectum but on the lower right side under my stoma..so maybe you thought that the pain and spasms were in my rectum....
Theresa..My doctor explained that it wasnt necessary for me to remove my rectum and sew up my anus and she wanted to avoid me having more surgeries. So do you think that the pain is from the rectum...
Theresa, I had my surgery because of chronic constipation and my because the sphincter muscles do not work well anymore. I have scleroderma and this is what caused problems with my large intestine. I...
Theresa, Thank you for your reply. I have had pain and spasms and was in the ER last Monday nite. However, a CT scan showed that everything was fine. Some folks from the forum thought that the pain...
Also..I will call my doctor to find out if this is ok..too.. I was just wondering if anyone here experienced this and if it was anything serious. thanks again. Marie...
Hello..I had a subtotal collectomy.ileostomy three weeks ago. The first few days after surgery I did have some bleeding from the rectum. My surgeon said that was normal. But now it is three weeks...
HI Diane, I have a subtotal collectomy/ileostomy just three wks ago. I was told to eat a low fiber diet. I am not sure how long I need to keep on this type of diet. But I havent had any high fiber...
Hi Enpointe, How are you feeling? I hope better.. I had terrible pain on Mon nite and went to the ER. I had sharp, stabbing pain and couldnt even talk at times. The strange thing was that it would...
I cant believe you did that!! WAY to GO! I only hope that I can have the same courage that you have shown! I am just three weeks with my new addition and at this time it seems too soon for me to take...
Thanks for your responses..so this gets better? I mean the gas pains. I am eating very bland and trying to add foods a little at a time. I had some chicken soup with carrots and the carrots were all...
Hi, Can I ask why you would need a scope done ? I just had an illeostomy done a few weeks ago and when I read that you had to have a scope I thought ..OH MY!! SO I am just wonderi what reasons there...
Wow! So this is gas pains? I guess I had better start using that GasX because the pain is very hard to handle. Thanks for your help. HisWill...
Hi] it. But hearing from someone that has had this would help me out too. Thanks! HisWill[/color]...
Hi everyone..thanks for all of your advice. I was wondering though..how much fluids are we supposed to drink to stay hydrated? I am drinking G2 now. It is a low calorie Gatorade. I drink a 20 oz...
I was on pred for 6 yrs for scleroderma, RA..and all the other autoimmunes that i have. Due to weight gain and for what the pred was doing to my bones..(I now have osteoporosis) I weaned myself off...
Congratulations on your new job! How exciting..Best of luck to you! Hope it all goes well and meets your expectations..HisWill...
I have scar tissue due to scleroderma, an autoimmune disease. My esophagus has adhessions/scar tissue and I have had it stretched a few times to help with swallowing. I know that this is not the same...
Hello, I am fairly new with having my illeostomy (April 3). I started to advance my diet to small amount of chicken, twiced baked potatoe w/sour cream..and pasta with a very small amount of sauce....
Thank you all for your well wishes. It has been a pretty good week since my surgery. I have had a few challenges with my primary care doctor and my surgeon regarding my medications. They were passing...
Hi, I am sorry that I dont have an answer for your question but I was wondering the same thing too. I had my illeostomy 10 days ago and I have pain too. I dont find that unusual, HOWEVER, apparently,...
Hi, Last August, I found a fun, exciting and low stress job. I do interactive home cooking parties for Two Sisters Gourmet. I offer a host the choice of 4 different menus. I supply the Two Sisters...
I also wondered why you cant have surgery. I too suffered from chronic constipation, bloating, etc. I just had a subtotal collectomy/illeostomy about 10 days ago. The surgery went very well. I am...
Peggy, Thanks for telling me about the pinch test! I never heard of it before. I am feeling really sleepy today and I noticed that I havent had as much water. So, I am going to have to really take...
Hello, I had my subtotal colectomy/ileostomy last Thurs, April 3. I was at the hosp for 2 nites and they sent me home because I had reached the criteria..ie gas, urinated, bowel movement..or liquid...
Hi, I just had my ileostomy 3 days ago and I was told to drink a lot of water so I do not dehydrate. My nurse told me that symptoms of dehydration were dizziness and being very tired. Just thought I...
The reason I need the bag is because of the reason why I need the ileostomy in the first place. I have scleroderma which is an autoimmune illness. This has caused me to lose muscle and motility. One...
Hi, I am having surgery this Thurs, April 3. I am having a sub total colectomy/ileostomy. I am having this due to constipation. I didnt want to end up with a "bag" as you, but I have no other choice....
I went to have get marked for my surgery on Thurs. The nurse showed me several applliances and I have no clue which one I should use. She said the nurses at the hospital will help me after my...
Hi, After reading some of the stories of bags leaking, bursting, etc. I am getting nervous about my upcoming ileostomy on April 3. LOL. What bothers me is that mine is not going to be reversible. So...
Hi, I am having a subtotal colectomy/ileostomy this Thurs, April 3. Mine is for chronic and severe constipation too! You are the first two people that I have found who is having this or has had it...
Hi Bill..I have been posting and reading other posts in this forum about ostomies. I looked here under the lupus heading to see if anyone here had scleroderma or an overlap of other...
Hi, I was dx with scleroderma and other autoimmune illnesses 8 yrs ago. I take 12 different meds per day. I was on steroids for 5 yrs until I weaned my self off and used an herbal remedy in its...
Hello, I am scheduled to have a colostomy in April. Three surgeons all agreed this was the route for me. However, my PCP just came back from a three week vacation. She was not aware that I had...
Hi, I have noticed that some of you who post here have medications listed at the end of your name. Can I ask why you are on prednisone? Is that something you have to take because of the surgery? or...
My doctor told me that after my surgery I will probably go down a pants size. This is because I have a full colon and my tummy is very bloated. Many of you had surgery for reasons different than...
Hi, Thanks to everyone that replied to my post. I definetly feel better about having my surgery and my life after my surgery. By the way, my surgery is going to be on April 3 at 7:30 am. My surgeon...
Ash, Thank you for your reply. It made a lot of sense to me and I have thought of the risk of cancer if I dont have the surgery. I have pain 24/7 from scleroderma. And I accept it as a way of life...
Hello, I was dx with systemic scleroderma in 2000. Until now, my esophagus was the only internal area affected. Recently, I have become seriously constipated. My doctor has tried to manually...
Hi, I am new to posting here. I am going to have my bowel removed and a stoma put in permanently. I will be able to do all the things that I do now. I read from a few posts here where they were...