Hi Tori! Just read your post and I'm so sorry that doctor spoke to you like that. I am female and first started posting on the ostomy site. My history goes way back to 1986 when I had my son and all...
Thanks everyone for your replies. I addressed everything below. You guys rock! Dave D., I LOVE LOVE LOVE popcorn and nuts. It's too bad that I'd have to give them up, especially when I have to watch...
It's been quite some time since I've been on the site. Miss you guys. Wanted to reach out to see if anyone has advice for me. I had my ileostomy (of 3 1/2 years) reversed January 17 as well as a...
Bay Area Guy, thanks for your input. So, are you saying for your reversal you just did the jello - no pills and magic potion? That would be awesome if I didn't have to do the pills. Unfortunately, my...
Hi Scrapbook! I'm getting ready to have my reversal as well. How did yours go? How did you prep for it. Hope everything went well....
Hi All! It's been 3 1/2 years since I received my ileostomy - July 23, 2007. I finally get to have it reversed. I also have a hernia that needs repairs that is at the site. The reason I received my...
I've had my ileostomy since July 2007 and do not worry about the cats jumping on me while in bed or laying on the couch. I have two declawed cats that are wonderful. I used to be "very" protective of...
Use the adhesive removers. I use the Allkare Adhesive Removers by Convatec. Wipe a small area, push down on your skin and pull the wafer up, repeat until the wafer is completely off. Start from the...
Don't worry. I've had my temp ileostomy for three years and still have bowel movements about once every three weeks....
I've had my temp ileo for three years. I go about once every three weeks. Sometimes more. It depends on the time of the month. I notice it more around my period. Weird!...
Hello Everyone! It's been a very long time for me checking out the site. I come back to hopefully read up on the latest and find that someone wants to end their life? I'm confused is Mike - Vette...
Neuro, I'm sorry to tell you, but you are incorrect about the temporary loop ileostomy. Some people do continue to have stool come through their rectum. I have had my "temporary" loop ileostomy for...
When I went in for my surgeries I always took my insurance booklet because there sometimes were certain companies I had to order supplies from or contact a company such as home health care. There...
Hi Kaycie! I've had my temporary loop ileostomy since July 2007 (don't you love it...I was only to have my "temporary" loop ileostomy for three months!). At the beginning I had to experiment with...
Needinfo4, Back in June of 2007 I was on TPN through a Picc Line. The hospital can give her nourishment through your mom's Picc Line. Are they not doing this in the fluids they're giving her?...
Just wondering if anyone out there has heard of a company form the UK called Fulcionel, web address: http://www.fulcionel.com/hernias-and-you.htm I am unable to wear hernia belts and have been...
I've tried the Assurra Coloplast AC and found that work well. The only thing I didn't like about it was the pouch had a narrow drainage opening. I like the Coloplast Sensura wide opening kind. If...
Hi Bob! Hope all goes well for you today. Where are you having your surgery? Just wondering. I've been going up to the Cleveland Clinic. Are you in the U.S.? Mary...
Andorable, I am a 44 year old women whose been married 25 years. I was worried about having sex with a bag on as well. There are tiny pouches called caps you can use if you wear a two piece. I find...
I would have to say it's mucous as well or new skin developing??? I get it too. Mine is from having a temporary loop ileostomy. I have a distal lumen that can cause mucous....
Hi Peggy! I was just up at the Cleveland Clinic. I spoke to my ET Nurse. She said that Devrom would not really benefit me because it mainly works in the large intestines. She said they can also cause...
about a year after receiving my ileostomy, I ended up in the hospital in terrible pain. I thought I was having a heart attack. My sister in-law who is an RN told me to get to the emergency room ASAP....
My Endocrinologist wrote me a prescript ion for Lavazza which are fish oil pills for extremely high triglycerides (cholecsteral). I'm taking four each day. These are high dose pills. So, as you...
Peggy, I did not hear that. It's Sunday 1/25...my husband and I are heading up to the Cleveland Clinic from Westerville, OH. I have an appointment in the morning at the Cleveland Clinic Lakewood...
Someone once replied to a post that they changed theirs everyone Sunday and Wednesday. I think it was Shaz. So, I thought that was great advice. I try to follow those days. I pick two days a week and...
Westerville, OH - city just north of Columbus, OH. Born and raised here....
Interesting, Summertime, why would going to bed hungry cause gas? I've never heard that. Matt, wouldn't the two be the same? The output is what cause the gas. So whatever is in your intestines will...
I started with the two piece when I first received my ileostomy back in July 2007, but probably for the last year, have found that I like the 1 piece Sensura light convex the best. I also use an...
I've heard of it. Doesn't it have to do with your blood type too? I'm doing the South Beach Diet since I found out that I'm insulin resistant. There is now way I want to become diabetic which is the...
Thanks for your replies. Ohio76, what is a proctocolectomy? justjenjen, this will be the third time the surgeons will try to fix my rectovaginal fistula. Dr. Hull is going to use tissue from the...
I have a special sock (which mimics a diffuser) on my blow dryer, so before I put the wafer on I run the blow dryer around the adhesive for about a minute to heat it up. Works like a charm!...
Peggy, who did your surgery at the Cleveland Clinic? I know it was so long ago, but just wondering since I go there myself. And yes, Kenalog is awesome. Mary...
I wear spandex shorts like bike shorts when I workout. I also wear briefs that are similar to Spanx. Because I have a hernia though, I can only do the treadmill, Yoga and walking tapes. I'm not...
Question: I may have to go to a permanent ileostomy. Does anyone know if the surgeon can use the same stoma or will a new one have to be pulled through? Does it make a difference since it's a loop...
Peggy, the ET Nurse wrote the prescription for me to use under my wafer to clear up irritation/rashes. It dried fast and cleared up the irritation quickly....
When I talk to my family and they asked me what I've been up to, I'll say, oh I just took a shower and changed my little monster!...
One of the ET Nurses I see, who is also a Nurse Practitioner gave me a prescription for Kenalog Spray. It can be hard to find and is expensive, but - it works so well for clearing up rashes! It dries...
I'm here in Columbus, OH and heard about this dream job on the news last week. It sounds wonderful. Are you ok with setting and keeping up a daily blog about the island? That's what I heard the job...
If you find you can't tolerate tape (like me, except for paper tape by 3M), you can try flange extensions. There are two brands I am familiar with Welland Medical's Hyrdro Frame...
badbaggirl, I wear modified briefs that are similar to Spanx for my hernia. So you don't wear a hernia belt? Are the Spanx tighter than other modified briefs such as Bali? Do they offer high cut...
Momrk: I swear by the Eakin Seals as well. I wear a one piece and put it around the hole on the pouch. I then use a blow dryer and run it around it for about 30-45 seconds (don't leave it in one...
pepperann27, you mentioned a clip that your using for your bag - you should try Coloplast, Convatec or Hollisters - velcro type bags - much easier to use and you don't have to full around with a...
Hi! Has anyone ever had an ulcer around their stoma? I found one right under my stoma. It's a crescent shape. I looked it up on the Convatec website to confirm what it is. Does anyone know how to get...
Bella, just a couple more things to add...check with you ET Nurse about yeast infection as well. Yeast infections can cause really bad itching. Look into Eakin Seals. These will help tremendously....
I just don't understand why you guys can't tuck your ostomy pouch inside your underwear. I'm female, but that shouldn't make a huge difference (unless your ostomy is now below your belly button). I...
Joe, you should also go to the support group with your wife as Ohio76 suggested. My husband would do that for me. I was to have my temporary ileostomy for three months. That was July 2007. I guess...
I buy my undies at Kohls here in Ohio. Since I have a hernia, I buy what is called "modified briefs". I prefer the French or Hi Cut. I can wear firm or ultra firm control without hurting my stoma and...
Lew1201, is your son' s skin under the wafer irritated? You mentioned dry skin peeling off. I had an allergic reaction to several different types of wafers (brands) before I landed on one that works...
Gela, Here's info I found and read about a spinctroplasty from the Cleveland Clinic. It doesn't sounds like with the procedure you had that the incision's should have been open. I will tell you this,...
Hi Sans! I have a rectovaginal fistula which some of the other members believe you may have. I noticed it 22 years ago after I gave birth to my son. I had stool coming through my vagina just a few...