To help further the knowledge base for ostomates, here is a brief synopsis of her ordeal. Two years ago she had a bowel resection for a redundant colon. Unfortunately a suture failed and she got...
My wife, Jan625, passed away last night after two years of operations, multiple tests, pain, and diminishing health. Never will I trust a doctor again....
Have had to have my ileostomy reveied two times in the last four months. The first one that was revised died from scar tissue. Just would not put out anything and I kept getting small blackages. I...
If you're first dependent upon Imodium to slow output down and keep hydrated, what way do you all use to wean yourself off of it? Reduce dosage? Increase interval between doses? How long has it taken...
NG, Hope this finds you doing good and not haveing to cold of weather. How much snow do you have there? Wonder if spring will ever get here. I can't find coconut water at any store but the health...
NG, Just thought I would see if you have ever tried drinking ensure pluse, it has 350 calorles 24 different vitamins in it and a good wsy to get sodium and potassium. I try to drink two bottles a...
NG, Thanks for getting back to me. I'm doing ok. Just hurt alot and have gas and have been taking gas x and it helps some. It will be a week tomorrow since I had this sergery and I stlii hurt alot....
Peggy, Yes I have done some light phyical repetitive actitives. I have been trying to walk alot after the operation and at home. Mabe this is what it is. Iv'e been useing the heating pad and taking...
Hi NG, Got home from the hospital Monday and I hope everything went ok. Was in the hospital four day and was sure good to be home in my own bed. The stoma is trying to work but ie really swollen. The...
This past week three weeks , I have been having pain just inside my left hip. After I go to bet and get up the next morning it doesn't hurt untill I start moving around. I have been useing a heating...
NG, So good to here from you. Sounds like you have had your share of problems too. How do you know and how do feel when you get so dehydrated and loose most of your electrolytes. Did you have blood...
I have noticed wtat looks like scar tissue aroud my ileostomy. Has anyone had this? Will thay be able to do something about it when I have it revised this week? Jan,...
Hi NG, Sorry I haven"t gotten back ro you. I have had some really bad problems this past four or five months. Have been in the hospital several time and am still having the same problems as before....
Sounds like were from everywhere. Its kind of fun to find out a little bite about everone. I live in Washington St. near Spokane. We get lots of snow here but the summers are real nice. Jan,...
I 'm going to have my stoma revised thie week. I'm really having trouble when it trys to emptys. I really hurt behind the stoma and get all bloated above it. I have had serval blockages this past...
Peggy, Souns like you have had your share of problems. You are really lucky to have a Dr. that care and will do something about it. How long have you been going to this Dr? What are you eating that...
Peggy, I went to the GI doctor and had a good talk with him and decided to stick with having the ileostomy revised and play it safe. Guess you can have alot if problems from what I have seen on...
HI, What sergery did you have and how long ago did you have it? Sounds like you really had a hard time of it. This has been a verry hard yoar for my husband and I. Seems like every time we turn...
Peggy, I'm scard of what might happened if I have this done and it does"t work out the way it is suppose to. My luck hasn"t been that good this past year....
Peggy, Been really hurting alot behind ileostomy when something trys to come threw. Just alittle bit comes threw at a time. 1. Staples versus sutures 2.Will I have to ware depends 3.Recover time...
I have a decision to make. My surgeon says he can give me a new stoma to replace this failing one, or he can hook my ileum up to my rectum. What do you all think? Pros and cons. Have to call him...
What would cause a white glaze or creamy looking substance to appear on my stoma? It wipes off but eventually starts to appear again after a few days. The doctors and stoma nurses don't have a clue....
I'm home now from the hospital after having my stoma revised. How long should it take my ileum to adapt and start uptaking water and slowing down the motility, since I only lost three inches off the...
I'm home now from the hospital after having my stoma revised. How long should it take my ileum to adapt again and start uptaking water, since I only lost about three inches off the end of it?...
Peggy, I had my ileostomy redone Sept. 29th in Cd'A and so far I'm doing good. Was in hospital for 4 days and have been staying with my sister this past month. Been keeping up with everyone and was...
Because of a stricture, I'm having a new stoma made the first of the week. Has anyone gone thru this and what should I be aware of?...
Just want to say hi, and see how you were doing with everything. How did your blood test turn out? Hope the shot are still working and you were able to cut down like you were planning on. Its so darn...
I've been drinking plenty of water, yet I only urinate once a day. This started after I had an old suture removed as an out patient, then had a small intestine follow through done after drinking...
I had a small bowl follow threw study useing gastrografin. I have a sore bright red rash around the stoma. Has anyone had this happen? Need help and advice to get it healed. It has been two weeks....
Hi, Hope this finds you doing ok with everything, and all of your test came out ok. Sounds like you have had your problems as I have. Seems like there is alway blood test or something to deal with. I...
Just wanted to say hi and see how you were doing. Really appreciate you keeping in touch with me. Was wondering how things were going with the shot and it there wereany bad side effects for you. Have...
How long had you had your ileostomy when this happen to you. I have had my ileostomy for about six and a half months. Was doing good untill this started up. Whatl dido you eat? Did you have trouble...
For the last two monthes I have been sore when food passes threw the stoma. The stoma doesn't seem to open up as much as it use towhen stuff passes threw. Has anyone ever had this problem? Was...
Peggy, Had the test Monday, and everthing turned out ok. Boy, I was kind of scared to drink that stuff as I really had proublems with it before as that is what causeed me to have my iloestomy. I do...
Hi, Still hopeing everthing turnes out good for you with the shots. I to had alot of trouble with alot of output and it seems it takes for ever to get anywhere with it. I have tried alot of things...
Krista. Hope your daughter is doing better. I have been following your post and know how hard it is on you. It has really been along time for her. When will she be able to come home? Please let me...
Peggy, Was just going post you and see how you were doing. Sounds like you are having a horrible time. The pain pills help for a while and drinking lots of water and juice help too. I'm so sorry your...
Next week I'm scheduled for a barium X-ray of my small intestine. Since I have no colon, I'm assured that ridding myself of the barium afterwards will be no problem. Since a barium blockage was one...
Nenagirl, Was wondering how you were doing. Been thinking of you and was wondering how you were doing with the new shots you started taking? Would be wonderfull if they helped you with your problems....
Thank you for getting back to me. Please let me konw what you thought of the shots and if you think they helped you. Also let me know about the side effects. Mebe if I thied harder with my insurance...
Hi There, Just wanted you to know that I checked out the shots your talking about a few months ago with my Dr. and he said there were alot of side effects that goes along with the shot that he was...
Richard, Just wanted to wish good luck on Wed. I will be thinking of you and hope to here how your doing when you get home. Jan,...
Does anyone know what the contrast solution used in C-scans is and if it causes diarrhea or liquid output?...
they are right at the stoma....
Does anyone know of a way to fix low waisted pants so I can ware them as the waist in right over my stoma. I can sew but know what I should do. There should be s way to fix them. Any help would be...
Peggy , Good to here from you. Hope your husband is doing better. Sounds like you have really been busy with the house and taking care of your husband. I took care of my Mother and law for eight...
I chew my food really good and drink lots. I hurt around the stoma and am bloated some. I eat oatmeal tst. in the morning and snack threw out the day. Have been eating the same stuff for the past...
The last two days I have noticed my ileostomy stops working for a couple hours and I have pain above the stoma. I have been drinking alot of water and don't understand whats going on. I have been...
Peggy, My thoughts and prays have been with you and your husband. This has really had to be hard on you.You are such strong wonderfull person and have help me so much thew my problems. This had...
Has anyone ever tried the new hope pouch? I was juct wondering if they work as good as they say....