My son is having his takedown surgery tomorrow. I'm wondering 1) How long will he be in the hospital 2) Will they have him using the bathroom immediately 3) Will he be in lots of pain 4) Any words of...
My son is scheduled for his 3rd and final step of the J Pouch surgery on Dec 15. All prayers are appreciated as is any words of advice or anything anyone thinks we should know. Also, he's at college,...
My son, 19, had the first step of the J-pouch surgery almost a year ago. He is scheduled to have step 2 in June (not sure if it's going to be a two step or three step). He is scheduled for the 3rd...
My son is away at school and e:mailed me b/c his wafer has begun to pull away from the skin around the edges alot and he says there is either no adhesive left or dry skin making it not stick. He's...
I'm so happy for her and she seems to be adjusting really well. My son has always said it was a horrible experience, but he thinks it has made him a stronger person. He is going to wait until next...
Bennie - just wondering how your daughter is doing. Has she started school? I was thinking about her as I am getting ready to send my son off to college this weekend (1 1/2 hours away - not too bad)....
My son went through the same thing, but to the extreme, where he ended up back at the hospital b/c when he was sitting or lying down his blood pressure was picture perfect, but when he stood up it...
My son also doesn't like to tuck in his bag. He says it pulls, so he wears it out. Unfortunately with guys, there shirts aren't as long so sometimes it hangs out a little. We found these bags at...
I don't know if she's interested, but they make these covers (duvets) in solid colors or patterns and my son likes them b/c he doesn't like tucking in his bag b/c he says it pulls, but these covers...
My son had his surgery in April and my best advice is make sure she is drinking plenty of fluids (1/2 her weight in ounces). My son ended up dehydrated and back in the hospital (there were other...
Has anyone heard of Behcet's disease and how it can have the symptoms of Ulcerative Colitis or Crohns?...
I am so sorry! My son had step 1 of the J-pouch surgery on April 18th and although he's dealing with the ileostomy OK, he has had nothing but other problems, probably due to the fact that he had been...
We have BCBS Blue Advantage HMO and we have to get a referral, but everything is covered....
As if he hasn't gone through enough. We are still dealing with mouth sores that won't go away (they want to do a biopsy), and sores on his scrotum that won't go away. Now he has a small sore next to...
OK, I know this is really dumb, but my son just had an ileostomy in April and he is flying in July. Flying doesn't have any effect on his bag right? Sorry, but sometimes I think of the dumbest things...
My son (18) had step one of the j-pouch surgery on April 18th. The surgery went extremely well (done lapriscopically) and his stoma looks good and healthy. I won't lie. It has been harder than I...
My son had step 1 of the j pouch surgery done April 18th. Prior to that he had been on 6MP, Remicade, and Prednisone. We have been in the hospital twice since his surgery. The first time for these...
I think that the pain from all the sores in his mouth have significantly taken away from any of the pain from the ileostomy. His wounds are healing really well and his stoma looks good and the...
He was on 40mg of Prednisone when he went in the hospital and then he was on 40mg though an IV before surgery. They tapered him off pretty quickly after surgery (40mg on 18th, 75mg of some steroid...
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Thanks for the reassurance. He says it's still tender from the surgery. I'm not sure how long that lasts. He's trying a new bag. It's opaque and it has a filter. He figured while he's hanging around...
Thanks for the info. He's doing OK. I don't think he's really had time to think about the ileostomy b/c his mouth hurts so much, but we went to the doctor yesterday and she said he was dehydrated and...
My son (18) just had step one of surgery and things went well. I would make sure that they can do surgery laproscopically as it makes the recovery much easier. We did lots of research and my son was...
My poor son just needs a break, as I'm sure you can all relate to. He had an ileostomy Friday, the 18th. We came home on the 22nd and he was eating and doing well. On Thursday, he started to develop...
Well, we've signed off the UC site and are new to this site. My 18 year old son checked into the hospital a week ago Friday for steroid treatment and today is 2 days since his ileostomy. He has an...
Well 6 weeks ago we were in remission and feeling great and today we are two days since my son's ileostomy. He's got an amazing attitude and had the most wonderful surgeon. He is trying to do...
He's on a clear liquid diet, and is going to be prepped for a colonoscopy tomorrow. The medicine doesn't seem to be making any big difference. The doctor was in and basically said we could put him on...
Ok, they admitted my son down at Univ of Chic on Friday afternoon. We've seen a doctor twice with little information concerning what's in store. They have him on 40mg of Methylprednisolene in an IV...
Thanks I'll do that!!!...
Did anyone have their surgert at University of Chicago Hospitals and if so, who was their surgeon? Thanks! I think I'm allowed to ask this question. If not sorry!!!...
Thanks, you guys. I love the inspiring success stories, but I know we can't sugar coat the whole procedure. The doctor's feel that since he still had a high level of Remicade in his system and it...
Hi, it's the mom again. My son is a senior and would like to go away to college in the fall. If he finishes out high school (end of May) before surgery, would he be in any shape to start college at...
Ok, it's not like we didn't see this coming, but no doctor has ever talked about surgery and suddenly it's as if it's a foregone conclusion and that's that. Just sort of freaked me out. Plus the...
We are sooooo at that point. Especially when you read about the horrible possible side effects of some of the medications. I will admit though that there is something scary about having a part of...
He's nervous, but as you all know out there, when you're going through the 3rd - 4th week of a horrible flare, anything sounds better than what you're going through. So right now, he would have the...
I think both are pills, so there is no taste....
My son's doctor suggested pepcid or if it got really bad, I think he said Nexium (I'm not sure if that's prescription)....
I guess I mean he's not sure if the long term effects of these medications for a few months of remission are worth putting off surgery or the hope that the miracle drug or treatment is going to be...
My son's doctor (University of Chicago) is going to switch him to Humira b/c Remicade has stopped working. He says that if the Humira doesn't work, he wants to try Tysabri, which I'm sorry sounds...
It looks as if since the Remicade has lost its effectiveness, the next route is Humira. Does anyone know if we have to wait until the Remicade is out of his system (he just had an infusion on...
Thanks for the support and information. I told my son about the Prednisone causing the heartburn and metal taste and I think that made him feel better. He's always afraid that something else is...
I'm totally freaking out (on my son's behalf). He's 6'3" and has lost 20 lbs in the last 2 weeks. He's below 150 and has been flaring big time for over a week. He has had labs run twice (two...
Do you ever feel like you are totally going through this alone (and it's not even me, it's my son). The doctors start to act frustrated because nothing is working. My mom says things like, "when I...
After an infusion, how long does it normally take before you start to notice any improvement?...
With my son in a major flare and having exhausted all medication including Remicade (not Humira), we want the best possible advice and care. Curious if anyone can suggest good doctors or possible...
Thanks so much for all the support and information. You never imagine when they are little and running around driving you crazy that you'll have to be going through something like this, but I keep...
Bennie, I understand your pain completely. I have a son who was diagnosed with UC in March '06 at 16. He is currently a senior and we have done Asacol, Rowasa, 6MP, Prednisone, & Remicade. He was...
I have an 18 year old son who has done it all, Asacol, Rowasa, 6MP, Prednisone, Remicade. He has UC since March '06. We had it under control with Remicade & 6MP for about 6 months and then, boom,...
Thanks for all the input. He has said that he didn;t want the "suite" setup and now I guess I see why. I'm just freaked out b/c he is in a flare right now and I can't imagine him going through this...