I was just wondering if any of you with colonic inertia have kidney pain? I've been having this a lot lately....
Ohio76, thanks for your encouragement. I do know everyone's outcome is different. I would go ahead and schedule right away to see a doctor at the Cleveland Clinic, but I'm going to try to work with...
Hello Ramamorthy, Thanks so much for your post. Yeah, it's really rough for Lori right now and I worry for her so much. So you had the surgery recently as well. I'm sorry you're in so much pain, too,...
Hi Sue, thanks for your response. I'm glad to hear yet another person has had a good experience at CC. Can I ask why you're holding off on the surgery for now? I am, too, b/c I am trying some herbal...
I feel for you so much!!! My friend Lori had the same surgery as you on September 8 and had terrible cramping, like labor pain, and her doctor said he didn't know what to do for her (!). She saw her...
She tried Miralax, but it didn't help her at all. I think this shows how she has a small intestine motility problem. At least the muscle relaxer is helping her with the pain and at least she is...
She drinks lots of water all throughout the day, and she eats small meals throughout the day. She is concerned she has slow transit in the small intestine. She's asked her surgeon these things, but...
Hi Phyllis, Thanks so much for your reply. Her surgeon doesn't seem to know anything. He said one bm in a 24-hour period is good and normal ?? He said nothing about the pain and that staying on the...
Do you ladies happen to know how much of the colon Cleveland Clinic leaves in for the ileorectal anastamosis surgery? My friend, Lori had her last appt with her surgeon today and he told her he left...
Thanks so much for all the info, ladies. I know my doctor would have no problem referring me to them. It does sound like one of the best places for colorectal surgery. After seeing what my friend...
Thanks to all of you who replied! I feel almost certain that I will go there whenever I decide to have the surgery. Would they have me have all the tests done again through the Cleveland Clinic (sitz...
Thanks so much for that, Phyllis. I may contact you if I need more information....
Phyllis, Thanks SO MUCH for such encouraging information!! I'm so glad you made the decision to travel to Cleveland and that you had a good experience there. Seems I've heard too many horror stories...
I have heard that the Cleveland Clinic is one of the best places for surgery for those of us who have Colonic Inertia. Have any of you had your surgery at the Cleveland Clinic in Ohio? I've heard...
Krista, Thanks so much for your reply - I think I will make it a separate post. Hope all is well with you guys. Take care. /community/emoticons/tongue.gif ...
Does anyone know if the Cleveland Clinic in Ohio has as good colorectal doctors as the Florida location?? I live closer to the Ohio Cleveland Clinic. Just wondering if anyone knew. Thanks! :-)...
I don't want to sound like a commercial or something, but there is an enzyme called Serrapeptase (found it cheapest and good potency on iherb.com (and you can get $5.00 off your first order on this...
Hi Hopestar, I'm so sorry to hear about this. My friend Lori had the same surgery as you in early September and is having the exact problem as you - her small intestine seems to also have the inertia...
My friend Lori had surgery to remove her colon on September 8, with the small intestine attached to the rectum. In the hospital she had about 5 bm's a day, but as time has gone on she is having...
Hi Judy, I had been thinking the same thing about Lori - that she won't go to the bathroom if she's not eating! I talked to her about that yesterday and she said she was going to eat more and drink...
Phyllis, thanks for letting me know. I'll tell my friend about it. That might really help! Peggy, thanks so much for your post! So, after all this time, you still get spasms? Are they really painful?...
Hi Phyllis, She had all of her colon removed except for a tiny part of her sigmoid - not sure how tiny, but the doctor said very small amount. He doesn't want her to take any laxatives right now b/c...
Hi Phyllis, Thanks so much for taking the time to post. I'm so impressed with all of you on this board. You've all been so helpful. Do you kow what Bentyl is? Her doctor said he just wants to see if...
Hello everyone, My name is Kim and recently was diagnosed with colonic inertia and am seriously looking into having a subtotal colectomy. But for now, my question is for a friend of mine who had the...
Simmadown, I'm sure it probably is best to not wear underpants when you have an ostomy. I can see how things might flow into the bag easier. I just have no concept of how it feels to have a bag...
LOL, Summerstorm!! Yeah, unfortunately that's the way it works. I've often wished that food that is good for us (aka, broccoli) tasted like milkshakes! That way we would eat a whole lot more of the...
Cecilia, I just checked here for the first time in a few days and am VERY relieved that you are okay - both health- and weather-wise!! Hugs to you!!...
Andrea, thanks so much for your response. My friend is scheduled to have a total colectomy on September 8, but I told her about the importance of these tests and now she's trying to find a place that...
Is your primary problem constipation or diarrhea? If it's severe constipation, have you been tested for colonic inertia and/or pelvic floor spasm?...
How does a person find a hospital that specializes in this? A friend of mine is going to be having a total colectomy for colonic inertia and is worried that if her small intestine ends up having a...
Jen, thanks for the explanation. Do you know what part of the colon they detach and let "rest"? The descending colon or the sigmoid? I'm curious about that....
I'm just so amazed you can still wear those -- I thought they would be way too tight against the bag. That's really good to know. Thanks again for your replies. :-)...
Thanks so much for your replies! Suebear, with Colonic Inertia (if that's definitely what I have - should find out this week)/severe constipation, I think people often gain a lot of weight. That's...
Oh Cecilia, I feel so bad for all you've gone through /community/emoticons/confused.gif - but extremely relieved to hear that you're doing okay. I want you to know I will be praying for continued...
That would be a wonderful side benefit! I'm not yet sure if I'm having a colostomy or illeostomy (waiting for results from tests to see if I have colonic inertia). I was just wondering if it's pretty...
What exactly is the difference between a temporary and permanent ostomy? I remember you saying yours was temporary at first. And I have thought a lot about that, that it would show me how much of my...
LOL, you're funny, Cecilia!!!!! GREAT to know I can still wear bodyshapers. YIPPEEEE!!!! I was so scared I couldn't....
Thanks so much, Cecilia. I will let you know how the colon transit test comes out. From that I'll find out if I'm going to have a colostomy or illeostomy. I'm so nervous about all of this.... I have...
Thanks so much to all of you for your responses. I feel very comforted reading these. This board is a lifesaver and as I've said so many times, I don't know what I'd do without the support that's so...
This is something I've been wondering about .... I've read that when you pass gass, you have no control over it and it just comes out. Do you have no warning? And is there anything you can do to...
Thanks so much to all of you for your good, honest information. I'm soooo glad to know I wouldn't have to irrigate. I'm having a transit marker study next week to see if I've also got some colonic...
Thanks so much, Gretchen and Denjski, for your replies. Gretchen, I may also have the slow transit problem (colonic inertia) and am actually having a test for that next week. Thanks for mentioning...
I don't know if I have MS or not, but I do have many of the symptoms of it. One of the most troubling (besides constant fatigue and heavy-feeling legs) is the diagnosis I've received that explains my...
Thanks so much for your replies! I feel so relieved now. So, can you tell me what your surgeries were like -- like, how long did it take for you to be up and on your feet after the surgery? How long...
I am considering having this done but a friend told me that everyone who has a colostomy has to do "irrigation". Is this true? I thought that was a choice the patient can make. Is there not an...
Hello HISWILL, I posted to you in another thread, but didn't know if you'd know it was there, so decided to post directly to you. I just wanted to know if the pain you were having is subsiding for...
Hello HISWILL, I just wanted to know if the pain is subsiding for you. I really hope it is, and if it's not yet that it will very soon! :-) Also wanted to know if before you had the surgery, did you...
Hi Cecilia, I just wanted you to know I emailed you a few days ago. Hadn't heard back from you yet, so wondered if you didn't get it? Just wanted to let you know. Thanks....
Hi Cecilia, Sorry for the delay in replying. I really appreciate you answering my questions! They helped encourage me even more. A few more questions, if that's okay? How big are the bags? Do they...
Cecilia, Thanks so much for writing again. That's so sweet. I forgot to answer your questions about whether I'm married and have kids. I do have a wonderful husband, but decided years ago not to have...