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Hi Trigirl, Just wanted to say that about a year after getting my ileostomy, I started getting TERRIBLE canker sores (much like the ones you described). I told my GI I thought it was Crohn's in my...

Headphones, Funny you posted this right now--I am going through the exact same thing. I haven't posted here in awhile, but just happened to check today... I am 29, had ileostomy surgery about 2 years...

Gilda, I think Summer and OHIO had good suggestions for you---I just wanted to also mention that after my colectomy, I was feeling cold (particularly my hands and feet) for months afterward. I...

I also got terrible mouth sores after my ileostomy...my GI thought they were from acid reflx, even though I had no other symptoms, and 2 other dr.s thought they were canker sores from stress. It got...

Hi rose-bud, My output also can get very watery, and I tried eating things like bread, potatoes and bananas to thicken it up, but it never worked for me. One nurse suggested that I eat more FIBER to...

Hi Sue, I have been using the Coloplast 2-piece since I had surgery (about a year and a half ago), and really like them! I had my bag fall off once also (than goodness I was at home!), but the reason...

When I had one, it looked like red bumps, and was not close to the stoma. It was near the outer edge of my wafer, and mine did itch badly at times, but other times would not bother me. This nice...

Hi Momof3, I also use Coloplast (I use the Assura Extended-Wear wafer/flange), and the drainable pouches that go with these wafers. I wanted to let you know that with this wafer, there are actually 3...

Jackie, Wow, so you have a drain in the area around your new j-pouch? Sheesh that would be uncomfortable to say the least. I had a drain for 2-3 weeks after my ileostomy surgery coming out of my...

Hi Tim, I am glad you found this site--you will get a lot of help and support here! I had my ileostomy surgery last May, and it was also due to severe Crohn's in the colon/rectum. I also, like you,...

...I thought maybe the thread was locked because the original poster was found to have ties to the Ostowash company, OR Ostowash contacted Healingwell and asked that it be locked...either way, I...

Thanks for the input, everyone! I think I will just get a small make-up bag to keep supplies in and keep that in my purse, which I always have with me (like OHIO suggested) instead of leaving stuff...

Liza, do you mean the skin on the outside edges of your wafer is itchy? Or, the skin closer to the stoma? If you are talking about the skin around the outer part of the wafer being itchy, i know...

Hi Rose-Bud, Did they check your iron level? After my surgery, I had low iron due to blood loss, and had shortness of breath and rapid heart beat, so they gave me a few iron supplements and i was...

Seems like she is trying to make you feel like less of a person now that you are going to have an organ removed.... You will not need to make ANY changes in regular life routines after surgery! All...

Spongebabe- I know exactly what you mean! Before surgery, I used to drink socially and never got too bad a hangover (drank 3-5 drinks). I also get a bad hangover sometimes from only 2 drinks now that...

Cecilia, I am sure you are right that Katie Couric had something to do with it, since her husband died from colon cancer at an early age. :( It is probably just to help publicize colon cancer...

Sammies- Boy, there sure are a lot more teacher-ileostomates that I thought...! I too am a teacher (this is my 3rd year of teaching) and I too had a proctocolectomy with ileostomy. I had my surgery...

Cecilia- Sorry to hear you have not been feeling your best! Head congestion is the worst :( I find it especially bad when I try to sleep (I sleep on my side), and all the congestion moves to one side...

I wonder if Nair hair removal cream is safe to use around your stoma? Couldn't hurt to ask your doctor....This will let you easily wipe way your hair, and it won't come back for a few weeks. Just a...

Peggy, You are so right--I really never did think I would feel this way. Even though pretty much everyone here (you and Cecilia in particular, as fellow Crohnies) told me that they felt great and...

Spindy, I dealt with severe Crohn's for 12 years before having ileostomy surgery in May 2008 at age 27. I too had everything removed--colon, rectum, anus. Truthfully, I was horrified at first that I...

That sounds like a good idea to me! I am sure the heating pad would help a wafer stick better. Like Peggy, I probably wouldn't be willing to invest the time to sit and let it heat up, though! :)...

Thank you, Everyone, for all of your suggestions and support! I carefully read through All you had to say. :smile: I do have CD, so it is possible that it is Crohn's in the mouth (gosh, I hope not)....

Thanks for the commiseration, everyone :-) It always makes me feel better to share this stuff with people who know firsthand what I am talking about. Wade--You are definitely right that the sugar was...