Haven't been on here in a while. Hope everyone is going ok since i last stopped by. Not much has changed with me. Same crap, different day. I'll stop in more often when i get the chance. Slice...
NHL 09 is incredible. One of the best sports games out there if not the best. I was thinking of getting that DC game since my kids are into the super hero video games. Maybe if i pick up the Kombat...
Love my 360. Mostly NHL 09 and Madden. Tiger Woods and Burnout Paradise when i can. Was never really into the war type shooting games. Although i tried Left 4 Dead and that wasn't bad. Something...
Yes, still around. My apologies to Vette for not get back to him. Parents came to visit soon after that and pretty much forgot about bringing up my Pyraderma. It's still there, but has improved. My...
Yeah, my surgeon is basically getting my Gi to deal with it, so i'm not too sure how thats gonna work. Right now he said it looks like it's moving too quick, and that Remicade might be my best shot....
Did the same thing as Cecilia. Had Remicade every 8 weeks and ALWAYS left feeling like things could be worse. I used to bring the water bottle and stuff. But since switching to the clipless bags with...
Going to see the surgeon again tomorrow, so he can decide on the next direction to go in. What he thinks is Pyraderma ( sp?) hasn't gotten any better. The holes don't seem as deep, but are getting...
Or maybe something like..." Hey, we're dating, already have a child. Maybe we should get to know each other"...
It's a nice area. I live on the west side so i'm not really near downtown, more like the woods Although the whole city is being eaten up by the Asian Beetle. Yikes...
Living in WORCESTER MASSACHUSETTS THE HEART OF NEW ENGLAND AND ALL THE TROPHIES THAT BELONG HERE /community/emoticons/turn.gif ...
Maybe try a different appliance. I've had bad reactions to certain ones. Like OHIO said, paste, powder, almost anything can cause somewhat of a reaction. My area was really red and raw and now next...
Hunting season?? " Imagine you're a deer. You're prancing along. You get thirsty. You spot a little brook. You put your little deer lips down to the cool, clear water - BAM. A f$%kin' bullet rips off...
I actually have like 3 boxes of seals but never needed to use them really. Nurse the other day asked if i had ever used them and i told her i had boxes of them, but never felt the need for them. I...
So now i go in for day surgery next week so my surgeon can scope whats left of my insides. He's also going to try and see what he can do for the " other hole" in my rear. But right now he's somewhat...
I'll admit before i got Crohns i would have thought about people pooping in a bag as freaks. It just didn't make sense. BUT IT DOES NOW. /community/emoticons/tongue.gif Of course i never really cared...
Man, i've tried. Football season does officially start tomorrow, so i think we need to start a thread on how the Patriots will go undefeated again this year. Or how people in the Tampa area suddenly...
I've missed the last week from work because of the lovely holes eating through my skin. So when i talk to some of the other manages at work i explain to them i have some skin ulcers, but don't really...
Home nurse was here this morning. When i was at the surgeons thursday he had to make another hole to drain the garbage around it. I had NO idea he went so deep until the nurse this morning pulled out...
Well, i'll let it eat me up before i go back on prednisone. Although when my surgeon brought up the possibility of it being Pyoderma, he mentioned Remicade. But then paused because the week before i...
Saw the surgeon and my ostomy nurse. Both seem to think it could be Pyoderma. The holes went from being small to pretty large real quick. Good amount of blood on the wafer when he took it off. Can't...
So the skin around my stoma hasn't been doing so well. Which i guess makes me forget about the extra hole in my rear. But the skin keeps getting worse. Saw the ostomy nurse again this past Tuesday...
Like i've said before. I wasn't using it anyway. I don't miss my rectum. Bottom line, in the end ( now theres a pun for ya ) you'll feel better after a while. I had the setons and all, and i'm still...
My question is, if they are your friends, wouldn't they know anyway??? I mean, most of my firiends know how sick i was, and know i ended up having surgery. So for the most part they know what...
Hope. I don't know much about your condition since i was on the other end of the rainbow...couldn't STOP pooping. But don't leave the doc until you get what you want. Kick, scream, and cry. But get...
Doesn't seem like i can make progress. Although i guess i'm not nearly as sick as i used to be. Wound won't heal. Nothing happening there. Gonna have to suck it up and deal with surgery on that....
I have noticed the same thing and i'm not sure how to explain it. You really need to clean it as far into the bag as possible. I noticed when i don't the end of the bag....has...
YEAH!! Bill took some serious heat around here. He's since been forgiven and even thrown out first pitches at Fenway. Too many people will always remember him for that one ground ball. But he had a...
Here is my take on that. When i had Crohns ( who knows, probably still do ) i never left the house, unless i had to. Now that i have the bag, i have a life again. Certainly not to put ANYONE down,...
If you lose your hearing in your left ear, you learn to hear with your right. If you break your right hand, you learn to do things with your left hand. If you lose the use of your colon and/or your...
http://www.msnbc.msn.com/id/21134540/vp=25534292#25509727 ...
No question is depends on the person. I think i empty it all day long. I'd say today it was around 5 or 6 times so far. But then again i don't liike to let much get in there. But i'm the same way, if...
So last i saw my nurse, she checked out the area around my stoma. Determined i was wearing the wrong appliance. She was right there, changed what i was using and it helped. But the area on one side...
From my experiences with surgeons and the operations i've had, most of these surgeons end most of thier sentences with ' but we'll have a better idea once we're in there'. Keep all your options open....
Hmmm, i guess i'd have to start wearing one to see if it really would bother me. Wearing belts bothers me sometimes, i can only think that a seatbelt would be annoying. But as my ostomy nurse always...
Whoa, sorry for missing this. Yes edie, my anus is now sewn shut. Didn't need it anyway. And they took my rectum. But, didn't need that either. In order to remove the rectum and the area around it...
John, i've been on all that medication you mention and then some. I still believe the meds did more damage than the disease. As Nike says " JUST DO IT". If i had the actual option to have an ostomy...
It kills me to think of all the things i didn't do with my kids before my surgery. I missed all but one little league game because there wasn't a bathroom there. Now i go to ALL the soccer games and...
So i have an appointment with my surgeon this friday. I'm trying to get 20 questions together for him. One of those won't be 'should i call my mother'. Most of what i'm going to ask him is what if i...
Ahhhh yes. Although the best diversion would have been the Bruins taking out the Habs, i can deal with another possible World Series with the Sox. At least the Yankees are near the bottom. I think...
I had it done once. Basically told my doc he better LOAD me up because i don't want to know whats going on. I've had plenty of things done, but this one just freaked me out. So i had it done and...
No pun intended but HOLY CR@P!! 2 years, 5 years, wow. Wasn't thinking this might take that long. Thing is the one hole kinda split into two parts, kinda coming together in the middle. For some...
Still packing. Twice a day. Wound looks fine ( from what i'm told ) and shows no signs of infection at all. Surgeon didn't really even bring up any other options. He seem set on the VAC deal. How did...
Thing is, i feel fine!! Probably the best health i've been in in years. Except for the open wound in my rear. The surgery was done last November, and sorta cleaned out again in late December after it...
/community/emoticons/yeah.gif Yeah, they took the rectum back in Novemer. Doc said it might take a while for the would to heal up back there. Well, it's about 6 months later and the would is still...
Gotta say /community/emoticons/yeah.gif What in the world was i thinking using clips!! These are easier to clean, more comfortable, and strange enough, doesn't seem to smell AT ALL. I don't know why,...
Only thing with the pre cut wafers is your stoma will most likely shrink after a while. It is trial and error. I know the more active i got the less the one piece worked for me. I went through a few...
So while i was at my surgeons office for a follow up, i mentioned i was having some problems with the skin around my stoma. So of course there is a yeast infection going on ( oh the humanity of being...
YEAH!!! And i thought going @ssless wouldn't bring me squat!! Woo Hoooo I also watched the Kids Awards. Probably making myself seem old, but seeing Han Solo get slimed was crazy!! IT'S HAN SOLO, YOU...
Cece. Get well soon. My butt just isn't the same without ya. /community/emoticons/tongue.gif Slice...
Ahh Been there, done that. Oh wait, still doing that. I had the fistulas actually before i lost my colon. But the doc said the same thing when putting in the setons, that my butt would take forever...