I agree with Mormor Vicky If you dont feel well then your doctor needs to find something that will help. A GI should be be able to help you with the issues even if its not Crohn's related. Finding a...
I must be really lucky because whenever I feel the slightest bit of pain and complain even a little bit then my family is ready to race me to the hospital. I am the one who has to convince them its...
Hi Bitbit, I had perianal disease which manifested itself via abcesses. They were very very painful and did not respond well to Remicade and were made worse by treatments of prednisone. I had a drain...
Hey Amanda! I am 3 weeks post op from my ileostomy reversal. I had the ileostomy for 18 months because of Crohn's disease and a stubborn perianal abcess. Its been a tough go but I am definitely...
Hey Keano, I am on Remicade for almost a year now and its helped with the abcess but not healed it completely. I had an ileostomy for 18 months as well in hopes of clearing it up and had reversal...
Hi Tara! Are you taking any pain killers? If so, that may cause constipation. How long have you been on prednisone? I also had joint problmes because of being on prednisone for almost a year. I was...
Ouch! I have had abcesses and they hurt! I developed 2 abdominal abcesses after resection surgery and had to wear a drain for 4 months, and then recently had a peri-anal abcess that was very very...
Not sure if you have heard this but thought I would share! It seems that a group of scientists has found a gene carried by 50% of Crohn's disease sufferers, leading to hopes of a drug treatment....
Holy Crap Unplugged! Sounds like you have been through the ringer! Good on you for keeping such a positive attitude! Roddiesgirl, I live in Calgary, Alberta. How are the wait times at the Emergency...
I made it home! Taking it very very slowly! As much as I complain about Canadian healthcare over the last 8 days in hospital I had: 2 Abdominal Xrays, a CT Scan, a small bowel follow through, and a...
Hey Bratcat, what did you end up using?...
Hey Peggy, thanks for the post. I feel like such a baby for taking so long to recover! It does hurt to walk and I am soo tired. I feel like I should be up and about . I think I recovered from the...
I am finally having bowel movements, but had a major scare last night. My temperature and blood pressure spiked and I started having unbearable sharp pains in my stomach. The doctors were concerend I...
You are taking a trip next week and you are 6 days post op!? What are you crazy? Excuse my bluntness but did anyone explain to you and your wife that you just had major surgery!? It sounds like she...
Hi Blossome28 It seems everybody's recovery is different so its hard to give advice. I had my ileostomy reversed 2 weeks ago, I spent a couple of days waiting for my bowels to start working, once I...
The doctor left my incision open too and it is very *****. He sent me home that way and told me to cover it with guaze and tape. I am back in the hospital 15 days since the reversal surgery because I...
/community/emoticons/shakehead.gif am back in the hospital! I came in through the Emergency Room aournd 1am on Tuesday night (or I guess that would be vey early Wednesday morning). I had really bad...
Gavobe, I am younger (31yrs old) and I also found it hard to be comfortable with my boyfriend when I had my ileostomy. For the first little while I felt more comfortable wearing a tank top while...
Someone suggested I use Gasx and it has been my saviour since surgery! It has really helped with the bloating and gas!...
I know you asked for a man's point of view but I have suffered with low self esteem due to my disease as well. For the first time in 4yrs I am in remission and I just got out of the hospital...
I am back at home! It is so nice to have be back in my own bed and my own bathroom. Hospitals are really crowded in Canada and I had a co-ed room with 3 other people... Luckily 2 of the other...
Hey! I brought my laptop to the hospital with me to watch movies and found a wireless connection! Its day 2 post op and the pain is worse then it was yesterday. I guess the anisthesea has worn off....
Well the day is finally here! /community/emoticons/smilewinkgrin.gif I have been waiting since May to have my ileostomy reversed and I received a suprise call from my surgeon's office this morning....
Hey J's mom, sounds like you have your hands full! You must have a lot of patience! I had troubles with leaking for a while until we figured out that my stoma opening was tilted and faced downwards....
Glad bag you are hilarious! I laughed out loud when I read your comment and am still laughing now.. I wish it was a 3 hour intimate moment... I fell asleep.... /community/emoticons/blush.gif ...
I was just reading summerstorm's story and realized we probably all have stories like that - and my friends just dont get it, but I am sure you all understand.. Care to share? I remember one time...
hey bratcat... Congrats on almost being done!! You must be soo excited! I dont know if any of these will help you but I thought they were interesting.. Don't cry because it's over. Smile because it...
Hey Rita, I did a lot of searching for swimming suits that would work (I just got back from Thailand) and I found that boy shorts and a bikini top worked the best. The boy/board shorts ride high...
I just came back from a holiday in Thailand and did a lot of SCUBA diving and my flange and pouch held up perfectly! It was a very scary first dive - but even after diving for an hour at depths of 60...
Hi jellybean1887 the 2 piece Convatec system has a closed mini pouch for intimate moments. Its quite small - a little larger then the size of your palm and is for one time use - you can dispose of it...
Good luck Laymanz! I hope all is well and am sure that you will feel much better once everything is taken care of!...
hey, I wear a bella band which is for pregnant women. Its an elastic tube top meant to go over the belly. This helps to keep my pouch flat. My stoma is level with my belly button and I find when I...
Calgary, Alberta, Canada North of Montana... Hey Sosueme, where is your specialist located?...
Hey! I am back from Thailand and I survived! My skin is a mess, the heat and the sweat made my appliance very itchy and I had to change the flange almost every day, but I would do it again in a...
Wow partygirl, thanks for sharing with us - I hope that you are able to take the time to heal and to spend the time with your daughters. It sounds like you did the right thing by trying to trust him...
Good luck! Please keep us posted!!...
I just had a look at the photobucket site! What a great idea! Its so nice to see pictures of some of you online! I am counting down the days till my trip to Thailand (22) and will definitely post...
Hey Ivy6 can you repost that article? I cant find it in the past posts. I have been struggling with weight gain as well and just assumed it was because i was absorbing nutrients, but the metabolism...
Wow Sammies - sounds like a hard place to be. It sounds like your mom is in a bit of denial, but you dont need to be. I cant imagine trying to manage all that on my own. If your mom wont ask for...
Good Luck Kelly! Seeing someone you care about in pain and going through hard times can be very difficult - the feeling of helpessness can be overwhelming. I can only imagine how hard all of this has...
Hello! I have had my ileostomy for over a year now and rushed things when I first had it done. I ended up in the hospital with a blockage because I was dying for a salad. I think the key is...
I know the answer to this has been posted - but I cant find it.. Other then M-9 drops what else can you use to eliminate odor in your pouch? I saw one post that said peroxide and mouthwash - but is...
Ok.. how do I get to 'photobucket'? You are awesome Summerstorm!...
hey songstress, do you have a specialist for your guts? My family doctor always gets an earful from me when I go in as the side effects from all the meds, especially prednisone which makes me very...
unfortunately, I believe they will always check your vitals - but then again I could be wrong. Remicade if infused too rapidly can increase your heart rate - which is why such a tiny amount takes...
Hey.. this may seem like a silly question but a few people have mentioned that marshmallows help slow down output - and I dont get it.. Do i eat them? Stuff them on my stoma? or what??...
I realize my post about[b] waiting for surgery was very selfish as some of you do not have that option. [color=purple> ][b] being angry for a moment - and I am definitely over it....
Hi Lacey55, I live in Calgary - where do you live? Maybe I can come there for the surgery... lol...
Hey! I am younger as well and had to change the way I dress - but only a little bit. I bought a lot of tight fitting tank tops to wear as a second layer under all my clothes. This helped keep the...
I have been on Remicade for 6 months and the only warning I have is that it may take time to kick in. I had been told I would 'instantly' feel better - and it took about 3 months before I started to...