Thank you all for your support and prayers. I am hoping that the Rheumotologist (I was seeing a Neurologist who was not as good) will know what is going on. I am trying the best to pace myself and...
I do and it is horrible. I have it especially in my hips, pelvis, all over my back, shoulder, and neck. That on top of the muscle pains everywhere....
I have not been doing well as much. Since the summer, I actually have gotten worse. I can no longer do the long walks anymore without severe pain. I was on Neurotin but it only worked for the first...
I have had an awful experience with it. It caused severe G.I. issues, especially made my diarrhea worse. It only helped for a like 2 months, then it did not work. Even with the constant increase it...
I did not like the Chiropractor treatments. I actually felt a lot worse. But, at least my chiro reffered me to a Neurologist, who eventually diagnosed me with Fibro, so that was the only positive...
Thanks Karen for the wonderful information. Lets hope they can do it soon. I would love to be able to go to school, do my clinical without feeling lethargic and in pain....
I am so sorry to hear that. I am in the same boat. I am so lethargic, yet being on the meds for the fibro (nerotin) does not help. I am a student who is also doing clinicals 2x a week, yet caffine,...
I have the same issue with shaky hands and fingers. I was diagnosed with a familiar tremor because my sister and father also suffer from it. I was put on Propranolol (which is actually a blood...
Thanks everyone. My doctors and I have discussed, which the way I am feeling weak and lethargic after clinicals, I will be taking a year off after all of this for some much needed rest. Then I will...
I am a full time time student who is to be graduating this year getting my Associate's in Histotechnology. I am also doing clinicals in a surgical pathology laboratory as part of my schooling. Though...
I know how it can be. I am in school full time and in clinicals for medical laboratory technician. I am one who also used to be very anal about a very clean house and had been wicked OCDish about it....
I have those same issues. It does show how sensitive our nerves are. That is part of the Hypersenitivity of our overactive nerves. I can have a speck of sand in my shoe and it feels like a huge...
Feel better and wishing you good luck and hope that all goes well. ((HUGS)) and ((WELL WISHES))...
Congrats Hara =) I am very proud of you. WE need to know our limits and I am very glad you knew yours and was able to speak up. WE need to take care of our needs, especially with Fibro, as we need to...
Here is a link I found about it. I hope this helps you. http://dercumsociety.com/...
I have the lumps in my breast, neck, and other areas. I was tested for cancers and stuff but it was not....
I get those and I am 32. I usually feel very hot, my eyes burn sometimes. When I check my temp it can be anywhere from 99.1 to as high as 101.3. When that happens I would check my temp just in case...
I feel for you HUGELY!! I have no choice but to rely on public transport and it is heck. I have the same issue with having no balance when standing yet, because I don't look old or anything, I have...
Hi Davina, Welcome to the forum. ((HUGS)). I hope that you find relief in your pains very soon....
Apple venus, My surgery was unrelated to the fibromyalgia, but it causes the IbS of fibro to be a lot worse. However, I started to have my fibromyalgia pains before the surgery with shoulder and arm...
Sometimes I get really bad to where I want to use a cane. I have days where moving is impossible and yet I need to get going. Last month I went on a day trip and knew I would probably need one, just...
Applevenus, I think that is so funny. You are right. WE have to have some positivity in our illness. I do the same thing where my positivity might come from "making fun" of my illness and myself with...
It is just strange how people think something that we all stuggle with is so cool or fashionable. It is also sad that it is too easy for someone to fake it to get social security, but yet the one,...
I so agree. I actually did most of the work after many trips, tests for so many things. I had my problems for a few years and I had every diagnosis of food intolerance (from the G.I. symptoms, which...
I get like that as well. ironically my Diarheah and IBS symptoms clear up, where I hold more food in, but other than that I am a mess. I sleep all day, can't move, or I am up all day and hyperactive...
Hi Tweetygold and everyone, I have found that after taking the Gabapentin for a month or so, my diarrhea has calmed down. I went from going 30-40 times a day to only 10 or less. I am able to eat and...
Thanks all. Kitty bear, I had the same issue you do, to where I always know where all the bathrooms are. I get worse during a fibro flare. Also, if you see a fibromyalgia specialist mention the...
Moonsinger, I have the same issue. Though I found I have no food intolerances, but because I have no colon, the healthy stuff like veggies go right through me. Unfortunately everything else did as...
I just want to say that I had found out that all of the 3 years that I had severe diarrhea were from the fibromyalgia, not food intolerances. I have been through many G.I. doctors, meds, etc and...
I have the exact same issue with severe diarrhea and IBS. Though I had a total colectomy for slow transit constipation and did great until ironically I started having the diarrhea a year later. I...
Congratulations on the job. It sounds like a fun and easy job....
Thank you so much for this wonderful article. I wish more people would read this....
My goal is to: 1.go to school and have more energy for both studying and my clinical without sleeping and/or feeling like crap. 2. Be able to do my ultimate goal of being able to go to Disney World...
I am so very happy for you. It is amazing the things we can do on the good days. I am so extremely happy for you. It must feel great to be able to do a wonderful activity like a concert. I am so glad...
I am taking 250 mg 3 times a day. I have not felt much different. Though I have a little more energy and relief of some pain, but not much working for me. I have been on it for a month now. Plus, I...
Also, Fibrowhat, You are not crazy or imagining things. That is what Fibromyalgia feels like. I know I get like that too much and yet am going to school. I know how you feel....
Fibro, I just diagnosed with Fibro myself. I went to a Neurologist who gave me MRI's and tests to outrule things. AS soon as he gave me an emg to rule out neuropathy, I was then diagnosed with Fibro...
Tell her I hope she gets better soon. ((HUGS)) I hope she keeps fighting and stays strong....
Hi Songbird, I hope you feel better soon. I know how you are feeling. I am also having a very bad day, severe headache, neck ache, muscle ache. This weather here in RI does not help. Hot one day,...
I have it severely, where I become lethargic. It has ruined my summer and I am in school (off for the summer) and it affects my ability to be able to last more than 4 hours at my clinical. I am going...
I am having the same exact problem. The last 2 years, I went to the beach almost everyday, had tons of fun, went on little day trips all the time, etc. This summer, I spent my whole summer sleeping...
I have accepted Fibromyalagia with open arms. The reason is that at least I know that I actually have something real and not being sent to a Psychiatrist because people think I am faking or crazy....
Hi Deb, Basically I have given up all grains, carbs, fats, chocolate and everything. I am an expert on gluten free, wheat free, and allergen free diets. Basically I just eat very lean meats like cod...
Hi Deb, I actually avoid gluten, fructose, dairy, lactose, and wheat due to my food intolerances. I also been eating things that have no fiber, no fat, no grease, no caffeine, no sugar. I have been...
Thanks all for your replies. I have been doing okay on it. Though I still have my usually sever pains, but at least my fatigue, when I have my morning coffee anyway is okay. If I don't have coffee or...
I have a ton of G.I. issues. I have severe diarrhea for the past 2-3 years and the G.I. think it is a muscle function issue. I have had so many meds, yet I can only digest liquid medications. I even...
Solar powered, That is what exactly that I was talking about. The activator that they use to correct "subluxations". That hurt like heck. I would be in more pain afterwards. Many chiropractors,...
I just want to say that I am actually liking this Neurotin medication. I am actually having an excellent sleep, and actually feel somewhat well rested. I still have my fatigue, but instead of it...
I actually went to a chiropractor first, who felt my tender points, which were everywhere. But he used this thing where he would poke your back, neck, and other areas. It did not work and made my...
Moonsinger, That sound like myself lately as well. Plus with the bad crazy weather we have here in Rhode Island, it has been a nightmare of my severe fatigue and severe muscle and bone pain become...