Hi all. Not sure who might remember me. My mom (benlar) and I were on this site a lot from 2006-08, mostly on the UC forum. A little back story: I was diagnosed with UC in 2006 at 15.5 years old. I...
Hi, I rarely post here anymore. I had J-Pouch surgery 4.5 years ago at 17 years old. Mine was in 2 steps. I was steroid dependent and went into my 1st surgery at 60 mg of predinisone a day. I was...
I'm glad to hear you're going to e healthy soon! I have a JPouch and like everyone has said, it is definitely normal to be scared! It is a major decision and a major surgery! But in the end, you will...
Hi Kyle, I haven't been on HealingWell in a very, very long time. I'm sorry you're struggling. There is no best option that someone can give you. In the end it is your choice. But I can give you my...
Thank you everyone for the birthday wishes! Today is actually my mom's birthday (Bennie). We treated ourselves to pedicures to celebrate. :-)...
Well, I am still in high school but I work 10 hours a week at the library. I am a page so basically I get to put books on shelves, make the shelves look pretty and in order and a bunch of other...
You have brains in your head. You have feet in your shoes. You can steer yourself, any direction you choose. --Dr. Seuss Don't cry because it's over. Smile because it happened. --Dr. Seuss If you can...
Hi Karliebug As my mom said I was diagnosed with UC at 15 1/2 and had 3 major flares and exhausted basically every medicine. I had the two step JPouch surgery and am feeling great. I'm a senior in...
I luckily still have my belly button! I had a full incision and my surgeon went around my belly button. It is very slightly messed up (the scar runs around the side of it and healed a little funny)...
I'm from Long Island, NY too!...
Hi. I had my reversal in November and I'll see what I can answer. 1. My surgeon did not stitch my stoma hole shut. He did not want close it because there is a higher chance of infection. The area has...
Hi all! I am doing very well. I am adjusting well to the JPouch and going to the bathroom again. I am back to my old self running around as always. Between school, work, clubs, an upcoming talent...
Hey sparkle, I was diagnosed with UC at 15 1/2 (beginning of 10th grade) and am now 17 (a senior in HS). I had 3 major flares (September 2006, September 2007, and March 2008). Through those 3 flares...
Katrina, I changed my bag every 3-4 days and every change (after the first few) I started showering without the bag. I felt cleaner after showering without the bag. Seymour was known to surprise...
One morning when I had my bag it was puffy from air. I was nice and comfy in bed and didn't want to get up quite yet. Well I must have dozed and when I woke up I rolled over and the clip blew of the...
Wide...
I don't have any MUST WATCH shows but I do like watching these shows. -Gilmore Girls -Scrubs -America's Next Top Model -Wife Swap(just makes me laugh) -My Super Sweet 16/Exiled (another show that...
Thanksgiving is my absolute favorite holiday. I love the food. The past 2 years I had been flaring and on steroids which just had been kicking in. I pig out and don't care what happens after. I don't...
Good luck!!! Keep us posted!!! :smile:...
Thanks everybody!!! We will definitely keep you all posted on how things go. I am very excited for this surgery. :-)...
Hi. I ended up finding a quote in my searches by Christopher Reeve. Here it is... A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles. —...
Hi Katrina, First of all let me tell you from someone who has never been in a hospital over night, hates hospitals and being your age surgery is definitely doable. Everything my mom said is true. I...
I know you said that carbonation in soda causes problems of gas but have you tried seltzer? After being diagnosed with UC I drank LOTS of seltzer and still do. Soda upsets my stomach more than causes...
Peggy-I officially need to submit my information online by October 24, but as soon as that is submitted it is one less thing to think about. So far I'm really loving all these quotes and it's making...
Hey everyone, I need a quote for my yearbook. Can you believe I'm a senior!? Because I was diagnosed in 10th grade and have been through so much in the past few years, I would like the quote to...
I change everything in the mornings usually since it is the least active time for Seymour. I gave up on eating a few marshmallows to stop output so I tend to be gassy when I do change (as I am...
How about Miss Diagnosed? You can wear a sash that says that with a crown and robe. Somehow you can make it a zombie. I think I'm going to be a librarian. Wear a dark suit with the hair in a tight...
bella3250, Bennie and I live on Long Island too!...
My stoma's name is Seymour. I see more with the temporary ostomy. When I had UC my colon's name was Annie Moore because you never new if there was anymore left....
My best friends all knew I was sick and so did most of the people I hang out with at school (that's what happens when you miss so much in sophomore and junior year). My best friends all knew I had...
Hi everyone! As my mom said I am doing better for the most part. Adjusting to the whole fact of surgery was not easy but not as bad as I expected. The only thing I still do not like is the wafer...
My stoma is a boy. His name is Seymour (because I can See More). His sister was Annie Moore (as in is there anymore?) who was my colon. My colon was always a girl because she was just b!tchy at...
I was diagnosed at 15 and a half. Now I'm 17....
I take mine in the morning when I get up (on school days around 6:30ish and on weekends 9ish). My afternoon dose I take when ever I get home from school (which can be at 2:30pm or 6pm depending on...
I do drink soda. Mostly pepsi or sprite. I hate mountain dew. If there is soda in the house than I drink it but if it's not than it's not missed. When flaring the caffeine gets to me but when I'm not...
I was diagnosed with UC at 15 1/2 (October 2006, 10th grade). I had been out of school 9 weeks so obviously my friends knew I was sick. My best friends asked if I was okay because they hadn't seen me...
Long Island, New York, USA!...
Hi everyone! So I had my first remicade infusion on Tuesday. I had a horrible morning and finally got to the hospital around 1:30ish. The actual infusion wasn't bad but waiting around freaked me out....
Hi Everyone, I have my first remicade infusion tomorrow morning. It is in ASU at the hospital which is where I have my colonoscopies. I have a few questions for everyone. -How do I expect to feel...
I love it all and plan on eating it all. I figure I have a moon face anyway so stuffing my face won't make much of a difference!!...
I use AIM. Basically because all of my friends use it and I've used it for so long....
I was diagnosed at 15 and a half....
I drink flavored seltzer everyday. Usually 1 or 2 liters at least. I started drinking it during my first flare because I hadn't been drinking enough water so I tried seltzer instead and have been...