Thank you all for your responses. We had my son transferred to another hospital where my daughter's surgeon in (he is head of colorectal surgery there). He scoped my son to see if there was anything...
Hi. My son (29 years old) has had Crohn's for 10 years. Most of the time, it was held in check with meds. It has always concentrated by his rectum/anus and he has had some abscesses over the years...
Hi. My son is 24 and was diagnosed with Crohn's at 19. For the most part, he has kept it under control being on Pentasa and 6-mp. He developed an abcess a month or so ago (he keeps his Crohns' issues...
Hi everyone. I check in once in awhile but rarely post. Glad so many are doing well. Hope the rest of you start feeling better soon. Bratcat just had her 3rd yearly pouchoscopy (can't believe it's...
So glad to see him doing so well. I remember his early days pre-surgery and just after. Great that he is enjoying life again!...
My daughter's last straw was having her 3rd big flare in just over a year and missing another 9 weeks of school. That and the fact that she was pretty much at the end of the medicine possibilities...
My daughter had j-pouch surgery when she was 17 years old, the summer between junior and senior year in high school. For her, it was the best decision she made. She had her temporary ostomy for 4...
Cathy, I'm so glad you wrote! And so happy for Dillon! It's wonderful that he can enjoy life again the way he should. I've thought about you and your son often. It's very sweet of you to think of us...
My daughter would eat a few marshmallows before changing her appliance. Most often, it seemed to slow down her output enough to get everything back on. Of course two years after her reversal, she now...
July 3 will be 2 years since my daughter's j-pouch surgery. Prior to surgery, her doctor did as many tests as possible to make sure she had UC and not Crohn's. This included the camera endoscopy. For...
My daughter was diagnosed with UC at 15-1/2 at the beginning of her sophomore year of high school. She had 3 major flares in less than 2 years. Each time she was out of school for almost 9 weeks. Her...
Kathy, I check in every other day or so but rarely post anymore. You can see by my signature that my kids are doing well. I'm so sorry to hear about your husband's death. He was very special on this...
Thinking of you at this hard time. Wishing you peace and comfort. Keep warm memories close to your heart right now. Take good care of yourself. You are in my prayers....
pb4, my prayers and sympathy to you and your family. May your warm memories get you through this tough time. Know we are thinking of you....
Hi everyone. Happy New Year! Old Hat, how nice of you to think of us (and everyone else). We are doing fairly well. Physically, Bratcat is doing amazing. She finished her first semester of college...
Hi everyone. We are here. Thank you for your kind words and thoughts. I've been trying to come on to read how everyone is doing. Jsut haven't had much energy to post. But I am thinking of you all. We...
Hi Cathy, thanks for thinking of us. I've been checking the website daily. I just find it easier to be a spectator still. I'm so glad your son is doing well. I hope everything keeps improving....
Bratcat was working on her homework for English tonight. She has to read an article about when you are confronted with comments and jokes that you find derogatory, racial, etc. She has to lead a...
My husband passed away this evening. He died peacefully and I was able to be with him. Thank you all for your prayers and thoughts....
Suebear he is only 52. He has high blood pressure and is overweight but no other signs of heart problems. They took him off the paralyzing drug because they weren't getting the twitch results they...
I posted the story on the UC forum but my husband had a massive heart attack today. He is stable in the heart department now (his entire right side of the heart was clogged) but he is in a coma and...
Thank you everyone. The entire right side of his heart was completely blocked. They did a catheter and that is now cleared. He is in CICU still in a coma. We don't know how long it was between...
My husband had a massive heart attack today. He came through heart surgery, but is still in a coma. They won't know how his brain is until he wakes up. I'm at the hospital now. Please keep him in...
Hi Cathy, Bratcat never had any leaking problems. She did have some discharge when she had her ostomy (it is expected because it is still an active part of the body). But she only pooped from her...
My daughter had the j-pouch surgeries last year. For her, it was the best decision. She did try some of the harder-hitting drugs (which in the beginning we swore she wouldn't ever try). Unfortunately...
So glad you found something that makes life just a bit easier. And great that there was an ostomy nurse to pass this great information on to you!...
Happy birthday Peggy and stoma! Bratcat just had the one year anniversary of her step 1 surgery (July 3). What a glorious reason to celebrate!...
Hi Bob, first of all I am glad to hear surgery went as well as expected and that you are on the mend! You must bring your minister friend in again on this situation. He did offer after all. I think...
Whoo Whooo!! So glad this was a good holiday for you! One year ago Bratcat was just out of surgery (July 3). What a difference a year makes. Enjoy all those little things that make life special! ...
My daughter just had the one year anniversary of her surgery (July 3). When she was first diagnosed at 15-1/2, we wouldn't even think about heavy hitting drugs let alone surgery. Three huge flares...
Hello all! I read the posts daily and think about everyone all the time. I'm glad many of you are feeling well. I hope those that are struggling for remission find it soon. Bratcat is doing great....
Don't know how true it is but my mom always said when it happened she knew she needed more protein in her diet. That was her cue to have steak! I know when I have gotten it, if I eat red meat, it...
First of all, if they have any issues with you, they should address it face to face rather than by a letter. Seems to me that you would be better off finding a new GI. I cannot imagine having a...
Bratcat is doing great. She never loved her ostomy but learned to live with it for the 4 months she had it. She called her colon Annie Moore (as in "is there any more that has to come out") and then...
mamaluke and collicat, I've been following this thread the past few weeks and thinking of both of you and your sons. Mamaluke, I am glad your son is starting to feel the positive effects of surgery....
I think he could use the support of all his friends from the UC forum!...
I don't know of any online support groups for family members but you (or your spouse) can always vent on here! I am the mom of IBD children and this forum has been a godsend to me. I can ask lots of...
Congratulations on this wonderful milestone! Enjoy the great feeling of a terrific accomplishment....
Fabulous news, Carol! Congrats to your hubby...
Can I join the "fun"? You know your child has UC (or Crohns) when... you forget that family, friends, and acquaintances may get grossed out when you talk about your child's BMs (with all the details...
Here's to a speedy healthy recovery! May you start to feel better very soon....
Can taking immodium long term cause any problems? My son has Crohns (I know this is the UC forum but I love you guys so much). It's pretty much under control except for the morning bathroom routine...
Bob, ((hugs))! I'm sure in her own crazy way, your MIL thinks she is being helpful. In reality, she is hindering your emotional healing (which is a big part of major surgery). You mentioned that she...
How long was your hospital stay? What items should I take to the hospital with me? Undies that you don't mind ruining (don't buy new pretty underwear that you love). Loose clothing. Bratcat didn't...
Bella, sorry you had to miss your prom. It is one of those high school rituals that many want to go to (but over the years generally remember it wasn't as spectacular as they remembered lol)....
Collicat, you are right, our children's stories are very similar! And it stinks! You may want to think about changing his diet as kim123 said. We never really tried that completely with Bratcat....
jays_fan, does your coach (and the school) know about your UC? One of the first things we did when my daughter got sick was to let them know. She's not on any sports teams but very involved in the...
My daughter had surgery (step 1) last July. Step 2 was in November. For her, it was the best decision. She had her first flare in the fall of 2006 (she was 15-1/2 years old). She had 2 more flares...
Bob, I'm so glad, for the most part, you are doing well! First of all, make sure your MIL goes home ASAP! That alone will be a great healing process for you. If your wife needs help around the house,...