The only time I had any experience close to this was in Dec 08. Had been up in Northern Ontario on a business trip, and the day before I returned was bag changing day. On the way back to Toronto I...
Please let us know what happens. I don't know what can help you .. I wish i could...
This morning was day 5, so it's time to get up early.. take a shower and put on a new bag. No big deal. got this routine down by now. Been 2 1/2 years and it took about 6 months after my ILO to get...
Many times here I read the words of someone who is where I was.. and having the same questions I had. The unknowns are the worst. You're sick and not getting better. You were heathy and vibrant and...
Life is short enough without ending it prematurely. I don't know of course what his circumstances were, and what caused the decision that led him to chose to end his life.. My thoughts are for his...
Your surgeon is playing CYA with a letter such as that. It's written for legal defense if something unplanned happens. I can only share this thought. If what you need is not critical or immediate...
I just routinely empty the bag about once an hour or so during the day. Normally I don't get active until after lunch (as breakfast has found it's way though me), then it tapers off about 11pm or so....
naaw mine is relatively quiet. Feels weird sometimes though when I'm active and the bag is doing what it's supposed to do. Stay away from eggs and you should be fine with gas.....
bindi I went back and re-read your original posting.. The last thing that still bugs me is the drainage out of my derreir' which is something I wasn't aware would happen. After everything got...
The cost of this plan will far outweigh the benefits.. I strongly suspect that most insurance companies will simply get out of the health care business and insure homes, life and automobiles... Also...
Is it a difficult thing to get used to? If I said no, i'd be fibbing. It's one of those things that does take some time. And also, someone helping you really doesn't get the job done It's best if you...
"....Now that I am at home I sit on the toilet 'normally' and just open up my legs and empty it through the gap....." That's pretty much how it works. "...If I tried to empty standing it would splash...
no eggs - no gas. One of Wade's rules of life for the past 2 1/2 years.......
My condolences to you.....
Good for you !!!!...
Had my ileo surgery in Oct 2007. Was told it would be 3 months til I could have the reversal. Went and saw my surgeon in Feb 2008; said all was well and to let him know when to schedule it. When I...
UC surgery is like any other. It's not perfect and the best source of what you are trying to find out is your surgeon. They've seen it all. Fourtunatley I've had no complications other than the life...
One of the life-changing things I've learned is that eating after 6pm will insure I'm up at 3am to empty the bag. Although I've also learned that my digestive system also tends to go to sleep in...
To use stronger epoxy and use less bags :)...
Sounds like a question for your supplier. They might be generous and exchange whatever may be damaged for replacements....
This may be a silly question but we all have to deal with this... Before I aquired my stoma and Ostemy Bag, I used to sprawl out on my stomach to sleep. These days, it's either on my back or on my...
Seems to me that unless the TSA declares an ostemy bag to be a weapon, that it's the screener's problem and not yours....
It's probably just something you ate. Unless you see the odd behavior; feel pain; see blood.. etc. etc. etc continuing. it's probably an anomaly. I know i really hate when the seal fails and I get...
I use the Hollister bag with the velcro end. However when I was in the nursing home had the kind that required the clip. Kept the clip and use it as part of the Hollister velcro. roll the velcro end...
Eat potatoes.... guaranteed to turn a water river into a mudside...
I eat a large breakfast a medium lunch and a VERY light dinner. usually not later than 3 or 4 in the afternoon. I'll snack on things later.. but nothing of real substance.. a sandwich is too much. I...
It's been 2 years since my Ilo and I'm not in any hurry to get off the bag and use my J-Pouch. It's good to read someone else's experiences and thank you for sharing them. I'm of the view that right...
After my surgery I woke up in post op with the most horrible pain you can possibly imagine. About two minutes of pure hell until the morphine kicked in. That was it. No pain after that and i was off...
Yes, it's a temporary. Been putting off going back in the hospital for the past 2 years for the J-Pouch activation. Now that I have things "stable" in my life after a year of unending diarrhea, 3...
The one thing I haven't been really able to deal with well is the -essence- which comes out of my derrier' .. which seems at times to be uncontrollable. When I had my surgery 2 years ago, I expected...
Hi Darlene... What's the rush ? Let your body heal. Get weaned off those evil drugs.. The J pouch is there and give your body a break from the hospital room. Your surgeon will be there after the...
October 17th marked two years on the bag. It was a salvation when I had my Ilestomy, as basically UC had destroyed my colon and my GI had reached the end of the medical treatment. Took 6 months...
I love the adhesive spray. It's like epoxy :)...
Congratulations and welcome to living a normal life again, without feeling chained to a bathroom. All you are experiencing is quite normal It takes a while to train yourself in how to attach the bag,...
If you are concerned about the Velcro failing, (as I am), I got a box of clips from the non-Velcro ended bags from Convatec, and use them on top of the velcro. That wa if one fails, the other works....
If you are in doubt.. go to the ER.......
Your Mother really doesn't sound stable yet. I would strongly suggest you see her doctor and arrange for her to be in a care facility until she can take care of herself....
RE: prednisone It's a drug with a double edged sword. you really need to be careful getting off of it.. Once I got down to 10mg, my doctor took me off it one MG at at time per week.. The first day I...
If you do go though with the surgery.. I want to warn you of this. that when you get into post-op after the surgery. when you first wake up after the anastesia wears off. You are going to experience...
Oh leave anything of value at home. Rings, watches, anything you don't want to lose. Sometimes things do go missing in hosptials. No sense in taking things you really don't need....
I brought one change of clothes and that was about it. Also a laptop. Everything else was provided by the hospital. Good luck :)...
Have some cake with icing. Sugar tends to come out of me like water. Good luck :)...
I had not known of Tysabri when I was going though my drug therapy. Jut did a web search on it. Personally, it's not something I'd try... http://en.wikipedia.org/wiki/Natalizumab...
Kaycie ... Before I had my surgery, the previous 7 or 8 years I started to think my body was starting to 'break down'.. I had been relatively normal and healthy before 2000. Had a horrible two weeks...
Easy surgery... NOT Remember, the surgery consists of having your colon removed. Not exactly a small thing. Not something that can be transplanted. Not something that you can change your mind and...
I was reborn after my surgery. No, it's not all the same as it was before. But life has returned again to where I can be a functional person. I have a future again, which was very much in doubt prior...
It's now Wednesday morning about 9am my time. Put this last bag on Monday when I got up about 6:30am. This is day three and (crosses my fingers) should be good until Friday morning. I notice on day...
The only thing is that do NOT carry any scissors. I usually pre-cut several bags and have them in the pouch. The TSA guy will open it and look around and then close it. I have the paste, stoma powder...
Try the spray adhesive along with the green wipes. Works like epoxy and I manage to keep a bag on for 5 days with it.....
I'm sorry to hear of your distress. I remember well 2007 when I spent almost the entire year battling UC and not having any control over my bowels. It was a year of hell... I had the surgery in...