I'm about 5 months post-takedown and have not noticed any sexual side-effects....
I was supposed to be going in tomorrow for my takedown, but yesterday I woke up with a cold! I had a sore throat, sinus pressure, and a nose that was either stuffed or constantly running. I called my...
I find it helps to fold the opening in half the other direction (pinch the ends together) before attaching the pouch. That way a crease is formed down the middle and when you go to empty the waste...
Good point about jpouch.org. I'll post the question over there as well. I was on steroids for almost 2 years before the surgery (plus Asacol, Imuran, and Remicade). That was the reason behind having...
I called my surgeon’s assistant nurse today and talked her into giving me a tentative date for my third surgery (June 25th). While talking about reasons this last one may need to be pushed back, she...
I have a temporary ileostomy that I use Hollister's 2-piece New Image system with. I also wear a 1-inch belt daily that hooks into the pouch. I'd like to find some sort of appliance that I can wear...
This is just me, so take it for what it's worth... A lot of times I will drink coffee in the morning at work. Usually by the time I finish my second cup I have the urge to empty my stump....
I went back to the Clinic the other day and met again with an ostomy nurse. She told me that the rash is, in fact, clearing up but I might need to try changing my appliance daily. She said everyone...
I developed a small fungal rash about a month ago and have been having a hard time getting rid of it. I change my Hollister tape barrier every other day, applying an ample amount of Nystatin powder...
If you live in WV and your appointment in Pittsburgh yields the same answer, it may be worth a trip to visit the Cleveland Clinic. They are ranked #2 in the country for digestive diseases and have...
My WOC nurse recommended Nexcare's No Sting Liquid Bandage. You apply the powder first, then spray the skin to create a protective barrier that holds the powder on. It also works great to help...
I think this guy did an excellent job of showing a great way to empty your bag: http://ucvlog.com/2008/10/15/empty/...
I have read posts in a few threads on here about people having an allergic reaction to their appliance, barrier ring, or adhesive. For those who have, what symptoms did you experience? More...
I agree about "forgetting" it's there. I used to empty mine much more often than I do now (and I've only had it for 7 weeks now). I was like you where as soon as it was about 1/3 full I would feel...
My surgeon told me that it would be harder to gain weight after the surgery. He said that getting back to my previous weight would be very difficult and that I should be happy with gaining even 10 or...
I switched for two reasons really: 1) I wanted to move from a 1-piece system to a 2-piece system. 2) The Coloplast wafer is thicker and less flexible than the fabric of the Hollister system. I had...
I hope you were as happy with the work Dr. Remzi did for you as I am with mine, GISGuy. I was lucky enough to get away with only a 5-inch incision, however I also have a mutilated bellybutton (the...
After switching over to a Hollister two-piece system I find myself with a bunch of leftover Coloplast Sensura supplies. I'm lucky enough to be covered by insurance, but I know not everyone is as...
The only GI I have seen at the Clinic is Dr. Lashner, but I did have the first stage of surgery there about 5 weeks ago. Dr. Remzi was my surgery and I would highly recommend him. Regardless of who...
I'm fortunate enough to live 30 minutes from the Cleveland Clinic and just had a total colectomy/ileostomy surgery there for ulcerative colitis 5 weeks ago. My surgeon, Dr. Remzi, did an excellent...
This is a question for those of you who had a total colectomy to rid yourself of Ulcerative Colitis: Did any of you experience a "blow out" of your rectal stump after the surgery? I went through one...
You'll feel better the moment you wake up from surgery. Okay...I won't lie, you're going to be in some pain at the site of your incision(s). But as soon as you realize that the pain you are having is...
ComedyDork- Yes, Dr. Remzi performed my surgery. He did an excellent job and has been very attentive with the issues that have come up afterward. I would strongly recommend him....
After suffering with UC for 4.5 years and Remicade doing nothing for me, I decided it was time to go through with surgery. I met with a surgeon at the Cleveland Clinic and was told I could have a...
I was experiencing a loss of voice as well after the doc increased my dose of Prednisone. Turns out, the medication was causing more acid reflux as a side effect. Not sure if you take Prednisone, but...
I don't think it's due to allergies as I have never had an issue with them in the past. I've also been tested for all of the common ones and everything came back negative. As for Asacol, I've been...
Ever since I was discharged from the hospital two months ago I have had a problem with losing my voice by the end of the day. It doesn't disappear completely, but it sounds like I am getting over a...
ediekristen- The jpouch procedure is what I will be having done. Unfortunately for me, I have more inflammation than they would like and so the process will be a bit more involved. The first surgery...
Everything has changed quite a bit since I first posted this entry... Exactly one week ago was my third infusion of Remicade. I can honestly say that, as of today, I am no better off than I was the...
I asked a similar question regarding Remicade a little while back: http://www.healingwell.com/community/default.aspx?f=38&m=1157636 As for me, I just received my third infusion the other day (had...
I know there are topics on this board about whether or not to try Remicade and people have also written about if it has worked for them or not. What I would like is for people who have tried Remicade...