I cannot have any more scopes. The last upper they did to put in a stint in the common bile duct perferated my duodenum and I spent 9 weeks in the hospital and ICU with 6 surgeries and an illeostomy...
I have been struggling to get a proper diagnosis. But am told I would need a upper scope and biopsy. Is there another test for crohns? I am taking asacol, entocort and prednisone which keep the...
All the docs here are awful. The gastros won't help me either. No one knows what to do. I almost died from an ercp. So everyone is scare to treat me. I will wait till jan. I am sick and frustrated....
I have a positive ANA and high ANA titer of 1:640. No one seems to know why. I have been told I have IBD but only by my primary doc. The Rheumitologist put me on Azothyaprine last year and I got a...
I have IBD and now have nueropathy in my feet and hands. I was told it is due to an autoimmune disorder and I have IBD. Any thoughts or advice? I am going to see my PCP Wed to discuss my lab results....
Yes it must be SSDI. I just went ahead and got an appt with a GI about 2 hours away for a second opinion, since there is no one else here. My Primary is a DO, but we are both frustrated. I do have an...
I have the diagnosis from my PCP of Inflammitory Bowel disease. If falls under the categories for disability. I am applying for SSA disability not SSI. As hubby makes too much money. I got approved...
I looked up the uses and side effects. I cant use either because I have on-going chromic infections and immune system problems. That is why I cant take Azothiaprine. Aren't they all similar? Not sure...
I tried the azothyiprine and cant take the meds that lower your immumity. How is Remicade, Humara, Imuran different?...
No other GIs. Went to both. No answers. Now neither of them can help me. And I don't like any of them. Have had lots of opinions..answer...."I don;t know". Have you been on Asacol..Works great. Takes...
It's been a while. I have a sorta diagnosis...IBD. The Rhumi says she cant figure it out and its not Rhumitoid arthritis, Gi doc wont say but did find erosion in a few places with the pill cam...
/community/emoticons/cry.gif Gi doctor and PCP sent me to Rhumitoloigist. This was my second visit and she sent me a letter stating the labs show I have "connective tissue disease" and a posible...
I got an appt with the Rhumitologist on March 17...uuuuggggg!!! I am dealing with inflamation in my right side (elbow, wrist, knee), abdomon, eyes, migraines, nausea, diahrea, fatigue, depression,...
Thanks for the compassion guys!...
No, I cannot get a second opinion for a couple reasons. One is that I called to other office here in town and they said the dotors here wont see you. They dislike the GI I saw. I would have to go to...
GI doc says "Few scattered erosions were noted in the small bowel". Even with that and the high SED rate he won't give me a diagnosis. UUUgggggg!!!! So he is refering me to Rhumitologist my PCP says...
They said it was ok to take the 81 mg only so I have. The doctors here are not that great. I will remind him that I clot tomorrow. I have had to take valium today just to get over the anxiety of it...
Tomorrow is the colonascopy...UGGGG!!!! terrified! No fod for me today and I am grouchy....
I have finally come to terms with moving ahead with the colonoscopy. I had the pill cam done but it wwas hard for the doc to see much in the way of sores since I am on the asacol and entocort. But he...
I spent the weekend in the hospital for "gastritis" or something. Had lots of pain and nausue. They finally got it under control and sent me home. Still waiting on GI doc to give me a report on the...
I did the promethuis a couple months ago and it showed nothing. I did the Pillcam yesterday and glad that is done, but I am having bad stomach pain off and on last night. I hope tha pillcam passes....
I did apply and get something from SSA. It must have been the SSDI. I have a "lawyer/advocated" here and he is helping me and helped me get qualified for 2008 and 2009. But they said there was no...
I could qualify for ssdi if we did not have so mush too. But SSA says I can get the back pay for the first year+. they sent me some of it. I am waiting to see if they send the rest. I sent a letter...
Hello. I have been feeling soooooo much better since taking the asacol and entocort for several weeks now. Yeh!!!!! AND the GI doc has agreed and scheduled the pillcam for Wed. 12/15/10. I have to...
Hello again. I went to the GI doc today. He is kinda hard to wor with but decided to go ahead with the Pillcam...Yahhhh!!!! So ios now senidng in the pre auth for approval and should be able to do in...
I left a message for the doc and said to please send in a auth for the pillcam.... Happy thanksgiving. Hope i can tomorrow. The orionginal was done to place a stint in my common bile duct before we...
i am so tired of being sick. I am currently on Asacol 400mg 8 a day and entocort 9 mg day. Plus other stuff for other issues. The best thing that helps is Prednisone. Doc does not want me on it but I...
I have had a colonascopy. I dont remember it so much, but I have the IV since it takes them ah hour or two to get a vain. My husband is a nurse and says they can use the vain in my left elbow which...
The doc says I have IBS probably secondary to when they perferated my duedenum and I got infected and almost died. So they are saying this is further complications, adhesions, etc. I have a high SED...
I will be reapplying in about 3 weeks, as soon as I get my SSA letter. I need to know what what to do, write or find out. My GI doc says I need a sygmiodascopy or colonoscopy ad some baruim x rays. I...
No this was my final step. I cannot appeal it either. I had to agree to 12-14 months worth or nothing if I wanted to appeal it. And the appeals usually get denied and are in front ot 3 judges in Va....
I am reposting this. I think I needed to start a new thread with this. Ok just wanted to do an update and maybe get a little support. I just got back from my SSA hearing for benefits. The judge said...
There are only 3 GI docs here and I dislike all of them and have gone to all of them. He is the inly one that does pill cam. Not sure why he wont. Hell he wont even call me back......LOL I am goin g...
I had my lab work done on the 25th of June. I have called the GI doc 3 times since and knew he had the results bvut he has yet to call me back. I am sick and miserable most of the day. Aperently he...
Interesting. Thanks MayOK. I still feel the best route for me is to have the PillCam at some point. I know it is expensive and I may have to pay most of it out of my pocket but since I cannot have a...
I had the Prometheus 7 and ciliac blood test done. Not sure what it will show but the doctor said it could show if I have UC, CD or ciliacs through this lab work. Just a thought or something to ask...
Well, the doctor would not go for the Pillcam. He wanted todo a scope and/or at least do a sigmoud oscopy and I siad no. He did agree to do a Prometheus 7 and ciliac blood work. He "doubts" I have...
Thanks guys. My doctor said it was a good idea. better then a scope for me since I have had two perferations now ansd did not want to chance another. I started Asacol three days ago and hydrocort...
Has anyone used the Pillcam vs a scope? How was it and the results? I wont consent to a colonascopy but am considering the Pillcam, if my insurance will pay for it. The last scope I had via upper...
Wow thanks. I appreciagte your info. I am so tired of this all and feeling exhausted. My friends and family want me to get out there and have a life. yeah...me too. what about pain meds. the doctor...
I am new to this, but since I am seeing my doctor again Monday I need to know what to ask and what I should try. I hear people saying about Maintenance meds. I look them up but they seen to have lots...
You all list all kinds or meds but I dont know what is for the IBD? I need to ask my doc about what treatments. I see him MOnday and my husband is going with me. Please help. I dont know what to do...
What is a maintenance med for IBD? I dont know what to start looking into? I currently take a lot of meds for different diagnosises. I need to list them in my signature, I guess. I feel so aweful I...
I just started taking the pred a month ago and wanted to start there first. I have a deap fear of doctors and going to the doctor and have been passed around our small town. The GI docs here dont see...
Is IBD the same as Crohn's? I have inflamation in my elbow as well and migraines. I was told that I have IBD and had a high inflamitory/SED rate. Been taking Prednisone for a month. I have had many...
I loved that web site www.helpforibs.com it is great it so helped me figure out what I should not be eating. I still need more ideas on what I can have to not feel so deprived. I have been deprived...
Peggy, Do you have some recipes for me to use? I found a really cool idea last night chicken in th can for sandwiches with mayo and white bread. Was good. I am so use to eating spicy and mexican...
What else? Can I have refried beans? Onions? Tomato juice? Spices? I like mexican food. I cannot have dairy..Intollerant. That really limits the foods I can have already. I am supposed to snack all...
Hi. I am back in the hospital with another bowel obstruction. Any one have advice. I am finding I cannot eat fresh vegis any more. This is probably what is the problem but I have low motility, IBS,...
The Zofran never worked for me. I use Phenergan...At the hospital I get it IV and at home I have had it IV as well and supository. That works great. I had my Ileostomy reversed in Jan. 08. I also...