By the way - posting here because there is no heart history in my family and I have been through all the heart/stress tests. Mayo said my heart is fine and no issues what-so-ever....
Hello, I had a permanent illeostomy in January this year. Post surgery I have survived a DVTs and several PE (two just barely). My latest concern is high cholesterol. Since September, my...
Thanks everyone for your comments. Unfortunately my husband who wrote this post developed a very large blood clot in his left thigh that moved to his lungs. He came very close to losing his life, but...
Just thought I'd update everyone on my surgery from 1/29. My surgery was a proctocolectomy with a permanent ileostomy, unfortunately it could not be done laparscopically due to all the scarring from...
Thanks for all the responses, I do appreciate it. And yes, I'm planning to have a 'no-no' meal the day before the prep. Actually we are planning Mexican too. But I've been doing it all weekend too...
Princesscolon, I was/am in the same boat. I spent two plus agonizing months over what decision to make and went through many emotions in the process. I have Crohns and was given multiple options. We...
Cave Creek/Scottsdale, Arizona most of the year. Indianapolis (Coatesville), Indiana during the summer months....
Hi all. I had posted here and in the Crohn's forum a couple of months ago when I was researching what started with seven options, surgery being one of them. We'll, after all the research,...
A quick follow-up response to the question Nanners asked back on December 4th. Met with the surgeon this past Weds and he said the if the colon were removed, it does not remove the cocci. Obviously...
Thanks for all the input from everyone. I'm still struggling with my decision and have a few more appts before I need to make a final decision. At this point I'm probably leaning better than 80% to...
Thanks for the response. Would like to hear from anyone else that would like to share. One other question that came to me last night that I'd like to ask. Did anyone experience chronic arthrytic...
Hello to all, I've been reading through the Crohn's forum and am now going through the ostomy forum. For my full story, you can read my original post (link at the bottom of this post). In short, I've...
Hi Gail. Yes, I have done all the research on the medications they suggested as current options for me. I'm an IT Project Manager by profession, so I have a well planned out spreadsheet showing all...
Thanks chocolate_stains. I've been viewing some of his videos and yes, extremely helpful and very inspiring. I really have to give him credit for the information sharing and educating folks on the...
Thanks to everyone. Obviously this is a difficult and very life changing decision. A lot of what has been mentioned I have considered and continue to do so. Others have raised some great comments...
Thanks for your comments. Yes, I learned that everyone is unique where this disease is concerned and what's right for one person is not necessarily the right course of action for the next person. In...
Thanks for your response. Good questions. The surgery would be permanent (non-reversible). For the cocci, I was on a home IV for three months following the resection in 2007. Now on Diflucan which I...
I am a 46 year old male and have been reviewing this forum. Lots of good information here. I would like to take the opportunity to tell my situation in the hopes that someone has experienced...