Hi Crohnielass For me I was told that as it was an end ileostomy they would have to open my mid line scar and I would have to have an epidural and would be in hospital for 10 days at least. They...
Hi there I have Crohns and had my ileostomy reversal 7 weeks ago. I feel fantastic though I'm still on the Azaphioprine I'm waiting the check I'm sure I'm meant to have to see about going onto a...
Hi Dipfit thanks so much for sharing that, I for one am always glad to read a good news story especially as I'm to have a reversal soon too....
Summer luckily he only made a small patch onto his jeans so I just took his pants off it was such a warm day and all the kids were muddy it didn't really matter. Bright bots are like normal pants...
Hi Summer I've been doing this just lately with my son. I was really worried as I don't go for either ends the way he does haha. I really believe the children do it when they are ready as a few...
Hello all I've been searching for answers but will just come out and ask: I have an end ileostomy since Nov 2008 following a resection due to fistula to the bladder. I was promised the reversal (not...
I bet it must be brilliant to be back home and the fear of the operation all behind you. How are you feeling and how did it all go (other than the fact you are constipated). I hope the advice you got...
Thats just fantastic! here's to many more good times /community/emoticons/smile.gif ...
Ahw a bit late but wishing you the best of luck too!! I hope everything goes as perfect as it can for you and that the recovery is an easy one. Looking forward to hearing how it went....
Ooh wishing you all the best of luck!! /community/emoticons/smile.gif exciting but scary yes? I'm due mine any time soon too I've been for the pre op assessment but still no date for the op. We will...
Wishing you the best of luck for Tuesday! you will be fine. There are a lot of bonuses to having this operation just keep thinking posotive and you will get through /community/emoticons/smile.gif ...
Thanks both, a bit disappointing because although the surgeon said 10 days in hospital for the reversal they reckoned more like 5 at the pre assesment so now it looks more like the 10 days. I really...
So I see my stoma nurse and mention my loop ileostomy. Oh no I don't think you have a loop let me have a look. It's definately an end ileostomy. I thought end ileostomy's are permanent yet I'm...
Oh it's not just me then I too have one boohoo. I was skinny when I first had the op have fattened up now and it's still the same I was hoping loads of excercise when I'm better might help it,...
Yes I agree /community/emoticons/smile.gif you never have to be alone with this great forum filled with great people. I hope you get more response in future from the other forum (hugs)....
I don't know anything about what you have but just wanted to wish you all the luck in the world with the treatment you are going to have....
I have no answers just wanted to give you a hug. Wow how awfully scary for you I hope everything is still fine now. I know a teeny bit of blood can look a lot so let's hope it was that or that you...
Oh wow! yay! that is amazing good luck and you of all people deserve it /community/emoticons/smile.gif Happy spending woohoo...
Hi Tbraz I hope you and JrNYC don't mind me asking but what sort of snack foods are you allowed to eat after the operation?...
Ooh you've nearly made it, just one more hurdle and your there. Having read your bits at the bottom it sounds like you have a lot to look forward to again. What did you used to do/do again on stage?...
Haha how mad is that! very spooky lol....
It sounds to me like you want to be where you are used to being safe. I bet you've been going through Hell for a very long time and now finally it's over you've got yourself into a routine where you...
Would we all get on better do you think with self esteem etc. if we could buy pouches we like the look of? So just for fun lets design them: I would like metallic purple ones which you can't see...
From what I can gather the bags popping off bit is more likely to do with the two piece with the pouch not being put on properly. As for leaks I also think that is mostly at the beginning when you...
Thanks PSA.Delhi. I daredn't get myself checked out as that would mean driving to the place I got lost in I'm more scared of that. I've learned my lesson though and will be taking it easy with the...
Hi I feel so much better now what a relief. Thanks so much for replying, it doesn't seem much to ask about but when your at home alone and worrying about these things it can be so scary. It's so good...
Thanks Ohio76 I'm finding that it starts off bearable in the morning but by night time It gets almost unbearable (though it doesn't hurt if I don't move so not that bad). I'm really hoping in the...
Thanks so much for your replies /community/emoticons/smile.gif The pain ooh it's difficult to say it's not that bad most of the time but does nip quite badly if I cough (I just can't get rid of that)...
I wonder if you could help me with this one. I had surgery and the ileostomy 12 weeks ago. Friday I went for a pre operation asessment for the reversal. Anyway I stupidly got lost on the way home...
Hi ya I had surgery that I woke up from with a pouch. I presume if that happens to you it will also be temporary? I've had mine for 3 months and am due a reversal any time soon. I tell you what,...
I had a perforated bowel that fused onto my bladder so I unfortunately ended up with the ostomy. I just want to say that should things not go to plan and that is what your husband has to have then it...
Oh wow LesaJT it sounds like you are doing really well! I hope it continues and you improve fast and aren't in any pain anymore. Could I ask what is the pain like? is it just when you move, or go to...
Thanks all, I think it's coming from the filter. I haven't smelt it since I wonder if it's because I ate loads of veg having just brought a croc pot. Anyway I'm changing it tonight so I will see if...
Thanks guys, Bennie I'm glad to hear your daughters doing well now. So if suffering from the runs would you say it's better to eat rather than not eat? It's bad enough to know I will need the toilet...
2 Ris 2 I'm so grateful for your quick and very helpful reply you know how it is just desperate for any information possible. You've certainly given me hope in that you've been through so much but...
I have spent most of my life since getting the ileostomy looking up everything I can find on reversals. I have just got to the stage where I am starting to enjoy life I've been able to take my son...
Ok I already regret the title haha. I'm not paranoid well not always but I swear sometimes I can smell it like I have a leak but when I check everything seems in order. Considering these pouches are...
That is fantastic news things are really looking up for you at long last. I really do hope this is the beginning of a full recovery for you! /community/emoticons/smile.gif ...
But it is important /community/emoticons/smilewinkgrin.gif I think it does us all good to know there is life after terrible illness and I am so glad for you that you got out and had a great time lets...
Oh yes /community/emoticons/smile.gif the guilt I have felt from not being able to take him out was overwhelming I even had to get my parents to take him out just so he got out. I have so much making...
Just wondering with my impending reversal coming up. Would the recovery be easier having had the rest from the resection by having an ileostomy? or am I just living in hope...
I'm from Buckinghamshire, England /community/emoticons/smile.gif Just want to thank everyone here for your invaluable help your all great!...
Thanks Vintageman and Ohio43 I'm still waiting on the nurse calling so will ask about all the different ones as I get sore skin easily so I will see what she says you usually get what you are given...
Thanks Vette guy I shall ask the nurse about the tape /community/emoticons/smile.gif ...
I've had huge success so far with them (touch wood) I've been leak free for a week now but does anyone find the flange starts to unstick within a day from the outer edge? Is there anything I can do...
Hi Roddiesgirln good luck that everything will show up alright on the CT scan. Me too I'm due a reversal and feel the same as you about it I'm excited to not have to worry about leaks but the same as...
mom9mom I'm so sorry to hear you've been suffering! Has the infection gone now? and hows the nerve problem? What surgery did you actually have? and how are you feeling now? I really hope you will...
Well I thought it was just a reversal as all the other work to my knowledge has been done. I will ask why and let you know I'm a bit worried now because maybe there is more because he also said it...
I don't have any useful suggestions but I do know that it does take time to find the right thing that will work for your son and once it is found he will be able to live a great life. I had constant...
Thanks Tbraz, No I haven't had anything done like J pouch I just had the ileostomy for a rest after surgery to many internal problems. I wonder why some surgeons can close back up through the stoma...