I don't have the experience of having Crohn's, or any medical expertise but I'm wondering about where the pain is. I have quite a bit of pain in the beginning with my jpouch. I know have chronic...
Good luck with the job hunting. I had an interview with ileo and was praying to GOD it would be quite. Must've been lucky, I got the job. You'll find something!...
Wow! I feel so much better knowing that you are all out there and are going through or have gone through simliar experiences. Thank you so much! Holly...
Does anyone have a hard time coping with all thats happened to them? I'm not depressed or anything like that but I find myself thinking about my surgeries and at times I am just mystified that this...
I posted in jpouch.org too but I haven't gotten any responsives so I thought I would try here too. I'm getting these weird crampy feelings in my guts, it is like a tightening and then there is a...
I lost a bunch of my hair as a side effect from asacol, prednison, and azathioprine when I had crazy active UC. The Hair, Skin, and Nails vitamins really helped me! I'm losing a bunch of my hair...
http://videos.med.wisc.edu/videoInfo.php?videoid=5506 Ahh...forgot to attach the link! Sorry guys!...
I thought I would share my findings with you all. I know the pouch doesn't relate to everyone but this is a history of the pouch. I find it very interesting! You don't have to watch the whole thing....
Take care of yourself! You want to be healthy for your surgery!!! Holly...
I'd call the GI, if they don't seemed concerned they will tell you what to do. I figure it is better to be safe than sorry! Feel better Lizzie! Holly...
Check into the convex wafer, I had some nights like that. Once I switched to the convex wafer I didn't have any problems! Holly...
i also did better with hard liquor and juice...vodka cranberry, rum swizzel, and sangria was okay etc I know it sounds odd but it worked. I never drank more than one or two, then I would hungover...
I donated my extra supplied to a home health place. They distribute them among those that ins companies cut off or that don't have ins. I know they go to hospitals, nursing homes, and the patients in...
Congrats Lizzie! You're going to do great! I had the nerves too...it's got to be normal! Holly...
Here's another big hug! You handled yourself well! I'd like to say more but I would only be repeating! Hang in there Lizzie your surgery is right around the corner! Holly...
Oh I'm glad to hear from you! I was worried when I heard what was going on! Sending my prayers! Holly...
I suppose your surgeon knows best but I had mine in two steps. My body was so malnourished and just wasn't up to par it is good to let it heal and give it a resting period. I still really wasn't...
Be prepared to run to the bathroom a lot. I had calmoseptine on hand for all the infamous butt burn I heard about. I've only had to use it a few times but it sure does help (available at your local...
I'm a big nerd/geek too! I'm a science teacher! haha...
Summerstorm, Depending on the antibiotic you are suppose to avoid dairy products because (bear with me here) there is a lot of calcium which chemically is a 2+ and this binds easily to the antibiotic...
I had a bit of a problem too, I had 13 stitches and I had a pocket open up and oooze. I agree to call your doctor if it bothers you even though it is normal to have a pinkish fluid. Just make sure it...
Take the day off! Try to relax, take a nap etc! You will need all your energy for recovering. Do the colon prep to desrease your risk of infection as mentioned already! I had an infection and it...
Do extra vitamins or supplements help?...
When that happened to me I got an NG tube, PICC Line, and TPN (TNA, IV nutrition whatever you want to call it). Then I was okay for awhile and then I threw up again. Turns out I had a nasty...
I didn't really notice much of a difference. I have a REALLY good pain block though!!! I don't know if that made much of a difference or not. I wouldn't worry about it too much. The pain that I...
I took a vitamin with extra B-12 in it. They also make a shampoo to help hair grow faster and thicker called Nioxin. I didn't use it when I had hair loss with asacol, azathioprine and pred but my mom...
I had complications with the the reversal but apparently only 1% do, lucky me! Even so, the surgery was the best thing I have ever done. Good luck! I am really enjoying my jpouch!!!!...
I have noticed the past few weeks I have been "shedding" a lot more than usual. Is this common after a colectomy or ileostomy reversal? maybe because I had an infection and was in the hospital for...
I have my ileostomy in april and reversal in june. I ended my relationship with my boyfriend, different curcumstances but I'm going through a bit what you are. You will find better and just think...
The supplementals won't cover me because i have all these pre existing conditions and most of them don't cover transplants, especially for a live donor transplant. I wish that they would allow me to...
I do not have flex spending, but that would be a wonderful solution! I think I'm just going to have to suck it up. I love my surgeon and my liver doc at that hospital. I also have a transplant doc...
ask about recovery time? medications? follow ups? how long you will be in the hospital? chance for infection? ask them to look at how your pouch looks while they are in there... i hope this helps!...
I just got a new job and found out today that my new isurance will not cover my surgeon or anyone else at the hospital i go to. Quite honestly I just want to cry. They will coer 60% but when you look...
I do not regret having the reversal at all and I had some major problems with infections etc. I am very happy with my pouch. I also do not have any problems with urgency!!! I also had pancolitis and...
There is also a product called Modulen which is easy to digest. I used it when I had bad UC flares. You can even get flavor packets. Good luck! Holly...
Lizzie! When they reconnected me they went right through the stoma site. I had virtually no pain, they used a nerve block which was AMAZING! As you know I had that awful infection etc but that only...
I was reconnected on June 19 after 8 weeks of having the ileostomy. I had surgery on a Friday, went home on Monday, and went back to the hospital on Tuesday. I have an anastomic leak (1% of...
Any ideas for packing the weight back on? I lost so much in the hospital??...
Thanks! I am even starting to eat what I want. You guys are great!!!...
Sorry I haven't been on sooner. It has been an exciting and scary road but I am finally home. After I was readmitted back into the hospital after my ileostomy reversal they thought I has ileus and...
I used the cavilon barrier wipe made by 3M with the powder. I cleaned the area, dryed it, put the powder on, and then seal it with the barrier wipe. It is NO STING! My home health care place wouldn't...
I am still in the hospital. On Tuesday I had another abdominal xray and a paracentesis (sp). The xray was fine but the having a5 in long needle jabbed into my abdomen several times hurt so bad. They...
I had my takedown on the 19th on june and been in the hospital since then, when do you think i will get out of here???? I still have the ng in but it is running clear right now. I am passing stool...
Today I got an NG tube and a PICC line. I hope I spelled that correct. Things are going a little better since I got the NG tube but man did that hurt going in! My docs want to still want and see,...
Im back in the hospital. I was released mon afternoon and was back tues night. I was vomitting so they thought i had a blockage. It doesn't look that way anymore but whenever i try to drink anything...
I had a bm but i'm full of gas...the gum was a bad idea... still on full liquids...blah!...
So I'm sitting in the hospital wanting to go home. I am on full liquids and I hate cream of wheat/rice whatever it is. I don't drink coffee and they keep trying to make me drink that too. I have been...
I second that! Don't wait too long! They can be VERY painful!...
Bella I'm so proud of you! How long did you have to wait before you went swimming? Im in the hospital right now and I was just talking about swimming with my nurse. She told me I'd probably have to...
You bet Bella! How are you doing?...