I'm Dusti and I have/had colonic inertia and I still have a lot of pain. I hope everyone is good!...
Blockages are awful, it might be because there's no colon and so some foods come through whole like: corn, peas, blueberries, cabbage, broccoli, potato skin. That's all I can think of right now. I've...
Hey all, I haven't been here in a long time. How are you all feeling? I haven't felt very well but I'm kind of used to it now. I'm glad to be back here!...
normaly when I have a blockage I end up vommiting, 3 times I ended up in the hospital with a NG tube to suck the blockage out. NOT FUN...
I'm on facebook as Dusti Bills and my picture is me and my dog...
actually its the stone that when Ron got poisoned Harry put it in his mouth to save his life. Its in the harry potter movie that's out now "Half blood prince"...
I assume your husband is ok with the bag, right? well then why hide it? it might be easier to just not hide it, in that situation...
adhesive spray! I still think you should try it. I get maybe about a week, sometimes a few days longer, I don't always keep track though. I don't always use the stomahesive powder, only when I notice...
I applied for SSI it took 4 times and the 4th time we appealed (sp) had a hearing and then they approved it :0) the judge made me cry though :0(...
I kind of think the stoma feels kind of cool and wierd. Just be careful that you don't accidently scrape it with you fingernail, it bleeds alot if you do...
try some stomahesive powder, it helps when I have skin irritation...
I am on facebook if anyone would like to be my friend, you can gets email by clicking on my name...
I will email you back when I'm on my computer again...
please email me again Sarah because my email messed up for a while. Please pray for me because I am feeling absolutley AWFULL today, thanks!...
my dad had surgery for carpal tunnel, it helped him a lot!...
I sure will...
I thought this was a good thread idea...............
If you know of anyone who needs some prayers said for them, you can type their name here and I as well as everyone else will pray for them!! I hope this thread is ok to post here <3 <3 <3 <--- those...
you can reuse the bags, I do, I use the same bag for a long time. My wafers last for about a week...
I sure hope you feel happier soon! It might take a little while to get used to the bag, but you will. Its good you have good caregivers! Feel better....
look on youtube and search Susan Boyle...
self image is a hard one for me, especially when I think about wanting a boyfriend, I just think "who would want me? I have all these health problems and a bag and so on and so on...." I know I'm...
I had bowel problems since I was a baby (my mom told me) I was also born with CP (Cerebral Palsy) and we 'think' that might have something to do with my colonic inertia. Do any of you know about...
I wish that there was more known about what I have or people with it, just so they could do more for me, you know?...
I hope you get better, its hard being sick as a kid, my illness started when I was 13, I am 27 now. Feel better!!!...
I don't think it matters, I do because it was my ostomy nurse who sprayed it right on my skin. It doesn't bother my skin at all I promise!!...
it was my stoma nurse who taught me about the adhesive spray, the first time in the hospital she used it. I spray it all over the entire wafer. I love it...
Your welcome...
PSA.Delhi- Wow, you have no idea how that spoke to me. Thanks!!...
it doesn't bother my skin at all...
thank you very much!...
I just wanted to tell you all that before I changed my wafer, it lasted for 10 days. I'm just telling you this in case anyone wants to use the adhesive spray....
I did have mucous from it but after I got the antibiotics I haven't had any. My loop ostomy hasn't given me any problems. The mucous I had from the pouch usually came out every time I urinated and it...
my mom has this, just recently diagnosed and it came on very fast. I was wondering what can be done for it, I am worried because its my mom and I love her!! Any advise is GREATLY appreciated! :smile:...
hey, I have the same thing, I've had my ostomy for 9 years and have had my jpouch there. The only problem I've had was having a infection in the jpouch, and my Dr. gave me antibiotics and it cleared...
I would just put it in a ziplock bag...
I love Chinese food. It could have been the broccoli, I've gotten blocked with broccoli a couple different times. I'm glad you're feeling better!...
I don't know a percentage but I get SSI and I have an ostomy, I have alot of pain though that causes me not to be able to work. So you can always try....
there are also pre cut wafers, I use those....
I have an ileostomy and I would avoid raw veggies especially broccoli, but cooked veggies are ok, sometimes I eat corn but I make sure I chew it VERY VERY good (the weird thing is that corn does come...
I use paste also. You spray it on the wafer and I also spray it on my skin where the wafer goes, then wait a few minutes so it gets sticky and then put the wafer on and press around the center so the...
I do it kind of kneeling so I can see what I'm doing. When I first got it my mom would change it for me and I would lay down, but when I had to do it myself I found it hard to do while lying down....
I'm glad you like it also, I think it is absolutley fabulous...
I don't trust broccoli because I've gotten blocked twice from it, if its completely cooked then its ok, but I will never eat it raw....
I forgot to say something In high school, my junior year (the best year because I felt better than I have in a long time) I was in the swing dancing club at school, it was so much fun!...
I use adhesive spray when I change my wafer and it really helps keep it on longer, they last for about a week before I have to change it again You can get it at medical supply stores, or where you...
thanks for replying, I seem to not get many replys when I post something so I appreciate you replying...
I would think if they found pre cancerous cells then I would definatley have the surgery. But thats my opinion...
before my pain got in the way: I was in a lot of plays I rode my horse all the time I was pretty active Unfortuatley my pain now is making that too hard, and I so wish I could ride my horse more...
I've had my ostomy reversed I think twice, but it didnt work so I may have my ostomy for the rest of my life It might work for you...