Hey gang! I've spent the last 6 months working on OstoBuddy and it's finally here! It helps Ostomates keep track of supplies and also change history. Best part is that it reminds you of when you need...
Hi everyone ... I've been busy creating an app for iPhones and Androids to help ostomy patients! Hopefully everyone here finds it useful and contributes :) You can signup at ostobuddy.com or follow...
Have not been here for a while, been terribly busy living life! I had the J-Pouch surgery as well, I had chronic pouchitis and then decided to get an end-ileostomy. I've been with the ileo now for...
The Coloplast rings are awesome and stick ! :) The adhesive remover is good to get the gunk off ......
My insurance doesn't cover adhesive remover, any recommendations on cheapest and best to buy?...
Thanks all for the great information. Just so you know I wanted to get a general idea of how I can possibly help people and I believe I have the right target! More to come :)...
Hi everyone, how do you guys and gals keep track of the supplies you get? Also, when you change and how long before your next change? I currently have a spreadsheet which has all of my data :) Any...
I have an ileostomy and I use the bigger pouches which fit in my pants. I am not comfortable with it flopping around :) Also, thanks to summer ... I have discovered tape to tape down the top of my...
I've gotta tell ya ... there are good days and bad days and more recently there have beenmore good days tha bad. Sure, there are some inconveniences to having an ileostomy, like, waking up and having...
What ddd45 & Christine said ... :) Coloplast, rock sold so far. Hollister, not so much. Your mileage may vary ......
I'm walking/running as well, but am trying really hard to run the full distance. This will be my first half marathon .. which is exciting. I trained last year but got sick and couldn't go ... this...
I am going to be there !! Training right now for it ......
I've also been stopped at the airport recently. I travel almost every week for work and about a month ago I would have been ok going through the scanners but all of sudden I've been stopped everytime...
Duhh ... manufacturers website ... never thought of that. Typically things are usually more expensive direct from them eh :) Thanks!...
So my insurance doesn't cover Devrom but ti found that Amazon has the cheapest out there. This on is especially a good deal ... http://www.amazon.com/gp/product/B0045WG1P2/ref=ox_ya_os_product...
My JPouch surgery failed because I ended up getting recurring pouchitis. I would be willing to try this type of approach if it could possibly cure my Pouchitis issues. I am with an ileostomy now and...
Has anyone seen this ......
I got a spin bike and have been training on that. I'm signed up for the TeamChallenge half marathon coming this December and I have a LOT of training to do now. I did sign up last year but I got sick...
Edgepark!! I am going to call them tomorrow! :)...
The Devrom is awesome! How do you get the insurance to pay for it?...
All very good advice, thank you so much! I'm not uncomfortable with the bag at all, actually, it was a decision I made in order to have a life with my kids. This is the story they will know when they...
Yeh the trash bags are to throw away the pouch and barriers .... I don't believe they are to catch the output. Devrom: went to pillbox and they just had them. They did say they don't usually stock...
Devrom rocks!!...
Just took 2 Devrom capsules ... fingers crossed :)...
I tried Activated Charcoal and that doesn't seem to be doing anythign for me. I am going to try the Devrom next. Will keep you in the loop on how that works out. Usually if I use Ostofresh, which is...
Brian: I use Coloplast but this sounds quite interesting!! Do you have a part number or anything I can lookup online to see how it works? answers4me2: It's just weird for me to pull my pants down and...
Thanks so much for the response .. and yes you're being a smart allec :) Look, it's not the seeing ... it's a lot to do with the smell too ... I know there's going to come a point where my daughter...
This could actually be a problem or and issue for any dad out there .... however having an ileo it is magnified quite a bit. I have a 2 year old daughter who I want to show the world to! I love...
Great suggestion!! I had my thyroid checked and it was fine per the doc .... I'm running out of ideas on why I could be tired, however things seem to be getting better slowly. I'll have to keep...
So ... thanks a lot for all of the suggestions! I started this yesterday: 10 minutes of exercise bike - not much but a start gummi multivitamin B12 shot Drinking powerade zero I feel much better...
Ahhhhh ..... relaxed and sane. With my backup kit ofcourse :)...
This is exactly why I love this place, you all totally get what I am saying !!! Don't get me wrong, life is good, love my kids and love my life!! Just have to get some more energy, I guess I do have...
Didn't mean to insert crazy thoughts .... but it's something I constantly think of .... am I weird?...
Hi everyone, I'm not a regular poster but I do linger and read the boards quite often. I've had my ileostomy for about 2 years now and recently I've seen a spike in my weight gain. I'm extremely...
So I've got an ileostomy and I sometimes find myself daydreaming about hurricanes wiping out my home or something major happening and not having supplies to change into. Like my plane crashing into...
That is one heck of a post. It pretty much sums up my life and feelings towards the meds and the disease. Thank you....
The SCFA enemas are made at a compounding pharmacy. They ordered the ingredients and mixed the enemas for me. I am going to be starting them today, will keep you guys and gals posted on how they work...
more surgery ... great !! :( Might look at Humira to control and then reverse ... but gosh .. what a pain in the butt! (pun intended)...
Excuse my negativity but I need to get this out ... I had UC .. had my colon removed, had a temp ileo, had the reversal. Suffered from chronic pouchitis and decided to go back to an end ileo. Been...
Had the scope today and already feel much better ... anyone ever experienced this from a diverted pouch? After the drainage ... I have no more spasms or pain. Upon performing the rectal exam, a soft...
Bump .... anyone? Have a pouchoscopy scheduled for tomorrow, I'm cramping a lot and noticed some blood with mucous today. Not good :(...
I know the topic of mucous discharge has been covered many times and I spent the last hour going back over all of the posts i possibly could trying to find some insight on what my issue could be and...
Thanks summer!! I've read those threads and I did the same and they came right off .... I use Coloplast =) I'll let you guys and gals know if there is anything they're going to do .....
I have been in touch with Hollister and am trying to develop a business relationship with them. I have a conference call setup with them about these complaints and also recommendations on possible...
Check out summerstorms recent experience =) http://www.healingwell.com/community/default.aspx?f=33&m=2184043 PS: ok to drink, not ok to drink and drive. emptying after drinking, that could get...
I was getting ready to go to bed!! The tape worked it's way loose. I am going to the medical supply store today, I have an idea which may work. Building a prototype to try and if it does then I will...
Summer ... I tried taping my bag down last night and it lasted for a whole 10 minutes :) Am I taping it wrong? :) What type of tape are you referring to? The belly band is similar to what Ron has ......
Hi Everyone, I can't imagine life without this ostomy now ... I'm finally healthy ... and happier cuz of you guys and gals :) Any suggestions for a way to conceal the pouch from showing up under a...
I use OstoFresh. It is fantastic!!! My ostomy nurse recommended it and I have not looked back! :) I have so many of them ... if you want I can send you a few bottles .... I was going to donate them...
I swim every day with my daughter, it is the most wonderful feeling to be able to do normal things and at the same time have energy to do them!!! There is nothing I cannot do now ......