Are you feeling better?...
I just made it through a blockage so, sorry to say, that is what I think of when you say throwing up and pain. I am not an expert at all but I think it is odd that your doctor is not alarmed. If you...
My husband opposed me having surgery....said I just needed to stick it out. Finally, I just got tired of UC and I just told him I was doing it. At that point, he supported me 100% but since my...
I had an aggessive case of UC that left me steriod dependent. Like your son, I had a bad reaction to imuran and also 6mp. I opt'd to not even try remicade due to my reaction to the other meds and I...
my husband was dx'd like 3 months ago and his doctor told him no ketchup or cooked tomatoes...which he really misses. But, this receipe uses tomatoe sause so is that okay opposed to everything else...
Oh, yeah...... it was an Endocrinologist here in ann arbor, mi. They said that they would squeeze him in because his sugar was so high. Perhaps they considered it somewhat a referral because we had...
Yes, I was able to get him in on Friday of last week. I called on Thursday and they fit him in on Friday. We have a PPO so we do not have to have a referral. Anyhow, they put him on 2 meds. The...
My husband went in yesterday for a physical for a job. They ended up finding sugar in his pee so they tested him for diabetes and his glucose was 536. I do not know much about diabetes but I am under...
If it were me, I would go get it checked out....
Good Luck..........you will do great!!!!...
yes, totally normal. I get it all the time...
with my end ileostomy, I never wore a belt but now I have a loop ileostomy that is a pain-in-the-neck so I wear a belt all the time. I am not positive but I think it is just necessary if you have a...
I understand. I gained too. I gained like 26 lbs (from my lowest to my highest) in just 7 months. I ended up loosing 10 lbs because I joined a program that encouraged 6 small meals/snacks a day. I...
I am another one that just gains weight. It was the one thing I liked about UC......loosing weight. I now find that I really have to watch what I eat....
I will try the baking soda. I spoke to the surgeon nurse today and explained that the discharge hole is at skin level and that 2nd mucous hole is actually gone.....so she scheduled an appt for me to...
Well, it is official. I have a bad placed stoma. My stoma nurse just left and she even said that if it was intended to be permenent that they would re-do it. I actually looked at it with a mirror...
thanks guys...
I am with summerstorm..........let the air out but BE CAREFUL. Sometimes you think it is "just air" but it is poo. Make sure all of the contents in the bag are pushed all the way down before you open...
I dont have a solution but I have compassion. I am having skin issues now with my loop ileostomy and it hurts. I changed my pouch a couple of days ago and there was greeen pus. It has gotten better...
I have not had this step yet.....I just did step 2 of 3 but I just wanted to say that I hope you start feeling better. Perhaps it is gas? When did you have it done?...
Hi Guys, I know I post only periodically although I often come to the site and read posts. Anyhow, I just came home from step 2 of 3 steps for j pouch. This step has not been as easy as step 1 but I...
Hello, I was terrified. So terrified that the nurse told me I could change my mind even if I was on the operating table (before they put me to sleep, of course). I was balling my eyes out. But, I...
My biggest issue since my step 1 procedure 7 months ago has been lower back pain. I did fall on the back, though, about 4 days after my surgery but it didn't hurt so I didn't think it was that....
I have never had that but I just wanted to say that sounds so weird. Keep us posted....
I go to the chriroprator 3 times a week and have never had a leak of any sort. I think you are safe.....enjoy!!!...
I currently have a temporary ilestomy and I have mucous and blood out of my rectum several times aday. Keep in mind that I currently have an end ilestomy so my rectum is not even connected to my...
sounds like I very, very, very bad day. I understand how you must feel. Anyhow, I would suggest wiping the skin around the stoma with an achohol wipe (and let it dry good) before you put the wafer...
ann arbor, mi...
I just take a multi and calcuim. One of the BIG perks of the surgery for me was no med's. Like you, I refused to do remicade. I had bad reaction to imuran and 6mp and was steriod dependent. I think...
I do the hollister new image also.....I really like it. I just tried out some of my old bags (convatec, coloplast etc) to see if I liked them better and I hate them. Hollister 2-piece is my choice...
Hi Red, Surgery was a big decision for me. I think I was ready to make the decision because I went back-and-forth about it in my head but what really did it was when the doctor fussed at me about...
I just remember when I initially had my surgery that it looked like there was water in it......it was puffy. The nurse told me that it was swollen. I do not wear a transparent pouch so it is not like...
Hello! So, I have had my stoma for like 6 months now and it is temporary because I have step 2 of 3 steps in Oct for the j-pouch. So, I feel like I have noticed that the tip of my stoma is kinda...
I have never used the clip but I think they would be a bigger pain....me personally. I got all kinds of samples from different brands (hollister, coloplst etc...I called them and asked for samples)...
you will do great....
ok....peggy. It is a deal. I will give all 25 lbs to you....free of charge. No problem. I really do not need them anyway. In fact, you would be doing me a BIG favor by taking them :) You should get...
oh,,,,,we are the same. I just wish I had the will power (which I cannot seem to find) to go back on the SCD diet because I really believe that it was healthy. I just can't do it for some reason. I...
My weight feels like it is everywhere. I have literally gained 25 lbs from my lowest weight with UC....that is ridulous in only 5 months since surgery. I did not even loose weight after surgery. My...
I have never been great at exercising but I know I should be....it certainly would help. My chriropator has a "healing well" program that I think I will sign up for this friday where they help you...
I remember buying Ensure drinks to gain weight with UC....what has happened????? I love the fact that I can "be normal" now with this temp stoma because I can eat anything I want. I don't even feel...
I am another weight gainer. The one thing that was a "perk" to have UC was loosing weight. I actually lost weight even on prednisone but now that my sick colon is out of my body and I can eat...
Hello, I had UC (aggessive UC) and was on prednisone for 1 1/2 years and they said I was steriod dependent so I had surgery Feb 25th and they removed my entire colon. About a month or so after...
You are VERY funny prayingforhealing. I can only imagine how you felt. I got a sample (never used it, though) of a product called like "easy vent" or something. It is like you connect it to your bag...
I am 41. I have been married to my husband for like 17 years (it is a guess, though.....I am terrible with dates and remembering lol). We have 3 kids: 20,17 and 15. We live on a lake and spend alot...
You're so right. I need to focus on my health over my looks. I just thought I was so much cuter being thinner. I liked my body SO MUCH better. I am certainly glad to nolonger have all of the UC...
It is incredible to hear how many people have also gained. I am going to experiment and see if I can find a way to loose some of this weight. I am started to really get my old energy level back so I...
I guess that means that you don't think that it will go away??? :) I have just had so much health drama that the thought of more health drama just makes me feel even more sick. I really, sincerely,...
Did anyone here get their arthritis from prednisone? I was on prednsione for 1 1/2 years due to ulcerative colitis. I ended up having my colon removed so I got off prednsione 4 mths ago but I have...
I have had my temp ilestomy for like 5 mths. I use to have to drink ensure's to maintain my weight etc. In fact, I had to buy new clothes and I stored alot of clothes bc they did not fit. Okay....so...
Have you been on prednsione the whole time? The only reason I ask is bc I was on prednsione for 1 1/2 years with UC and then got off with surgery. I am 5 mths post op and I know that I have a more...