I went through it at age 23 and have had Crohn's as long as I can remember!...
My hernia doesn't hurt at all. But I hate it! When you first wake up before you get out of bed see if it's still bulging. Hernias usually get bigger as the day goes on .......
I think with Colostomies, the odor is worse. NOTHING worked for me except for the M9 drops from Hollister. Until that, I was worried I would be a loner and my house reeked! Now, it's FINE.... I...
Mine is swollen after 4 years, and it's a peristomal hernia. I want to have surgery to get rid of it but my surgeon says it could come back......
Last colonoscopy I had was a piece of cake! My doc just went up through the bag so I didn't need to take it off. I WAS surprised that I had to do the same prep work though :-(....
cjigers, I too had color/rectal cancer and went through all of it too. I had a HUGE amount of anxiety and DID take Ativan for it. It helped a lot. While I STILL am not as accepting as most of these...
I had blood tests and was VERY low in B12 (tired, tingling fingers, toes and lips). Some people are like that because the body does not absorb it, so just taking pills is not always the answer. I...
Yes Kathy. I hope you feel a collective hug from us all....
After numerous surgeries, one so bad they left it open to drain (gaping scar) and now after an ostomy and developing a hernia ( WAY bigger than my boobs) I hear what you are asking. I was thin, a...
I have a hernia and wear a NuHope belt. Boy does it ever help that 'bulge. I am small, so mine is three inches wide but they come in many different sizes. My ET nurse help me figure out which one to...
Although it it ha taken me a very long time to heal, I pretty much resumed 'regular' activities about 6 weeks after surgery but with a caution. It never stopped me from doing things!...
It's been almost 3 years since my surgery and I am still healing (itchy and soreness), but it took about 4 or 5 months for the oozing to stop......
I buy something I think I feel good in. While I think I would feel GREAT in a Corvette I really am just talking about maybe a shirt or other clothing ......
You use all of these products by putting drops right in the pouch and leaving it in there .......
You got me on that one. Any suggestions folks???? Good luck!...
My life TOTALLY changed when I discovered Eakin Seals. Well, I didn't discover it, I read about them on this site. I could go through a bag/pouch/purse every other day and it would pull away from my...
I voted, but I agree, Dr. Oz would be better (Oprah always has him on and he has his own TV and radio show). He is NOT afraid to approach ANY subject. Talks about poop A LOT!...
For my birthday (December 6th) I got a prescription for Chantix to quit smoking with the idea that I would be smoke free in the new year. I have tried EVERYTHING and guess what????? I AM smoke free...
Now that everything got off track ... I used to LOVE sleeping on my stomach. I sleep on my back now until about 5 which I ALWAYS have to wake up to empty the bag (oh, scratch that ... pouch. Hmmm....
Hydrogen peroxide NEVER worked for me. Nor mouth wash. It just smelled minty-stinky. M-9 drops work great. I use a little more than the suggested 'drops' but I wouldn't use ANYTHING else. My...
In the articles I have read and in talking with my surgeon and ET nurse, people with crohn's who have had a difficult time with diarrhea before surgery are not good candidates nor are some people who...
Sorry to say this, but for many people with Crohn's like myself, irrigation is not an option. You'll have to check with your ET nurse and or Gastroenterologist....
Yes! I can smell myself and I have had mine for over two years, and using M9 drops!!! No one says anything but I wonder ... I do have to say that the longer it's on, maybe normal sweat and stuff gets...
Did you try this? They do have a lacy belt/sash type of thing.... http://www.intimatemomentsapparel.com/women.html[url]...
Again. Sorry. I think you just have to come clean and actually express (you know, like TALK) to both of them. This has been weighing on you for too long not to verbally say what's on your mind. I am...
... and who will be minding hell when your MIL is up visiting you? Sorry....
1. What is your surgery date? April 24/1007 2. Why did you have the surgery? Cancer 3. What is your best memory since the surgery? Someone very special was with me during that time. 4. What is your...
I think there is a difference between colostomies and Illeos ... Like mine (colostomies) they smell a little more (or in my case A lot more because of how much food is actually absorbed in the...
I fly everywhere. Never once had an issue with bags expanding. Only once (and this was MINOR) when waiting in line FOREVER and filled up and the security guy asked me what I had 'in there' because I...
Apples work for me!...
This may be a long post - sorry! While it took my bum FOREVER (up to 1 year) to heal, I never was told not to sit on the toilet. Is that a directive from your ET or doctor? What is the difference...
Welcome!!!!...
I have a colostomy. Biggest thing: be patient, physical and mental recovery MAY take some time. Learn all you can about having an ostomy ... hopefully you have a good ET nurse. Pamper yourself if you...
Yes, Bob, tell your wife! It's been 7 weeks and she needs to go so you can REALLY start healing! Adapt never did work for me though. M9 drops really made a difference. And don't listen to her. If you...
And another thing .. I can't believe you have to wait until Wednesday! This was not my first abscess, and they have always drained them right away! You poor thing!!!...
Been there, done that. I went to see my surgeon and it was diagnosed right then and there so she did it in her office. She gave me several shots of novocane and cut a small hole to drain it. It was...
I was diagnosed Crohn's when I was 16 (but they figured I had it since I was very young) and I am 50 now. I had a terrible go of it through the years. I didn't get my ostomy because of my Crohn's but...
I was SOOOO sore for three months after surgery even the thought rolling over made me hurt to think about so it did take some time. And then I just naturally started going back to my stomach. Yes! I...
I sleep on my stomach too. I guess I am used to 'knowing' when to turn over even in my sleep. Most early mornings I kinda wake up and I am on my back, go to the bathroom, empty, and come back to bed...
I buy the Target version of Spanx called Assets. They are high waisted, high legged and have a little control to help hide the bulge....
That does sound weird. I know that some cover more BAGS than wafers if you are using a 2 pieces system because for some, the wafer lasts longer than the bag and one just changes the bag keeping the...
http://www.whiterosecollection.com/index.html...
Happy birthday Summerstorm! My 2nd is the 24th of this month. I'll lift a glass to you then!...
Ativan is an anti-anxiety medication. It was prescribed both by my oncologist and surgeon. Gosh, if there is something over the counter that works the same way, I want to know about it! D22, feel...
Yeah, I have had nothing but great service from Edgepark. In fact, I was on a 4 day retreat and brought a brand new box of supplies with me. I leaked through EVERY single one of them, ending up at a...
Dear D22, I certainly can understand your reservations about intimacy. For some of us it takes longer. Although far from perfect, I felt very comfortable about how my body looked. I was slim, dressed...
Hi Trigirl! I have been out of town for quite some time. Sorry it took so long to post. I know how hard it is to make the choice. Through my personal experience, I would have rather had my ostomy...
I am not bad (well, not that bad) - my bag was though when I first joined the group. I found a 'good fit' now and gladbag was already taken :-)....
I've had several issues. Radiation can 'shrink' one's hoo-ha (as Jen calls it ;-). And when the rectum and anus is removed it can also make the previous mentioned body part go south and with no...
Hey! I am just chiming in here taking a break from my tilting arbor table saw tell tell you that my husband WOULD check in with you but he is upstairs cooking my dinner :-)...