Nascar Ron, what do you use instead of paste?...
Tracy, I use the 2 piece convatec. My husband and I aren't rough; I just think that my pouch may get pulled downward. I ordered a belt and it just came, so maybe that will work. I am doing well since...
I have a question. I got my ileostomy in June of last year. Whenever I have sex, it seems like I can wake up a couple of hours later and my pouch has came unsealed and I'm wet. Does anybody else have...
It spreads out and under the adhesive. I called Cleveland Clinic and they said to use lotramine antifungal spray. Have any of you tried that? butterfly...
My skin is bright red and almost like a rash in places and some opened skin like a sore....
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I drove 8 hours away to go to Cleveland Clinic, Florida. I had local general surgeons in my area, but not really specialized colorectal surgeons. It was worth the drive and I'll go back to Cleveland...
I have had 2 colorectal surgeries at Cleveland Clinic Florida. I had a colectomy in 2007, and just had ileostomy surgery in June. Dr. Wexner was my surgeon for both surgeries and he was the best. I...
Everyone, it's so good to hear from you. I liked your advice so much that I'm going to fly home to Iowa to see my parents for Veteran's Day weekend, too.. I agree with others that we should really...
Everyone, thanks so much for your responses. I love you all. It's been a long road, but I am finally feeling myself again and am happy every time my bag starts to fill up! butterfly...
I had surgery in June and have an ileostomy. I live in Florida, but am flying to see my brother for Christmas. He lives in Kuwait. Should traveling that far be alright for me? I haven't gone very far...
Brian, I had ileostomy surgery in June and had a wound vac on from the end of June thru mid August. I had a lot of infection inside my abdomen, so they cut it and the scar tissue out and didn't...
Thanks to both of you for posting back. My surgery and recovery has taken alot out of me. I am so anxious to go to the beach and want to have some FUN time..It's been a long time since I've done...
Sorry, but what medal things are you talking about? My seatbelt annoys me, too, and gets in the way of my stoma. I'm always afraid of squishing it. /community/emoticons/rolleyes.gif butterfly...
I just had ileostomy surgery in June and had alot of adhesions cut out and left alot of open wounds. My wounds have healed and now I'm planning on going to the beach for Labor Day weekend. I haven't...
Thanks everybody for your replies. I haven't been on this forum much lately and have missed you all terribly. You all make me feel so much better while dealing with our issues. I had no idea that...
Hodaya. I hope that you don't have to go back to work so soon. I had my ileostomy surgery on June 11 and am still not back to work. I'm supposed to return to work on August 25 and am even worried...
Hodaya, I have been off the boards lately but wondered when you had your surgery? I had mine on June 11 and am returning to work on August 25. I was in the hospital for 10 days. I had lots of...
Janie, thank you so much for trying to call me. I'm sorry that Cleveland Clinic didn't pass on your phonecall to me. I would have loved to talk with you. I made it out of the hospital in 10 days this...
open instead of stapling and they're supposed to heal from the inside out. I have a wound vacuum to help speed up the process. It's attached to me and changed twice a week by a home health nurse....
Lizzie, I hope that you continue to get stronger in your recovery. I miss your posts and will continue prayers for you. Rosemary, thank you so much for your posts. They give me an inside look at...
Butterfly...
Hi everyone. I haven't posted in awhile, but have catched up on my reading tonite. I am cramping horribly. My abdomen is distended. My husband can flush water thru a syringe into my tubing, but he...
Hi everyone. I'm getting closer to surgery, and hope that it gets here soon enough. My tube has not been working and I am cramping terribly. I've been taking pain pills to help get myself thru it. I...
Hi everyone.. I've been reading the posts and want to share something. I never had constipation comlications until the week after I had cystocele and rectocele surgery. Afterwards, I could go a month...
Taurus, I had 2 botox injections before I had my total colectomy. They cost between $2,000-$5,000 per shot and some health insurances do not pay for them. I can't speak for everyone, but they were...
I'm not sure who asked, but it usually takes about a month to get an appointment with Cleveland Clinic, and a 3 month wait for surgery. I am so happy that I'm actually crying. Dr. Wexner has moved my...
Hi everybody. I just got a call from a doctor that works with Dr. Wexner at Cleveland Clinic. He asked a bunch of questions and then told me that I needed to go on a liquid diet. So, hear comes my...
Lizzie, many prayers are coming your way. My entire family and friends are praying for you and I just know that your surgery is going to be a success. You've been through so much and you're still...
Good afternoon everybody.. I called Cleveland Clinic again this morning. I told the colorectal department lady that I had called yesterday, but nobody returned my call. She looked in the computer and...
Rosemary, do you think that your ostomy worked better on the cruise ship, because your activity level was higher? I wonder if I am not as active anymore as I used to be and that may have some effect...
Hi Janie. You're always so dear to me and I believe too, that we all should get together and go on a cruise! We've had enough to go thru, that parts of our lives should be enjoyable, too. I am...
what I can't change and what might happen to me. My outcome doesn't sound rosey, but I am going to try my best to be positive. [img]/community/emoticons/rolleyes.gif [color=#800080> [color=#800080>...
possible Brooke Ileostomy. I had to do a CT scan of my abdomen and pelvis, an upperGI/smallbowel follow through, fistulagram, and gastrograffin enama. butterfly...
Hi everyone. I was at the hospital Monday. I was dehydrated and they had to give me and IV. The doctor asked me if I felt better afterwards and I said no. I don't think that it happens that quickly!...
my hearing things. At work, I could hear voices through my telephone. They were very soft and I couldn't understand what was being said, just knew I was hearing things. I would even lift the...
Rosemary, our e-mails just crossed but I'm going to look into Washington DC transplants and see what I can find.. Thanks for being so wonderful... I really mean it. I hope that you're having a bunch...
Rosemary and Leslie, thank you for all of your kind words and thoughts. I really do appreciate your thoughtfulness. I have been having a really difficult time dealing with my feelings and depression....
Nonna, unfortunately I had the same experience. I had my open total colectomy in August 2007 and in January 2009 it just quit working. I was constipated again, could not have bowel movements, and...
my upcoming surgery. them. When my colorectal surgeon redoes my ileostomy surgery, he said that he will have a urologist in the surgery with him to put stents in. I am unsure what this means for me....
Hi everyone. I'm just wondering if anybody out here knows how to apply for disability? butterfly...
Lizzie, I'm confused. Do you have disability insurance or are you on disability from the government? butterfly...
Janie, Lizzie, and Rosemary, I'm going to take your advice and call Dr. Wexner. I'm afraid of what he might say, but I'm afraid anyhow. Lizzie, can I ask you what process you had to do to be put on...
Leslie, Lizzie and I both had colectomies, too. Mine worked for 2 years and I felt the healthiest ever. I didn't eat red meats, lettuce, or popcorn. Almost everything else, I ate. I love my diet...
Rosemary, yes, Dr. Wexner is my surgeon. He is very nice and the very best in his field. When I saw him on March 8, he basically told me the same as was in my letter, but it's much harder to read it...
My gosh Leslie, you're so sweet. I am crying right now. I am trying so hard to hold myself together. Like you, I am lucky that I have a strong support system. My husband has been by my side thru all...
Fish1, I am happy that you're doing so well. You will grow stronger each passing day. Keep walking and it will help with gaining your strength back and the awful gas. Be sure and chew your food well,...
Hi everybody. I'm reading thru the posts and feel like you're all just like family. I have had a difficult weekend. My tube keeps obstructing and I'm cranky. I'm not sleeping, because that darn...
Leslie, thank you.. You've had so many surgeries, too. How do you stay positive? I'm trying to digest everything in my surgeon's letter, but it's taking alot out of me. I don't know how to just let...