No not pleurisy. I just ran across an article in this months arthritis magazine that said 20 percent of people with RA will develop lung problems and methotrexate users or people using biologic drugs...
Thank you for the article. I had crohn's in my mouth, throat and esophagus before I had my surgery. there was a study done in Australia about a connection between sinus problems and crohn's. I will...
Hi Julia, Yes Crohn's can effect the lungs. I will have pulmonary test this week which should tell me for sure. I will keep everyone posted because we all need to know what might effect us. Plus we...
Hi everyone, I have not posted in a year and find this thread interesting. I had my colon removed 7 years ago and had my rectal stump removed 1 year ago and now have a barbie butt. I did not notice a...
Hi Everyone, I am an old member who has not posted in over a year. This is one of the places I know to come to when I am dealing with something new. I had surgery 7 years ago and had my whole colon...
Hi Sassamal, I had surgery in may to redue my stoma. I did great for 2 weeks after surgery and then I got c-diff and my Crohn's was activated. We tried different antibiotics and nothing worked until...
Hi Monte, I was diagnosed with colitis in 1998. I tried all the different drugs available and nothing seemed to work. I developed symptoms in my mouth and throat and was told I had both Crohn's and...
I am so glad I checked this web site tonight! I was suppose to start Tysabri soon but my JVC test came back positive today. I have been on everything over the years and finally had my colon removed...
NCOT The c-diff attacked the small bowel. The bacteria is usually something you contract in the hospital but can also live inactive in your body and be activated by something like surgery. Before I...
I am a crohnie with an ostomy. My crohn's was actived by a c-diff infection and with active crohn's I developed fistulas outside my stoma. I have not had active disease in 6 years so I have been med...
NCOT, Sorry to hear about the skin issues. Pred can cause the skin to itch and become sensitive. I was on 80 to 100MG of pred before my first surgery and the side effects were sometimes worse than...
E.M. Thank you for responding. I had my stoma moved because of scar tissue and stoma stenosis in my old stoma. The surgeon also removed the rectal stump. I was healthy going into the surgery and seem...
Hi NCOT, I haven't posted in awhile but I happen to check in a few days ago and saw your post on the ostomy site. I had my surgery 6 years ago and have been disease free until a month ago and my...
Has anyone developed a C-difficile infection after surgery and if so did it activate your Crohn's diseases? I had stoma revision surgery and a proctectomy on May 6th. Two weeks after surgery I...
Hey summer, When I had a blockage like that my doctor told me to take a table spoon of mineral oil and it worked. My ostomy nurse told me the same thing. the doctor said take one table spoon and if...
Sometimes the surgeon leaves it in case you decide to have a j-pouch. Most surgeons will not do it if you have confirmed crohn's because a take down can activate the disease. Some surgeons will let...
Yes Dan I am in San Francisco. Thank you for the tip on the Benzoin Tincture I will try it. My problem is mainly because of the stenosis my stoma started retracting and than it protracts because it...
I have stoma stenosis and retracted stoma. I started having a blockage around one side of the stoma and the area would become hard and painful. My stoma developed ulcers and started to bleed and...
I am going to have a stoma revision on may 6th and wonder if other members of the forum have had this done and what to expect or if anyone has tips on how to make this surgery easier to deal with. I...
Thank you for your kind words. Crohn's can effect both the small bowel and large bowel as well as other organs. I did have some problems with small intestine inflammation before. Since I had my colon...
Hi Everyone, It has been a long time since I posted. I have C.D. and had a total colectomy in 2007. I have been having what feels like a flare for the past two weeks. At first I thought it was a...
Moonshine, I had my colon removed in July 2007. My new life began in August 2007. I sail,surf teach in the pool, and ran my first half marathon in Napa,Ca. to raise money for the CCFA. Since that...
I have been having pain in my upper right side which also effects my back and shoulder on my right side. I don't have blockage or pain or tenderness around my stoma but do have bouts of pure liquid...
You never know until you try! You go boy! Sending good karma your way! Fruitcake...
Chaza, Your illness developed over a period of years and your body was use to dealing with illness. Your body has to adapt to its new state. You just lost a major body part and at first you are happy...
To have one hell of a great time and have lots of fun! I started with tap dancing lessons and fixing up my beautiful 1954 studi convertible which I plan to take a road trip in to the grand canyon in...
What a terrible thing to happen. I have crohn's and after surgery my doctor said she would not do a j-pouch because the crohn's could reactivate. I have a friend who had his j-pouch removed because...
I am like a new person. I will never be able to have a j-pouch because I have crohn's but having a bag is not so bad. I had my surgery two years ago and I am drug free for the first time in fifteen...
If your immune system is compromised because of your disease or medications you can develop a very bad taste in your mouth. I could not taste food or water it tasted like metal. At the time I was...
I have not posted on this site for a long time but this topic was of interest to me because I had sinus and allergie problems my whole life. I had constant sinus infections and was treated with...
Nine weeks is not very long. It took me about a year to really recover.You have to let your body adapt to not having a colon. Walking is good. You have been through a lot and I think you are a...
Hi Seesha, I ran a half marathon to raise money for CCFA in july and am training to run a half marathon Dec. 5th in Las Vegas. I had my colon removed two years ago. I have an ostomy. One of my...
Hey Matt, I have been away for a while and just read this post. I ran the half marathon in july and run another one in Dec.6th in Vegas for CCFA.I had answered another post you you had on wet suits...
It is me again.Check out the White Rose collection it is a company in england that make ostomy underwear and pants. I just typed in ostomy clothes and that is how I found them.they also make swim...
Hi Matt, I use a wet suit when I swim in the ocean.I teach classes in the pool and I wear swim shorts with a pair of special ostomy underware under that.I also wear those under my wet suit to hold my...
Hi Christine, this is my first time to checkout this forum. I have gone from colitis to crohn's to ostomies in the past two years. I had the same problem you did with predinsone. I was on such high...
Arc10, I had my surgery 2 years ago and the first year I had issues with fatigue and hydration. I trained with Team Challenge for the Crohn's and colitis foundation. The good thing about training...
I know that nose sores and mouth sores are part of crohn's.Mine would happen every time I had a flare. My primary care doctor told me what they were not my G.I. doc. My primary doc. would do swabs...
Diaper Man, It is an individual thing and it depends on what kind of shape you are in going into surgery. I was in really bad shape and developed a bunch of other problems due to all the meds I was...
I have a friend who went through this.She explained her disease in very simple terms at her hearing. She ask if anyone had ever had a stomach viris or food poisoning.Everone in the room related to...
I had painful sores on my gums and my throat. The more active my disease the more sores I would have. My G.I. doc said that Crohn's could happen anywhere in your G.I. system and thought that was the...
hi Nanners, I use to post on this site and I remember how helpful you were. I post on the ostomy site now. I remember how it felt to always be strong and positive about my crohn's. I got so ill in...
Check online and see if they have any running clubs in your area usually they are free and it is good to have other people to run with. In the bay area some sporting goods stores and running shoe...
The advice that I got was to take a few sips of fluid every 15 minutes. I wear a belt that is light weight and you can carry small bottles of fluid. I use a powered stuff you mix with water by a...
My joint pain went away with surgery.I just met a young man who is taking humira and his joint pain was so intense he fell to the ground and could not get up during a race we were running. I think it...
Hey Matt, I was to at first but I took it slow. At first I had a little pain and then someone told me to wear spandex underwear that would act like a girdle and keep everything together. That worked....
Sending prayers and healing thoughts to your husband and your whole family!...
I did it I finished the half marathon on sunday in 2hours and 20 minutes! Wow! What an experience! There were three thousand runners,500 runners and walkers from all over the country were there to...
Thanks ladies. Cecilia,I met some one from Ohio at our training on sunday.Could that be your cousin? There are people coming from all over the country for CCFA. We have the biggest group of runners...
Hi Everone, I have not posted for awhile because I have been training to run a half Marathon to raise money for CCFA. Two years ago I could not get out of bed I thought my life was over. Like many of...