Hi Collicat Thats great news. I am really pleased for you guys. I am about 9 weeks out from takedown and I am also on about 6 BMs a day. I went back to work last week, and this weekend spent over 5...
Sofee, Sorry to hear things ar not goign well. Have you tried any fibre suppliments? That has helped take the acid burn away for me big time. Also adding barrier cream right before i have a BM so...
Hi Connie, It sounds like you sre doing really well in your recovery. I had very bad bloating, and then spasms for the first couple of weeks. I am 3 weeks out now and both of those have past. I think...
Hi, Well its two weeks since I came home from take down. Two weeks 3 days since the take down. The first week and a half were the hardest. I was one of those who had butt burn :(. My girlfriend found...
Broadwind - Yes i too will be using Loperimide on a daily basis to help with acid and number of BMs a day. I spoke with my stoma nurse (with a Jpouch i still come under their care) and said a week...
Hi Collicat, I am really pleased to hear that your son is doing better now. Walks are a big help to wake up the gut after surgery. All my movements were watery before I got some food through my...
Glad to hear from others again - lets keep moving forward! well, its been 4 days since takedown for me now and my head is a lot clearer now I have had a few good nights sleep. I have slept without...
I have been given the all clear to eat and if I keep breakfast down I can go home today. This is a big boost :) made it through the night with no leaks or problems. Still passing gas and output still...
Good to hear from others. So far I have full control. Output is like with an early stoma, however my docs are only lettin me having fluids so no food to bulk on yet. No pain or discomfort from...
Hi everyone, it's been a while since I posted on her but a quick recap is bad uc which turned into a 3 step jpouch. I just had my take down yesterday and my pouch has only just started to output. It...
Hi Everyone, I had step 2 of 3 step jpouch done in the beginning of Oct and now have a loop ileostomy. Yesterday i noticed slight pain around the top half of my stoma - i thought it was a slight...
Thanks sue, I knew about passing mucus, it's as the blood has come on as the swelling went down I am a bit worried. I think it's made worse by wanting the pouch to work well, as I said earlier in 2...
Hi everyone. I have had step 2 of a 3 step jpouch creTion done nearly 4 weeks ago. The swelling in my back passage has really cleared down in the last week allowing me to easily pass the mucus that...
I guess the range of posts here just show how everyone is different! Its funny that a rumbling tummy is less embarassing than the farting noises my stoma can make sometimes - even though it is the...
Yes UC Wife - i am really glad you posted your story. I too feel that having the bag for a while helps. I am sure it must give your small intestines a chance to slow down a lot before havign a...
Hi Everyone, Its been a few weeks since i have posted on here - I have been one of those people who have their ostomy, recovered from surgery, and then been out being active! I have a date penciled...
How are you getting on Jackie? Hope you are OK....
Hi Jackie, Glad you got home quick - i hope you cope with this recovery well. Your right about knowing what to expect now - might be less stressful this time round. I take it you got a loop ileostomy...
It sounds like you are doing really well. The one thing i have found going through bad UC and the first of a 3 step surgery is to be patient. Only 3 weeks out and it sounds like you are def well on...
Hi, how many weeks post takedown are you - i am guessing about 3 by now? has your bowls slowed down at all yet? Are you reducing the number of trips to the toilet yet? what are you averaging now? I...
Hi, you sound like you are doing great. Now Thanks for the answers. I know everyone is different but the more I have researched and spoken to people the more i am hearing success stories. MY GI told...
Thanks Sue. The more i think about things the more I feel i should try the Jpouch. Elli....
Thanks for being so open. Just so you know I am thinking of going for J-pouch hence my interest. Have a meeting with surgeon in Sept - have to wait for all the steriods to clear my system. When you...
Hi UC Free I have been following your progress on twitter - its great to hear what its like for a patient rather than what the doctors and nurses will tell you its like. Hope you are feeling OK, from...
Hi All, If I have a J-pouch and it fails everyone is saying dont worry as you can just go back to living with a stoma and bag. Very true, I have got on OK with the stoma and bag and could live with...
I thought they took all the colon tissue when they did a jpouch. If they left any colon behind surely people would continue to get UC?...
Many congratulations! I hope it continues to go well. I am at the stage to choose whether to have a Jpouch or have everything removed and closed up for good. I am following your updates on twitter...
Hi Sue I now have to take Pentasa suppositories (mesalazine) to treat it. I really thought i was done with treatment like this, I think thats kinda got me down a bit. How many BMs a day are you on?...
HI Jackie, I too have been told to stay away from all the horror stories that people post online, however 1. i think it is important to brace myself 2. i know i would not have been able to deal with...
Hi, I had my first folow up appointment with my surgeon since removal of colon due to UC today. I have been steriod free for a week now however have had inflammation and bleeding from the rectal...
Hi Jackie, Hope you are getting some help and treatment for this now. Let us know how you are getting on. Elli....
Robin - Great idea on Ebay - i have just searched and got a few hits for it on the uk site. I would never have thought to try ebay!!...
I have had my colon removed due to UC. My Doc and my stoma nurse both warned me about the risk to sexual function. I actualluy opted for leaving a small stump to try to reduce that risk and to also...
I am in the UK and have just had a quick google for the m9 drops. I can only find stores which sell this in the US. Does anyone know where I can get hold of them in the UK? I use a product called...
Hi Jay I had my OP about 3 months ago now. Gas was one thing I didnt think too much about . For me (and others from what I have read) my stoma was quite loud to begin with (gas passes into your bag...
Hi Kaycie I have had problems with output getting onto skin under the seal. I have been using poweder to help the skin heal which after a week or so it has shown improvement. Its gone from open red...
Hi I had the exact same problem with sleeping when i came home from hospital. I didnt sleep at all while i was in hospital so thought i would zonk out when i got back to my own bed. That didnt...
Hi, I have only been posting on here for 2 about 2 months since my surgery but i can honestly say the people here are so friendly and supportive. Lots of advice and a real spirit of helping people...
Hi JAckie Thanks for asking after me. I went back on monday this week. I had to go to a meeting with the ocupational health nurse who has planned out a phase return to work for me. Doing afternoons...
Hi Yes I was using the whole seal..!! I will be changing later on tonight and I have a couple of ideas to try this time and see how I far. As well as sticking the seal to the bag, I am also going to...
A few people seem to use the method of sticking the seals to the back of the bag and then applying it to the stoma. I will give it a go. Once you have your bag on, do you then massage the ES up to...
Thanks Peggy. I work in an IT dept for a large college and when i go back to work next week i am goin to sit at my desk with this web page open on my laptop! Reading the posts over the last few...
Hi Peggy I think I agree with you about not trusting anyone else to cut the bag. I have calmed down now! I have used powder since last week, but without getting a good fit its a losing battle at the...
So my sample arrived. A little booklet on the seals with 4 sample slim seals instead. I have just done my bag change and after going through 3 of the 4 seals gave up with them! Everytime I pushed the...
I looked at their website earlier this week. http://www.eakin.eu/template.asp?pid=245&area=1 At this link there is some videos on the products they do. It really shows what they do and how to apply...
Just reading through your little bio at the bottom of your post. I guess you must have some of your colon left in place? Dont mean to be nosey!...
How many trips to the bathroom a day are you making? All the best and nice to see a positive post. I am thinking about this option at the moment! Elli :)...
I would really like to second what Peggy has said about how helpful these forums and posts are. I find answers and help, but also a feeling a not being alone in this when I visit this site. Everyone...
I have just been on the ES website and requested some samples. I have also been in contact with a new supplier who do there precut flanges using a cutting machine - my current supplier do their...
It was week 6 for me before I was happy to eat at friends/family as I was very noisy at first. My mornings are still a bit noisy but at home on my own that dosent bother me. Do you have filters on...