Kathy It feels as though through this forum we are all a witness to your pain and loss as well as Mike's pain. You are obviosly as compassionate as your husband to be able to assure all of us that...
Hi 80'schick I fainted alot too my first week after surgery. I ended up having a blood transfusion, felt amazing after. (Well as amazing as one can with staples, new bag and sore all over) The...
Gilda I think we all know at least part of your story, and can empathize with the anguish that these diseases cause. It is not only physical, but emotional as well. I hope that you are able to access...
I suspect you are right, there was more to his pain than what he posted here. My experience with those who complete a suicide are in so much emotional pain that this seems like a logical answer to...
HI Everyone I know that I dont post very often here, but I do visit alot as I find the information very helpful. WIth the loss of Vette guy, I am wondering if there is more that we can do to support...
I had my surgery in February of 2009. I am still quite careful, the cobra seems to feel very different from before surgery. I am doing the wii fit too. I cant seem to fit a class in. What is the...
Kathy - My heart is with you. Your loss must be tremendous and I am sure words can never express this. Sue UC 2003 Ileostomy 2009...
Does anyone else do Yoga? and does this cause any leaks? I usually jog, but I fractured my foot so I am looking for something else to do. Sue UC 2003 Ileostomy 2009...
No Allison you were right, there was a sore right beside the stoma. Sue...
Thanks for all the suggestions. I did go to emerg yesterday, woke up in pain and thought it was good just to go get checked out. The Dr put me on antibiotics. Things seem to be settling down. He did...
HI Trigirl I have never found a ouch that doesnt do that ballooning thing at the top. I wear a tight tank top, or I use a tube top over the pouch. I think others use the tube top as well. I do find...
It is amazing where we can change our equipment. I remember leaving the hospital and thinking, if those nurses couldnt change it without getting poop everywhere, how am I going to change in it in...
My plan is to change again tomorrow. I talked to the ostomy nurse and she recommended powder which I will try. I am anxious to keep running, though I have taken two days off. I am determined to prove...
Thanks Robin - I have been doing alot of running lately, I am trying to do a 1/2 marathon in may, but it hurts to run with this sore. I am going to try a really tight belt and see if that helps. Sue...
I have had my ileostomy for just over one year. To date not too many problems. I changed everything this morning and there was a sore right next to the stoma. It is the size of the end of my pinky. I...
Hi Notuffda I have similar questions. I am thinking about doing the two stage surgery in May. I have had an ileostomy for one year, today actually. So I think I am ready to go through surgery again....
I havent posted here for a while, but when I read this thread, I knew this was really the onlyplace I could share this and have others think it was funny. I was outside cleaning up dog poop from two...
Thanks all, I will try your suggetions. I have been use tube tops when all else fails. Sue UC 2003 Ileostomy 2009...
Good luck with it, I just keep telling myself that the UC was the hardest part, the rest, well...Its all hard, but you have been through the worst. Sue UC 2003 Ileostomy 2009...
So I have just switched over to Coloplast 2 piece, I like that the flange part is plastic. But last night I was getting ready for bed and stood up and the bag literally fell off, no warning. Has this...
Go to a trusted hairdresser who has alot of compassion. I just went through this and she did completely inspected my scalp and reassured me the folicles are still there so it will come back. I have...
That is really inspiring...I would love to do the Vancouver 1/2 Marathon this may. I had my surgery in Feb, so I hitnk that would be enought time. Does anyone know if there is a similar training...
Hi Jen_J So many times I have said If only I stuck more closely to a prescribed diet, or gone to the dr earleir or agreed to harshes meds earlier. The fact is I think we all do all what we can to...
HI All I have recently had the first surgery. I am hoping to do a resection, but in the mean time have an ileostomy. I do have some joint pain, though my Dr assures me it has nothing to do with UC or...
This is a terrible loss. The parnters and those that love us suffer so much along with us. Thank you and your wife's story. You are in my thoughts. Sue UC 2003 Ileostomy 2009...
HI Susiebuddy This is a pretty tough choice, I know for me it came down to the surgery or apparently moving into the hospital permanently, which was intolerable at the best of times. The only thing I...
Hi I felt like I have been on pains meds a long time too, but looking back it really wasnt that long. I think I was still taking t3 though at 6 weeks. It took me a little longer to get off of...
Thanks for your responses, yes I am doing everything I can to stay active, in the end that it the best for me. I have talked to my doc and I did a bunch of blood work this week. Last nigth though...
I used to keep wheat, dairy and red meat completely out of my diet in hopes of controling the UC, I believe it worked for a long time. I am considering going back to this diet, it means alot of soy...
Does anyone else have painful joints. I had my surgery in February, and before that my joints always seemed ok, I was very active, running everyday. Now though it does not take much to make anyone of...
I have not had a blockage yet. I have been actually avoiding alot of fibre, now I am wondering it that is a mistake. How much fruits and veggies do you eat, are they cooked, or raw? Sue UC 2003,...
I was always the one that refused to use the outhouse on those long trips, which when I developed UC was very traumatizing and something I had to get over. One of the benefits of a bag now though is...
I too am going through the weight fluctuation. I always thought I could stay at one weight I would be healthy, but the last year I have lost 30 pounds now I am really quickly regaining that. Hey Sue...
HI thanks for the responses, I loved all the information Summerstorm, my nails as well have the divits that you mentioned. I think I will see my Doctor about B12, he did say I would likely need this,...
HI Everyone Did anyone else start losing their hair after surgery? Being a woman this is a little distressing. Just thought someone might have some insight. Thanks Sue...
Hi Kaycie I too have irritated skin around the stoma. I have to tell me self all the time not to itch it especially as I am changing it, it just about drives me around the bend. I use the stoma...
One more thing, I cant remember whose story it was about the cat, the vet and the shreaded bag, but I read that on my third week back to work and after having two leaks at work. I so appreciated the...
Hi All I have enjoyed reading your posts and really dont feel that out on my own anymore. I have had so many questions answered by reading through all of your postings. So thank you for that. I am in...