Maryann and Christine1946....so glad to hear you are both doing well!. I remember the lows of 5 yrs ago so well. ( it all sort of feels like another life though). Dillon, as well, is doing great. He...
Hi Everyone, I have not been here in a while. My son, Dillon, had his colectomy for ulcerative colitis and a J pouch built almost 6 yrs ago. He had a lot of complications during and after surgery but...
So happy to hear that you are doing well! I just posted that my son, Dillon, is about 5 years post takedown and he, as well, is doing so well. He says that his UC days are like a dream and that it...
Hello Everyone, There are a few of you out there that I hope may remember us. I most certainly remember you guys and all the support and advice that we received from so many of you. Six years ago my...
Christine....saw the pictures. You and the bride are beautiful!! Congratulations.... :wink:...
Congratulations to the whole family! I am sure it was beautiful! Cathy...
Back to your original question....all I can say is that my son was SO SICK and his life was completely out of his control until surgery. It completely gave him back his life and he is healthy is very...
Good question for your doctor next time you are there.....a good thing to know ahead of time...
My son tried Remicade for about 6-7 infusions until he made antibodies against it. It never did a whole lot for him...seemed to work for a couple of days. However, I realize that it has helped a lot...
I will try one more bump.......
Dillon had his done in 3 steps. 4 months between first and second surgery and then 8 weeks between second and third. Both were minimums that our surgeon would allow. Just as a note: Dillon really did...
bumping......
To those of you have known of Dillon's struggles throughout the years I wanted to update you.... He became a licensed pilot today!!! Something he never would have been able to do while he was...
It is great to see you on the forum. You were our (my son Dillion and my) inspiration 3 years ago. It was your story that we kept holding onto through the trials of surgery and recovery. You and your...
He was 18 at the time. 21 now...
Brain, I am so glad that you are recovering. It should only get better. I have told this story before but I remember an evening about a month post Dillon's colectomy and his friends came to collect...
Dillon has a BM about every 4 hours (even through the night). However, this number changes from day to day and is completely dependant on what he eats. The main point is that BMs are quick and...
IndianWaldo, I do not want to lead you astray. I did not say the life after surgery is "sunshine merryland". There are definitely life changes and with any surgery comes the possibility of...
Hi, Just posting my two cents worth. My son was very sick with UC and ended up with a colectomy and a J pouch at 18 yrs old. It was truly magical how the day after his colectomy you could see the...
I spoke via email with killcolitis. They are home and her daughter is responding to prednisone so the family is able to enjoy some of the summer. She hopes to be here on the forum soon and bring you...
I have been thinking of them constantly and have not heard anything. For a while I was bumping a post. I assume they are home and enjoying some of the summer. The last I heard surgery was planned for...
Hi, My son, Dillon, had very bad disease in his rectum prior to surgery but it did not prove to be a problem while he had his ileostomy. We were told that even though the rectum is diseased there is...
killcolitis....just wondering if you guys are home and able to enjoy some of the summer?...
dbtennessee, It sounds like you are in a pretty bad place right now. I cannot imagine the worry of facing your wedding while being this sick. You may not have a ton of energy five weeks after surgery...
Hi, My son had his colectomy almost three years ago. He was very sick going into surgery and it was a long hard road with numerous complications but it the end it was so worth while. The difference...
Killcolitis...just wondering how things are going?...
Just wanted to add that Dillon was on prednisone leading up to surgery as well. He was on 10mg/day for months leading up to it and, I believe, they uped it for the period just before surgery. (This...
Oh my...the roller coaster. Take faith that your surgeon, who is the best, knows what is best for your daughter. Yes, there are those who are very sick and have surgery, but in those cases there are...
I know this is a little over the top, but as a mother you will understand. Nothing brought me more satisfaction immediately following surgery than to think of that f*$&ing colon dying a very slow...
Just wondering if you guys are in Sick Kids now or not until thursday morning. If you are there and would like some company for coffee I work 5 min away and would be more than happy to come down and...
Somedude: My understanding is that the staples are there forever but sometimes the odd one will fall out and pass with the stool....
Please let us know as soon as possible how things go on Thursday. You truly will be on my mind all week.......
I know how long you have struggled with this. I have said this before, but you will not believe the weight that will lift from your shoulders when you see the health returning to her as if by magic....
I also believe that the fact that they are titanium has something to do with them not being picked up with metal detectors....
Even though my son Dillon was nervous going into surgery he was also very sick and SO ready to get on with his life. Yes, when you wake up there will be surgical pain (that they have wonderful drugs...
Our story is almost exactly the same as ByeByeUC's original reply. Truly, our only regret is that Dillon did not have surgery sooner. :turn:...
Hi. Really not much time has passed since your surgery....although it probably feels like a lifetime. Your body is still healing and you have a lot of emotional aspects to work through. I know that...
I also agree that you should be able to get a second opinion without going through all the scans again....
Sweetpeasmom.... What you guys are going through is SO hard. These surgeries can have so many bumps along the road. We were told by our surgeon, when my son had a complication and was hospitalized...
This is a wonderful update. It is important for people who are still struggling to realize how good the outcome can be....
I ache for you and what you are going through. My son was older when he went through this (~18) but he as well became very sick, very quickly. It actually got to the point that he was in danger and...
My son has had the same results as Sue. He was very ill for two years and every drug he tried ultimately failed. He was initially dreading surgery but it has been an absolute blessing. He has had his...
Our surgeon said that, in research papers, VSL3 appears to be effective. However, in her practice, which is very large, she has never seen it help. Her thought is that it cannot hurt but that it is a...
Hi, My son, Dillon, had pretty much the same story as you. Over two years he had three bad flares, each one worse than the one before. At the start prednisone worked like a dream and by the end was...
Hi. My son, Dillon, had his J pouch take down over two years ago now. He never had any real problem with "butt burn". We were told the whole trick is to make sure the area is REALLY clean but not to...
Thanks for the info Pilotguy. Dillon would never not disclose everything in a medical. Do you mind me asking how long you have been flying? I don't want you to have to write an essay but just...
PS.....I think I am just a tad older than you! lol....you are probably too young for this...
I was told it had to do with some sort of discolouration in the lens of your eyes that occurs as we age. That discolouration bends the light differently when it passes through the lens and actually...
Sorry Summer to bring this to your attention....my eyes have also improved and I was told it was a sign of OLD AGE!.....lol...
Hey. Just wondering if any of you have any insight as to whether a J pouch due to UC has any impact on obtaining a pilot's license in Canada. Dillon is thinking very seriously about this and has...