Well, no doc puts a patient on TPN as long as there is no absolute need.and i don't see this need in R. case as well - at least currently. TPN may cause severe side effects and life threatening...
C'mon Rosemary. I cant help but considering what I and others with severe illness have been through your statement "chances of survival are low" is nonsense. Sorry, I mean you should know this as you...
if your epsiode with vomiting bile had been a functional issue, you would have seen distended bowel loops or air or fluid filled loops etc....
Thursday, May 31, 2007 SprayGel comments by Dr. Matthias Korell V20 Einsatz von SprayGel® zur Adhäsionsprophylaxe bei ausgedehnten endoskopischen Eingriffen Gynaecological clinic in the clinical...
http://ihrt.blogspot.de/2007/05/spraygel-comments-by-dr-matthias-korell.html...
p.s.: loop ileostomies are known to be associated with greater complications rate in the long term than end ileostomies. As you still have your colon inside you adhesions could have been formed...
post op dysmotility after so much time has passed is unlikely. More likely are adhesions problems or something structural causing intermittent obstruction. e.g. bowel loops that can still move...
Well it is likely that it was a mistake to let your sigmoid in. The standard for colonic inertia is total and not subtotal colectomy. Also, your pelvic floor neves could have been damaged during...
Rosemary, I wont go into detail but.... c'mon you wont starve to death nor die from bowel rupture. If you can tolerate liquids you can have all your nutriens by high dense caloric drinks and a liquid...
rosemary sorry to hear that. Do you have an e mail adresse I can send the pics to?...
Thanks, but I am 3 years post op.......
no, I never eat aything with a red color. And I hadnt eaten that day at all, so basically, this was mainly blood that came out....
BTW. I dont have an infection (only SIBO), and I have had these epsiodes for several months now. My underlying disease is a diffuse motility disorder....
Hey I have a question for all ostomy people: do you ever have bloody ileostomy output and what may cause this? I have recurrent episodes of luminal bleeding, NOT from the stoma itself. I dont have...
maybe you should look into cushing's....
hi Allie, did you receive my last mail? I am still pretty miserable. Today, I had the appointment with the rheumatologist and it was a waste of time. It's always the same pattern. When docs doesnt...
i had the enemas for 3months. every 14 days....
Yes, I am Sarah. It has been a very difficult time for me in the last three months - I still struggle day by day. The enemas were suctioned out as I could not stand the rectal spasms. My rectum is...
oh yes, cramps are typical, at least for me. It's just my rectum which is spastic anyway but with the diversion colitis it was really bad. inflammation typically leads to cramping pain, e.g. in...
Just stumbeld over your post on one of my rare visitis here. Anyway, I have diversion colitis in my rectal stump which contributes to the spasms. I's better now, but not gone. right after surgery, I...
hi, thank you very much. i am going to try the Butrans patch first. if it doesn't help I'll switch to the fentanyl patch. do you have experiences with the Butrans patch and side effects or know...
thank you all for responding. my options are extremely limited due to a severe allergy to a conservative agents many pain drug use, so is the nerve pain meds. Methadone is also no option for me as it...
Hi, I have a severe chronic digestive disease in which peristalsis does not function properly.due i have been developing severe polyneuropathy subsequently to high dose iv.- antibiotics for the...
sma syndrome is a very puzzling disease. has she lost weight after tube removal? weight loss can worsen or make sma syndrome reappear. as far as the pediatric surgeon goes. would be too long to write...
Allie, have you brought up the idea of SMA syndrome? Sarah...
smarty, it depends on the reason for surgery. if you have cancer there may be additional risks which are absent with benign disease. GI docs usually dont support surgery for ci, so its better to turn...
smarty, in the end, it is your decision nobody can make for you. high mortality is relative. there are many procedures which are more dangerous. but for sure, you can have a fatal small bowel...
Introduction Superior mesenteric artery syndrome (SMA syndrome, also known as Wilkie's syndrome,) is a rare condition first described in 1861, by Rokitansky (1). It occurs when the third (transverse)...
just another quick thought: constant vomiting after eating/drinking can also be caused by SMA syndrome. basically the superior mesentery artery compresses the duodenum which caused an intermittent...
i am unsure. normal total colectomy means removing all of the colon including the sigmoid which is the last part of the colon. usually, the small bowel is directly attached to the rectum. yet, one...
what do you consider as recovering? i know that with motility issues there is no logic at all. you can be quite well in one second, and in another you feel worst than ever before. also, i had 2 years...
I'd guess it's the same mechanism that took place after her kock pouch surgery and before her tube. i think one has to think over why she did pretty well with the tube as she could even eat some...
Lizzie, I don't come here offen any more as i am very miserable. But i want to throw something out: you could ask for a suprapubical bladder catheter which i have - at least for the meantime before...
Rosemary, no a aspurapubical catheter is not a real surgery. I think it can be done only with local or a very light general anesthesia. A catheter through the urethra is the easiest and simplest...
oh just saw the the urologist suggested self-cath. Anyway, as she cant do this (i cant do this as well, so I can relate; my urethra is spastic and so much in pain even without a catheter) she has to...
Allie, i am still so miserable and I don't come here often any more so just a qick note: as I remember Lizzie failed the urodynamics study. She does not empty her bladder often. this could happen as...
smelling is something quite common to me. in fact, i have a ugly-smelling output most of time. In my case, its from bacterial overgrowth secondary to deranged motility. Anyway, the smelling does not...
Please pray for me. headed to the ER. suspected septicemia. more on my site: http://www.caringbridge.org/visit/cippelztier86/journal...
no. they dont take parts from the rectum, even if you do have a megarectum (which you dont have). they would be afraid of uncontrollable diarrhea....
yes, thats very likely that a colon full of stools hampers emptying of the terminal ileum. it just means that probably all of your colon is affected, and not only the descending part....
i guess these studies make it understandable that everyone with rectal problems should go ahead with an ileo - especially when there is concomitant small bowel dysmotility ....
Allie, do you have a dilated and/or loopy rectum which I eventually had?...
http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6T0P-482RNNH-4C&_user=10&_coverDate=11%2F30%2F1992&_rdoc=1&_fmt=high&_orig=search&_origin=search&_sort=d&_docanchor=&view=c&_searchStrId=16461...
"The effect of painless intermittent rectal distension on the rate at which a standard meal passes through the stomach and small intestine was investigated in normal volunteers using noninvasive...
and allie, I just dont get why they don't test her for auto-immune diseases with her fevers etc? does she still have joint pain? But I get many things as far as the medical proceedings and opinion of...
Allie, unfortunately, I am still strugglying both with my stomach/gut and the increased nerve pain. I am terrified when thinking these nerve pain/damage can become irreversible. This sometimes...
yes, the threshold thing seems to be more significant to me. basically, rectal compliance is the same as the threshold for feeling the urge to go subsequently to rectal distension. your result means...
Have you had a defecography and x-ray enema? these tests will better show function and anatomy, respectively than a simple plain x-ray....
i dont see a megarectum on these! images. the rectum is always somewhat wider than the rest of the colon apart from the caecum and sigmoid.it may be slightly wider, but i would consider this as not...
Allie, I think they should get her tested for a urinary infection as well as an infection of the G-J tube - both on the outside (infection of the stoma/around the stoma side) and of the tube itself...