my waffers are not lasting but may be two to three days before having to change them. I have tried sevarall but no luck yet , and it is getting costly to have to change so often. Is there somthing i...
Thank you all for the advice and info! He is doing remarkably well just 6 days post-op! He came home monday (1 day early!) and sitting is getting less painful everyday. The pain meds do help and he's...
Pswift, He had his rectum and anus removed and a hernia found by the surgeon removed (freebie!). We are in Lexington at UK....
UC wife: Thank you for all the advice! They took his morphine PCA pump today and so far the pain pills have kept his pain under control, only needed morphine once for breakthrough pain. I had him up...
Can anyone who has had this surgery give us an idea of approx. how long it'll take before he can sit without it being agony?...
No, from Kentucky actually:) Yee Haw...
I'm posting for Tony since he's recovering in hopsital! All went as expected, they DID have to open his abdomen also to get all of it so that sux since he has 2 surgery incision sites to heal from :(...
Dan, I too have problems with severe drainage and spasming. (Went to ER 4 times in 3 days because of it once!) I guess each case is a little different and this was just what was right for me....
Christine, yes I'm still on Humira (my wife gave me my shot Sat. as a matter of fact) but the docs said it was o.k. Hmmm. Also, my GIs have been telling me for a year now that I should have my rectum...
Thank you for the replies! 80sChick: You're right about living thru the ileo. What doesn't kill us makes us stronger! Villager: That's my main worry (wound healing ok) since I'm on Humira and Imuran...
They left my rectum in case of chance to reattach but I'm not a candidate after all (different team of surgeons, diffirent hospital)....
Well, I'm finally having my much dreaded rectum removal surgery on the 17th and could really use some pep talk (and what to expect talk) from those of you who've had it done...
Thank you for your comments! Y'all are wonderfully supportive /community/emoticons/smile.gif . I called first thing mon. and they told us to come on in. He didn't have to wait long at all and we saw...
Well, we saw his PA mon. and we were wrong: he DOES have a "loop" ileo. Good to know . They want him to have a consult w/ colorectal surgery this week to poss. sched. another rectal scope under...
Oops! Sorry I spelled your name wrong!...
Thank you Hodoya! I also googled-it and get the idea. Tony's is an "End" ileo....
Could someone explain please? Thank you...
Well the spasms/contractions have gotten worse and much more frequent (every 10-20min.) and he's having so mujch drainage he's having to change his pants often /community/emoticons/cry.gif . They are...
Thank you everyone for the info! He's still worried, though, but he goes to the doc on mon. to ruke out a rectal flare. BTW, they want to take out his rectum eventually (sooner than later) but he is...
My husband has Crohn's (currently not in a flare), post total colectomy in '96 with ileostomy and rectum intact. Since saturday he's been having "gut cramps and the urge to poop." Now as of yesterday...
:tongue: So glad to hear you're doing well! Congratulations on your new life :yeah: !...
Oh,no! I am so sorry for this very sad news. My prayers go up for him and out for you and your family. Please know that all us ostomates are embracing you right now ((((((())))))))...
:turn: Sending you healing vibes and hope that you are recovering comfortably!! Congrats, sweetheart, Marcie & Tony :turn:...
I'm "hvacchronie" 's wife and I've been reading through some recent posts and was so happy to hear that "80's chick" is getting to have her surgery TODAY! I was just wondering if anyone has heard if...
I say just go for it and dye the whole thing orange!! Pillow shams too so it looks like it was on purpose!! That way, if it ever happens again, no biggie!!! Hmmm, maybe some tropical accessories...
Thank you so much, Shaz!! The extras are on their way to "ostogroup" via UPS (yay, "If it fits- it ships"!!) as I type this :) Felt so good to drop them off knowing they are going to an...
NASCARon, I thought of that also and would love to offer them to anyone here who could use them. (Free, of course) Also, one of the boxes of pouches has samples from Coloplast in it instead of...
Thanks everyone!...
My wife cleaned out our medical supplies closet and came accross several supplies I can no longer use since my stoma was re-sighted in '07. I now use 1 3/4 inch wafer opening and these are 1 1/2...
Hi all, My GI team mentioned removing my rectum (currently have illeostomy singe 1996 with anus/rectum intact) after deciding I'm not a candidate for reattaching. My wife's (and my) biggest fear is...
I started humara about 2mnths ago and it as done me alot of good. As far as the pain goes, it burns going in at first but the rewards of this shot out way the discomfort and short pain....
darn!!! I'm jealous! Only thing I caught this season so far was a cold!...
Hi all! I'm posting this for my husband, Tony, 'cause he's at work. Tony has had Crohns since '96 and after meds and pred. failed had a permanent ileostomy (reversal not possible). Still has his...
Hi, awesomeame! I'm a 2nd year deer hunter with Crohns and a permanent ileostomy. Nice to meet someone I have lots in common with (good and bad :-) ). Where about s do you live (generally of course)...
Hi. I'm Marcie and my husband Tony is the one with Crohns (hvaccrohnie). Just lookin back over the posts and your subject title broke my heart. I don't have any pain advice seeing as Tony deals with...
Sorry you're having to suffer. Hopefully they'll fix ya up. When are they gonna invent the "Abdominal Zipper"!!! /community/emoticons/smile.gif Marcie(hvaccrohnie's wife)...
Hi all! I'm Tony's wife Marcie posting for him (he's @ work). We've been going back and forth on whether to have Tony vacc. Our county health dept. has some now and are scheduling appts for high risk...
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General practice doc told me I had pink eye only to find out from an optomotrist it was in fact Crohns flare up! Treated with steroids (oral) and eye antibiotics. Cleared up after a few days. See an...
Hi everybody! I've had Crohns since 1995. I am 39 now, diagnosed at 25 and have had my share of surgeries and setbacks! Colon removed in 1998 after being on medication since diag. First diagnosed,...