I am loving the "cold" weather. Yeah, it's cold but we don't have it anywhere near as bad as other States have it. Plus, my electric bill is almost $200 LESS then it normally is. I only turn the...
I have Hirschsprungs Disease. The surgeon in Tampa is questioning that though because I was diagnosed as a toddler. And HD is something that is normally diagnosed in infants. So he told me he doesn't...
It has a few different names. This is a procedure I am having done next Thursday. Had Botox, didn't work. Dilation hasn't worked. And biofeedback hasn't worked. My so called "third opinion" doc...
Unfortunately, I have had NO improvement at all in my symptoms. I have had it done twice. The first time I had it done, I felt a slight difference. But it only lasted about two weeks. Then I had it...
cookie74, I would love to know the answer to your biofeedback question as well. Now, I have had some sort of biofeedback. But it was more of an, I guess, Holistic biofeedback. It involved me lying...
I actually had one in that came out on it's own. I think. It was so weird. I was absolutely miserable with it. I had it less then 24 hours so I still wasn't used to it. I went to sleep and woke up...
Do you mean "Hirshsprung's" Disease? Because if you do then I have it. I think. My new doctor is having doubts about my diagnosis. I was diagnosed when i was 4 years old. Problem is, Hirschsprungs is...
So how do these medicines work exactly? I had another horrible attack last night. My problem is that I try to relax so I can sleep. But I have all these thoughts in my head. Not really bad thoughts....
Hi. I am 33 years old and was recently diagnosed with panic attacks. I started the birth control pill called Yaz about two weeks ago. It was my first time on it. Three days later I had my first...
I had my surgery open and yes it took much longer. Plus, my incision opened back up so I had to pack it with gauze until it finally healed. It was so gross. As far as the NG, better to have one put...
If it's not one thing it's another. My new " out of town" doctor wants me to get the actual biopsy slides from the subtotal colectomy that I had done almost three years ago!!!! Plus, I had a rectal...
I had one when I woke up from surgery. And THANK GOD! I have had many NG tubes in my lifetime. And I personally think the insertion is very traumatic. It's awful. Some nurses are good at it. And some...
I was at the Fleets website and they have a new product designed specially for cleaning only the rectum. It's called Fleet's Cleansing Enema. I have never used it. But it sounds PERFECT for...
Well, my surgeon hasn't diagnosed me with anismus. But I do have the problem of my rectum muscles not relaxing. It has a tendency to tighten when I'm trying to go. It behaves like a fist. Tried bio...
Thanks everybody. I don't have a colon so basically what she wants is to get my lower part, (my rectum), clean. I guess that way she can get a clear view to do the injections. I have an enema bag but...
I am having my very first round of botox shots tomorrow. But she wants me to take two Fleets enemas. I hate Fleets enemas with a passion. I have always had problems with them. I don't know if it's...
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2bColonFree, yes I have Hirschsprungs Disease. But the surgeon over at USF is questioning it because I was diagnosed when I was 4 years old. Which is unusual for HD. Most are diagnosed within a few...
answers4me2 yes I have had a defocography and it came back normal. I also had a deep tissue biopsy. Now that is something I have not heard much talk of on this board. So I wonder how many others on...
Ughhh. Why oh why didn't I stick with Cleveland Clinic? I went to the one here in Florida and Dr. Weiss scheduled me tests. I took them but my surgeon here near Tampa kept saying I should go to...
You all are nicer then me. I would be VERY upset with a doctor for not knowing BASIC information about colostomies/ileostomies/colectomies. And notice I'm saying "basic' information. Even if it's a...
Nonna, your problem sounds sort of similar to mine. I had a sub total colectomy though. And a J Pouch. My surgeon left about an in ch of my colon. Which was a STUPID move. The first several months...
As uncomfortable as it can be you DEFINATELY want the NG tube during surgery. Better safe then sorry. And if they put it in during surgery you won't feel it. And think about it, you'll still be...
Yes, fill out the packet that you can get at the Soc. Sec. office. Be prepared to be turned down. Then file for reconsideration. Chances are you will be denied again. Then file for a hearing in front...
I have had both a colostomy and an ileostomy. Not at the same time, of course. But the colostomy was so much easier to deal with. I only had one bowel movement per day. And weirdly, it was always at...
It's so true that the regular doctors don't know much about ostomies. Regular NURSES don't either. It's too bizarre to me that RN's have little knowledge about ostomies or even ostomy care. Most...
Wow. They want you to do all that? I also had a gastrografin before my ileostomy takedown. All I had to do was clear liquids the day before. That was it. Even when I finally had the takedown surgery...
I had this done yesterday. They told me it would be a week before the results come in. But I have a question for those that have done this test before. When they have the tube in and they tell you to...
I was also packing mine twice a day. My doctor would tell me to get in the shower without the packing and bandage. That way the shower water could get inside the hole. Yuck! Not fun....
When I had my ostomy reversed my wound opened back up. It was so gross because the hole was sooooo deep. We used a flashlight to look inside. It was nasty but also interesting. I remember it did hurt...
Yes, it's real rectum that's left. I was also wondering why that one inch was left but then I figured the surgeon knew what he was doing. Plus, for several months after the surgery I was having bowel...
Pelztier86, yes I had my colon removed about 2 years ago. They left one inch though. But I am right back to struggling with constipation. Right now I am on 4 tablespoons of lactulose. And it is...
Janiepain, I have had MANY tests prior to this. My problem ( Hirschsprungs Disease) has been ongoing since I was 4 years old. So I have had every test there is. But yes, Dr. Weiss wants to redo all...
Well, I am on my way home. My appointment at CC with Dr. Weiss was today. It went well. The drive was 4 hours though. My appointment was at 2pm and we got there at 1pm. They told me to arrive at 1:30...
I still had poop in me when my colon was removed. Only, I didn't know it. I got several sessions of colonics done as a prep because lasxatives, including Golightly, do NOTHING for me. I thought I was...
Tinkerbell, I didn't go to USF because both my surgeons have been consulting with them for a long time. They already know my case and haven't had any extra suggestions so I'll go to CC for the...
I am going to CC because I am back to constipation. Even though I have a J Pouch/subtotal colectomy. For some reason, my J Pouch just won't empty the way it should. My surgeons here have tried...
This is such a coincidence. I have an appointment at the Weston Cleveland Clinic for October the 28th!!!!! I am not looking forward to the drive though. I live in Clearwater, Florida and google maps...
This is new. I had no idea you could have physical therapy to learn how to move your bowels. I had my subtotal colectomy/J Pouch almost 2 years ago. Had complications a week later and had to get an...
I am 32 years old with Hirschsprung's Disease. I ws diagnosed when I was 4 years old. Have had 21 operations. Depending on the results of the CT Scan I had a couple days ago, it will soon be...
Hello. I have (had) Hirschsprungs Disease also. I was diagnosed when I was 4. I am 30 now. My HD is pretty severe. I have had 21 operations for Hirschsprungs. Including 4 colostomies and 1 ileostomy....
I have a condition called Hirschsprungs Disease. Basically that means I was born without enough ganglion cells. So I rarely ever got the urge to go and my colon couldn't push the stool out. So I was...
I had my ileostomy reversal surgery about 6 weeks ago. The first few weeks were great. My tummy nice and flat and I was going about 4 or 5 times a day. I felt like I was emptying out prety good but...
My incision was closed with staples after my surgery. Things were fine for a day or two but after I got home it started seeping. That's when I went back to the doctor and he opened it up a bit more...
Has anybody else had to suffer an open wound after they got their ostomies reversed? about a week after I got home I noticed this thick brown discharge saturating my bandages at the incision site....
Nights were always busiest for me. I was up every 2 hours emptying. So I got very little sleep at night and was sluggish during the day. It was a blessing though because if I slept straight through I...
It's weird. I had my period about 2 weeks before my last surgery. Then for some odd reason it came back on the day after my surgery. I was in the hospital 6 days and I bled the entire time. Plus I...
You can find TC videos all over the place. Google and yahoo video has a few tc videos as well. There is also a site called or-live that has some videos. I really want to see an open colectomy. It's...
I waited 4 months for my ileostomy reversal. It was an emergency ileostomy and my doctor told me I should be ready for reversal in about 6 weeks. Two months tops. But I kept putting off the reversal...