I crouch down in front of the public toilet and empty that way. That way nothing touches the toilet, and nothing but my feet touch the floor....
I was diagnosed with Crohn's, but the disease was only in my colon. My doctor is the one who suggested the ileo surgery, and I am glad he did. I was never able to get into complete remission, but now...
1. I felt recovered after 5 and a half weeks, and was in the hospital for 5 days. I live with someone, but could have gotten by without her. It is more comforting to have someone there just in case...
That is a beautiful story. It brought tears to my eyes because it is so similar to my story and how my fiance feels about me. I think she deals with me having an ileostomy better than I do! Thank you...
Do the surgery. I had the same symptoms for years and the medications didn't help. I went with a permanent ileostomy though because the pouches can cause lots of problems for a lot of people. I feel...
I buy a new guitar or bass guitar. I am a collector afterall! I have 15 of them now. Luckily it hasn't put me in the poor house... yet!...
I had it done (sewn shut) with minor pain afterwards and no pain now (almost 4 months later). Most of my Crohn's was in the rectal area, so I had no choice. I'm glad I did it. I had no complications,...
My stoma is parallel with my belly button on my right side. I wear dress pants with a belt every day, and don't have a problem at all. I put the bag between my underwear and my pants so it isn't...
I had the surgery, and never felt sick like you are saying. I had a bit of heartburn, but that was it, and they gave me something for that....
The mouth sores are definitely Crohn's related. I've never had them, but know someone who had them so bad they needed to be hospitalized and fed via infusion. Good luck with it, but Crohn's meds...
you are simply eating too much too late. Try making lunch your large meal and see if that helps. I eat as little as possible at night so that I don't have to wake up at 3:00am to empty the bag. It's...
Both companies are very generous with their samples as well with fast deliveries. It amazed me how much free stuff they will give you! Frank...
It is a terrible disease, and I see a hypno-therapist to try and ease my anxiety about the Crohn's coming back in some way. It was always only in my colon, so I am hoping it doesn't decide to creep...
sarmiento... I was in the same boat as you with proctitis, but IBS on top of that that gave me pain throughout my entire colon. I had it removed recently, and I'm glad I did so. If you think life...
I use the Hy Tape and tape some cling wrap around the entire wafer and bag. Any cleaning to that area can be done with a wash cloth later. The Hy Tape is your best friend! It keeps everything dry if...
I use the Hollister type velcro resealable ends, and I haven't had one come open yet. I have come to definitely prefer the Hollister bags to the Convatec. That double velcro stays put no matter how...
Because Crohn's can occur anywhere from the mouth to the other end, any type of pain or cramping would be a pretty good indicator that something is up (a flare up that is). Blood in the bag is good...
I just ordered one of the wraps fro ostomysecrets. That looks like a great product!!!! Thanks for the info people!!! Frank...
I don't remember waking up after my surgery, but I had terrible chronic pain from Indeterminate Colitis beforehand. Now I don't have any pain from that as there's no more colon. The pain after the...
I had the same problem with Ambien CR, and my surgeon prescribed it to me not more than 5 minutes after explaining that coated pills or time release tablets don't work very well with ostomy patients....
I was advised by my surgeon to not eat as much as night. You empty your bag during the day, but during the night, that can be 7-8 hours of not emptying it which causes it to get really full. Try...
I have just had a complete procto-colectomy with ileostomy. There will be no reversal for me. Ever since I was diagnosed with Indeterminate Colitis back in 2000, my nerves have been a wreck. I have...
My idea is to always look around like it was someone else. So far that's worked great! Frank R....
Reading through here, I fell like one of the lucky few. I just had the complete procto-colectomy with ileostomy on 10/16/09. I just had the staples in my backside removed last Thursday. I also have...