Everyone's right, there's no "best" surgery for UC, it's whatever is best for you : ) I actually chose to have a permanent ileostomy and LOVE IT!!!! I named my ileo Penelope, and have never regretted...
I know...purple covers several other Dx but since CD and UC are within that given color it's still great that she's representing!! : )...
Hi there...I use my same accessory system being Hollister 88300 or 88302 with an Eakin Seal...but when I swim or do water activities I cover the edges of my wafer with 3M transpore tape and then use...
I just wanted to share the amazing ambitions of a young woman at MU in Columbia, MO...she is helping to promote the awareness of Crohn's and Colitis by wearing a purple dress every day of this month,...
I think this decision is very courageous of you! I too was quick to opt for surgery; however, I was on 40mg prednisone for over a year, 5asa, and Remicaid (had just one infusion before surgery talk...
You're having a baby?!? How wonderful!!!! /community/emoticons/smilewinkgrin.gif I am so happy for you guys!! You'll have to let me know the fun things Elliott says about having a baby! I don't have...
Hi everyone...I hope you are all doing well and out living life to the fullest! I have actually been doing just that, which is why my HW involvement has been so scarice. I truly feel very fortunate...
So...I've been pretty fortunate to not have long term bootie pain since having my inner bootie removed. In fact, I very rarely feel much of anything in that area anymore and it is so super sweet!...
I wanted that disease gone too, so I understand exactly how you feel : ) Just make sure you speak with your doctor about the pain management after the surgery while in the hospital and once you're...
First off...congrats on finding a new love interest! : ) Very exciting!!!! Secondly, it does sound like you are both in a good place in the relationship and you are starting to move onto another...
Hi there! I agree, your stoma and belly will remain swollen for awhile...I'd actually give it another month or so, and even then you may find your tummy is still sensative with where your pants and...
You're funny Chassity...living on the edge!!!! :turn: So my pickles are pretty scrumptious and absolutely NO issues! Yay!!!! I will say though that one food that never fails to cause me tummy trouble...
You're braver than I am...I still avoid eating whole carrots and strictly stick with the bag of shredded ones. I hope you're tummy is feeling better! What do you guys know of pickles? Like the...
Hi guys! I haven't been on much b/c I am so super busy with work and school...I literally haven't showered in over two days :shocked: b/c I've been strapped to my laptop trying to get caught up on...
You have such sweet precious words. :smurf:...
I am so glad you are here too!!!! Everyone on this forum is absolutely amazing and I seem to turn here for the ups and downs...I actually just logged on to vent about silly things that people around...
I just use a damp cloth and it normally comes right off...and at times I'll use my nail too. Nonetheless, I adore them and if they ever cause an issue during removal I shrug it off b/c they are so...
Oh, I am just so so so sorry for you and your family. You definitely are in my thoughts....
YAY!!!! :smilewinkgrin: Isn't is a wonderful feeling just to know that all that pain and discomfort is actually going to be gone!?! I am so so so happy for you!!!! :smurf:...
Pam I would be super annoyed as well, and my thought is that if they do not use the proper vocabulary are they really compitent enough to be my nurse? I have had two experiences from two different...
Thanks guys! I tried lifting weights and jogging about 4-5 months after my surgery, and that was down right silly. :nono: My tummy hurt so flippin' bad! I definitely have been taking my time and...
My accessory doesn't move at all. And I don't think it ever makes Penelope bleed...are you getting a proper fit? To keep my accessory secure 1) I use a one-piece Hollister 88300 new image LOVE IT! 2)...
I'm sorry to hear of your goopy poopy too! I had a similar middle of the night experience where nothing got on our sheets...I didn't understand either! How in the world could I have been plastered...
I RAN 20 minutes on my TREADMILL!!!!!!!!! :smilewinkgrin: Okay okay okay...I know it isn't much for many of you, but for me it is such an amazing accomplishment! I am finally getting my body back!...
My definition of the proctocolectomy is the removal of the colon, rectum, appendix :wink: and anus...but ALSO it's FREEDOM!!!! :yeah: :smurf:...
I agree...having the dump master take pity on you is quite hillarious!!!! :smilewinkgrin: :smurf:...
I've always been determined to continue for a doctoral degree, and now that I have Penelope I am determined even moreso. I now have a passion for providing therapy/counseling for individuals, couples...
I can't remember what Chassity does before showers, but I use 3M transparent (water proof) tape around the edge of my wafer. It just lengthens the longivity of the wafer from the external aspect....
Hi there! I'm just going to jump in about the bikini body talk :smilewinkgrin: I ballooned during my illness b/c of the prednisone...after the surgery I lost tons of weight BUT because I am now able...
I've not tried AE jeans...I'm assuming they have long and x-long? My dilemma is always length...I can wear kitten heals with the Maurices longs, but normally get BKE or Lucky jeans because they come...
I wear the tighter tanks as well...almost constantly...it smooths my accessory wonderfully! I've also found a few pairs of dress pants that hit right at or above Penelope and I love how I look and...
I agree...we no longer use the detergent b/c it is super expensive, but the stain remover is AWESOME!!!!!!!!!!! And the scent is so soft and comforting...LOVE IT! So, yep...invest in some Dreft...
I LOVE Dreft! My son is 2 and really is not making stains like he used to, but I keep Dreft stain remover stocked both in the bathroom and laundry room! I use it for EVERYTHING! :yeah: More recently...
Your words are beautiful and your story is inspiring. Your perspective and experience with Ulcerative Colitis will hopefull bring some ostomates awareness and understanding for those who supported...
I also use the bra/tanks that have the actual bra built into the tight tank. They're nice too. Here I can find them at discount stores for $10-$20. I really like them also b/c they keep the top of my...
Oh I know! I believe we all go through adaptations and adjustments constantly. For instance, I am now adjusting to my child wanting to be independent, and so while I work on my laptop he now sits at...
First off, I like your saying about choices and decisions!! Secondly, sorry you have orange ankles! And I'm guessing an orange bed spread? That's really a bummer. A couple months after my surgery (so...
Well, that's exactly what we all want isn't it...something completely different to occur after our bout with CD/UC!?! :wink: Here's a funny...my skin has been really dry this winter, and I haven't...
I use tighter tank tops...like the ones sold in the intimate stores/departments under almost every top and I've started to buy pants that either right at or above Penelope. I believe the tighter and...
I don't know what caused the sore, but I get little redness areas and semi-sores b/c of leakage all the time. The Eakin Seal I use heals everything up within a few days for me...I'm sure others have...
Well Happy Anniversary!!!! I know it probably wasn't an ideal evening, but experiencing the one year mark is such an empowering feeling! And I agree...the support given from HW was invaluable to...
A hot shower makes Penelope swell up too...I used to change my accessory after showering, but started changing it 'dry' (so to speak) and just use a wet wash cloth and then another dry one to remove...
I was singing along as I read each of your posts! :yeah: I had never really considered flying and all that would go into packing the emergency kit for the flight. So, that go me thinking...(don't...
Well said darksky! :yeah: I too am just eternally greatful to no longer experience the pain and torture of UC...my accessory my most valuable asset! :smilewinkgrin: :smurf:...
I agree with everything everyone has mentioned...I recently had two days of watery output and after a heafty dose of Immodium I started to feel tons better! I hope you get to feeling better very...
So you don't like it when our appliance/accessory, etc. is called a bag? I'm not trying to be snotty or anything...just wanting to fully understand :wink: :smurf:...
I guess I never really have learned much about the many other stoma situations. I just kind of grabbed the info that was important to my situation and ran! This is turning into a super educational...
Broccoli :devil: Corn :skull: I fear those two the most...there are definitely ways to get around it, which I do...but their whole form, or if raw, crunchy or lightly steamed....hell no! :shocked:...