Jenise...Thank you so much for posting the pics! WOW what a crazy colon! Mine looks like yours near the rectum area but my transverse looks different. Mine is all dilated so it doesn't hang. It is...
Tinkerbell...I wish I could hug you right now. Thank you so much. You have made me feel better about the surgery ALOT! Did you have to have a bad for a while? I think that is the direction I am...
Sorry...it mean know what I mean...
2much2bear....it is unclear if I have CI. My sitz marker was done wrong, however on day 4...I still had all my markers in me. Most had made it to the sigmoid where they stayed..and I still had 4...
Hey everyone!!!!!!!! Not sure if you all remember me or not. I was on here a while back and haven't been on due to trying to get everything straightened out. Before I left, I was telling you all how...
I would venture to say that it is from the surgery itself. I had surgery to fix a rectocele and have had a terrible time since. There is a muscle in your pelvic floor called the levator muscle. It...
Hodaya....so glad to hear that you are doing much better. Too funny about the stoma noises. I bet it sounded really weird....
Hodaya!!!!!! So glad to hear from you! I am so glad you aren't in horrible pain and that the surgery went good. I would talk to your doctor for sure. I am confused though. What is an end illeostomy...
Hodaya.......Good luck to you girlie! I can't wait to hear how you feel. I am sure everything will be just fine! I am glad Lizzie is going home. You always feel so much better at home even when...
Tracy......OMG.....I was laughing so hard, not because of the shock you were in but that is the same reaction I am sure I would have. I told my husband after looking them up...that I thought I would...
Hi Carly and welcome to this site. I am so glad the ladies are making you feel so comfortable and giving you great advice. I love this site. Pelzt.....I had NO idea you had so many issues. I am so...
Hey ladies...How is everyone? I know that I have not been a frequent poster and I do apologize for that. I have read every post that is posted every day though. I often pray for lizzie and am glad...
Jenise....I really think that you are having the problem because of the mesh. How much colon did they take out? I also think I was having an initial first time little rectal prolapse when I kept...
Hey everyone...First I want to say to Lizzie that I am so sorry you are still so sick. I am praying more than you could imagine. I haven't posted in forever because I felt bad for so many of you and...
OMG....I just logged on here and I can't believe about Lizzie! I have been on vacation and had no idea. Poor thing. I REALLY hope they get her good and fixed up so she can move on with her life. You...
I am looking at having surgery for the same exact reason. I have had horrible issues for as long as I can remember. I am 32 years old and the farthest back I remember was being 13 although my mother...
answers4me....my resting pressures were not high at all..They were all normal. What does you having the high pressures mean? I didn't feel like I had to fart. I was definately cramping and feeling...
answers4me.....I am SO sorry that you have to do the defecogram again. Hopefully though this will show your problem and you can be on your way to getting it fixed. I knew a girl that had...
Rosemary....I am SO SO SO sorry if you took my post the wrong way. I wasn't speaking of you at all if that was the impression I gave you. I meant the world is full of people that think that docs know...
answers4me....First of all HAPPY BIRTHDAY!!!!!!!!!!!!!!!!!!! Thanks for asking about me. I am having the defecography and anorectal mamometry on friday. I know I don't have a rectocele because that...
Leslie...I really am not sure what causes the cramping to be so bad. The doc knows about it. At first I think he thought I could have Hirschspungs and I am still not sure if he still thinks that or...
Rosemary...You have DEFINATELY done your research! I bet it was so redundant and time consuming to learn all the while being interesting too! I will definately call the radiologist and ask. I don't...
Rosemary....I had NO idea what you have been through. I tried reading back as much as possible but there is SO much to read. You poor thing! Good for you though taking your rights into your own hands...
Well went to doctor today and he had no knowledge that I had even called :rolleyes: Anyway I have to have an anal manometry done as well as the defecography. Has anyone had the manometry done? Does...
I agree totally with answers4me. This plan was not well thought out at all. The people that are going to benefit from this is the same people that already get free healthcare through the state they...
Lori...I am so happy that you are going to call him. I know it is scary but only you know how you feel. By the way you talk on here, you really want/need this surgery and I wish you nothing but the...
Sorry I have not been on here. Just nothing to report or anything going on. I have been waiting 3 weeks for the surgeon to call me back to see when my defecography is. I am making an appointment to...
Jenise....thank you so much for replying. I think you misunderstood. By day 4 all markers were still there. However, most were near the rectal opening with 5-6 of them still at the beginning of the...
Hodaya, Thank you so much for taking the time to answer me. I am really unfamiliar with the starr procedure. I had a severe rectocele and after shoving everything back in place with the mesh, I...
Well just got off the phone with the doctor. My sitz test was normal. I am very happy about that. Now he wants me to do the defecography test. I am so mad, sad, angry that I could cry. I knew that he...
I am new to all this as well but from reading I will try to help you. Most people that I have read on here who have CI get their whole colon removed. Most who have had the subtotal or colon...
Leslie....Good luck tomorrow girlie! I will thinking about and praying for you. Judy...I am not sure if I have pelvic floor dysfunction or not. I am sure thats the line of testing next. I really...
I am praying that it works for you Leslie. Please keep me posted. I will be praying for you and can't wait to hear how it went. Shannon...
Hodaya...That is so crazy how far down yours was prolapsed. You must have been feeling so much pressure down there. I don't think that is my issue. On day 1 I could see some of the markers in the...
Thank you all so much for getting back to me with my questions. I have to admit, I am getting a little concerned about even having a surgery since it seems like so many of you are still having...
Oh Leslie...I am so happy that you are finally at the end of all of this nonsense. You will have to let me know how your surgery goes. So far I know I am looking at a subtotal colectomy. The marker...
Leslie...what were you taking the golytely for? Just to clean you out? What did the doctor every say with regard to the sitz test? Tinkerbell....where are the pics of your colon at? What kind of test...
Hello everyone and thanks for reading my post. I had a day 4 xray today to see where the markers are at. I have a very long redundant colon and issues going. This has gone on for years but I always...
Jenise....I just had my xray. Today is day 4 and most of course all the markers are still there since I have not gone. I am a little confused by what I saw. A lot of them are down like they want to...
Marisa....did I read right that you had an open colectomy and still need to take miralax? How come that is? Tomorrow I have my xray for day 4. Still have not gone to the bathroom yet...very annoying...
Tracy, Thank you so much for replying to my post. Sounds like you have been through the ringer as well. I think I may have an outlet problem...not a bad one...because sometimes when I have to go, I...
Hello everyone. I am new here and have been reading all the previous posts as much as possible. I have spent 4 hours online today alone going through them all and I am still on only part 7. There is...