Your welcome to have mine....
Its okay to switch, but stay on top of your supply company. Mine sucks, and if I make a modification it can take them weeks to get their $hit together. They do have to get a new insurance auth for...
Ive had one inserted while I was awake and one while I was in surgery. The scene when I had mine inserted while awake was similar to Linda Blair turning her head around 360 degrees then projectile...
Im not gonna waste my time arguing over the semantics of the name. It is however the reason they refused to do the surgery....
I hate to burst your bubble, but the nurse was right. It definitely can come back; Just obviously not in the colon. Do a search on the internet for Pyoderma Gangrenosum. You wont be too thrilled with...
Pretty normal. I felt dead tired for about 3 months....
I dont think the Sinus Inversus should effect your surgery, but clearly your physician should be familiar with it. It probably wouldnt be too good for him/her to open you up and have everything on...
The best suggestion I can make is locating a hospital in your area that treats people that cant afford their bills. For example, I live in Los Angeles, and we have Harbor UCLA medical center. When I...
Ive been on a few cruises now. Before you even get in to the check in area, a porter will take your bags. Be prepared to tip about a dollar a bag, and then dont expect to see them again till after...
Hey Everyone. Im about to go on my first commercial flight since becoming an ostomate. I was reading through this post, and saw that everyone said not to bring your scissors. I did a quick google...
Hi there. Its awesome that you are being so helpful for you husband. I know I couldnt have gone through my colectomy without my wifes help. One thing I do want to mention, is please make sure your...
I always gift good bottles of wine....
I had mine out on my second surgery. Recovery wasnt quite as bad as the first. I had severe inflammation in my rectum going in. It took about a month post op from the 2nd before the inflamation went...
These are all great questions. Addressing your first question (How long does it take to get used to) is different for everyone. It took me about a month to come to terms with mine. It doesnt really...
Congrats. I look forward to having my takedown. I was suppose to have it next week, but the gastrografen came back bad, so I have to wait another 3 months....
Thats a great question. I didn't find out till about a month ago. You can definitely use convex bags with a regular stoma. And they work amazingly well by comparison; at least for leaks. My skin is...
Please go see your surgeon right away. Its possible that its a condition called Pyderma Gangresa. It is a common systemic problem from Ulcerative Colitis and Chrons disease. If it is, then they will...
Im not trying to be a jerk, but Ive called mine a bag from day one. Ive never had anyone make fun of it. I prefer to call my j-pouch a pouch, so I have a distinction between the two....
Hey OzChronie, I didnt have a chance to read all of the responses to your question, but I felt I might be pretty qualified to answer you. Just like you, I used to be a huge binge drinker prior to...
As my last UC flare up started, I was hired on perm to an amazing corporation. Thank god for the insurance, because I had no idea, this flare up would be my last and would end up in a colectomy. I...
It all depends on you. If you can make it last, and dont get skin breakdown for a week, congratulations. Go with that. When I had an end ileostomy, I was able to get a bag to stay about 3 days with a...
Its most likley not the stoma, but the skin around the stoma. In fact, your intestines dont have nerve endings, so you cant feel them. You'll need to check two things. First if the skin is broken...
I had substantial pain after my first of 3. After the second part (removal of rectum, and j-pouch creation), it subsided after about 5 weeks. Did you have the 2 part, or 3 part. You can look at your...
My vote is for Hollister M9 as well. It really does work, and is pretty inexpensive. Plus usually insurance covers it....
Im not quit finished with this book. its about 300 pages, and Im on 260 now. I decided to buy this book to get another persons take on going from Ulcerative colitis, to an Ileostomy, and eventually...
Had that happen once while I was at a restaurant with my wife and mother in law. Not cool at all. I use hollster one piece Velcro now. I'd never go back to the clip bags....
This will probably be my final update on this topic for a while. I wanted to let everyone know that my doctor has cleared me to go home tomorrow. He would have let me go home today, but I figured...
Ladies look the other way please. Yesterday I had an erection start to form while I was urinating. I'm prety sure tats a clear indication that I wont be having a problem in that area....
So far none on this or the jpouch forum has claimed a problem. I was fine after part one of three. I just got my cathetor removed after two of three. I should know if I'm fine within a week. There...
The second step of a three part jpouch is a proctctom. Withouth actually creating the pouch I wouldd say the proctectomy would be about the same as the original colectomy....
Ducridr-there was lots of warnng. About a month after the first surgery I started having substantial pain and bleeding from the rectum. I spoke to my surgeon at that time. He didn't seem concerned...
Gemen sunset, double check with your surgeon about the prep. It's probably a mistake as you shouldn't need it. Surgery went really really well. I'm in much better health than I was last time. One day...
That sounds like a very wise idea. I will do that....
I had my surgery done yesterday. It went much better than the last surgery because I was in much better health. However there was a problem that may turn in to a big deal. My rectum was still...
Thanks Trigirl. Yeah, Im definitly not trying to steer anybody away from them. It was just my experience. I was actually really hopeful that it would be a good match for me. Anything to make an...
Thank you all for the well wishes. I dont have any prep. I asked several times, and every time the answer was no. I just recently read somewhere that the main reason people with ileostomy's dont prep...
I saw someone post about Cymed ostomy bags about 2 weeks ago, so I requested a sample. I went ahead and tried a bag and sadly have to report that it just wasnt for me. The bags look very nice, and I...
My 2nd of 3 steps for the J-Pouch is being done at 7:30 am Thursday morning. I'm very excited to get it done and over with. Its the last majorly invasive surgery for me, and puts me a lot closer to...
Depending on how bad your colitis was before, I'd get it removed sooner than later. One month after my colectomy, my colitis came back severly in my rectal stump. I have been in constant pain since....
Here is one suggestion. Maybe try to find a colon rectal surgeon who is willing to do the whole J-Pouch in one procedure. It is possible, but most doctors dont like to do it. Considering your...
Will do. Gotta borrow a WLan card from a friend so I can use my laptop at the hospital....
I dont know how I could have missed that before :eyes:...
Just wanted to say hi to everyone. I had my colon removed about 4 months ago now, and am living with an Iliostomy. Ive moved over to the Ostomy forum, and dont look at this one much any more. My...
Whats Pancaking?...
Cool. Thanks for the info. Im really looking forward to it, because the UC crept back in to the remaining rectal tissue about a month after my first surgery. The rectum will be removed on the second,...
Well 10 days and counting. My second part of the J-Pouch is coming up real soon. The first part was done in September (Colectomy with Iliostomy). This time they are going to remove the rectum, and...
Whats the deal with this site. I hear so much about it. However, I can not find the forum on their site. Does anybody have a direct link to it?...
Ive found that Gatorade makes my bag fill up with gas big time. Since I get dehydrated, I drink a lot of it. I dont really like drinking lots of plain water. I just deal with it. No big deal at all....
Thanks for this info. I just requested a sample of these. Im hoping they work good....
I had a cold this week. Exact same thing happened to me....