Hi there, I just had a question for those amongst us that go swimming. I am particularly after men who have a high stoma. But would love to hear everyone else's views on the topic. Basically, I have...
My STN always told me I could wear my bag (one piece) for up to three days, but I could change it everyday if i wanted to. Basically said to go with whatever I feel comfortable with. So I change my...
So I had a good night. Drank half a bottle of vodka (it was a small bottle though) as we went to two BYO places for dinner and dessert before we went out into town. Gas wasn't a problem when I was...
5 Leaks in 4 weeks! Awesome!! *Bangs head against wall*...
yer that's right. I have a one piece and was told I can change it every day or every second day (max). I started off dong it every second day, but now that I'm more used to it I prefer every day as...
Yer sorry I didn't realise there was a rule for this forum that stated that we weren't aloud to comment on old topics. Although this topic is still very relevant if you ask me, especially for new...
Yer sorry I didn't realise there was a rule for this forum that stated that we weren't aloud to comment on old topics. Although some of them are still relevant if you ask me, have you figured out if...
Um, no I've never heard of them. They have things that I call 'delicate bags' you put delicate things in them and then wash them inside the bag so they don't rub on other stuff etc, but that wouldn't...
Hi Allison, I'm in Newcastle (NSW). Home of the worlds biggest coal port! :( Where did you sis move to? Thanks for the suggestion too! I'm going to give the vodka and cranberry juice a go! If that...
Truth be told, I had the 'community nurse' coming to my house for a little over a month after I got out of hospital (I got out a month after I had the initial surgery). Although the head of the ward...
I'm not too sure of what the difference between mucus and bile is, but I occasionally get blood. Only just found out that thats because I still have some Crohnes in my rectum. I didn't know that I...
I can kinda understand the drinking out of a straw, but why does drinking out of the can cause gas? OR, is that just because drinks in cans are usually carbonated and carbonated drinks cause gas? I...
I made it four months without leaking. Until about 3 weeks ago. Now I'm averaging one leak a week. Last night was the worst. The first two happened either when I was at the end of my shift or when I...
I don't tell people either. My close friends know and so does all my family. But I haven't told anyone else. But, I have a feeling a few people form work know, as they know I've been sick and they...
Grand Theft Auto FTW! My favourite would be GTA: San Andreas! I can't wait till they improve the two player game modes though, it'd be awesome. One person could be getting chased by cops while the...
I had Crohns in the small intestine. My surgeon told me that if it was Ulcerative colitis I'd be 'cured'. But with Crohns there is a 20% chance of it coming back somewhere else. Clearly I wish I had...
Haha "belly shots" :p So, I'm going out Friday night into town. I have not drank anything since the weekend before my surgery (4 months ago). So I know that I'm probably going to be even more of a...
Oops, I meant "waistband" :p And its the one on the bottom of page 8 if anyone was curious as to what It is... http://www.omnigon.com.au/uploads/brochures/Omnigon%20Stoma%20Support%20Guide.pdf...
Bottom of page 8 on this pdf is a picture of the waistband that I am using: http://www.omnigon.com.au/uploads/brochures/Omnigon%20Stoma%20Support%20Guide.pdf It's an elastic type material, so it...
It is a 'Comfort Plus Support Wateband' thing... Thankfully I ended up washing it in the washing machine by itself (after soaking it). I say "thankfully" as the black colouring ran all through the...
I recently got one of those stretchy wasteband things. I was going to come on here later and rave about how fantastic they are. I mainly like them as: 1. I can wear short shirts that would usually...
You are absolutely 100% correct. I did some experimenting and you were right. Output has been heaps better since I stopped drinking apple juice every morning! thanks! (although I do kinda miss it :p...
I had my second round of surgery because there was a kink/twist in my small intestine (just before the stoma). I had always assumed the surgery was not done right or something, but now that I think...
haha, I was thinking the same thing when I went to post that, which is why i thought i'd specify that the stoma wasn't in my pants! hahaha Hi Rosemary! Um well I haven't actually danced since my...
Was wondering if you've ever hugged someone and they could tell that you have something under your shirt? ie your ileostomy. Only my family and closest friends know I have an ileostomy. Other people...
It's definitely the large one. I just noticed on a bag I was cutting the hole into that it says "Maxi". So you were right, it's the Maxi one! :)...
Actually I remember my nurse told me the same thing (about putting a lot of toilet paper into the bowl) but she only said it was for the noise. I didn't quite understand as I wasn't too bothered as...
haha starfish! I might have to try that one next time! You're right. I did some searching and actually found mine on the net! :D Its either the large or medium one, definitely not the small one as...
Thanks for the replies! So I guess I'll hopefully be more confident once the swelling goes down. My stomach looks funny at the moment, its swollen so it kinda sticks out when i stand up (I've been...
I never knew what I could eat and I still don't (it's been 2 months-ish). I know i've been eating particular types of food and I've been safe with them but I want to have variety. I want to be able...
Was it a raw carrot or cooked one? The STN is always telling me i should chew really well. But, I like quantitative instead of qualitative directions. As in I dont know what she means by "really...
I also have another 'party trick' I guess I wont be doing ianymore with a stoma. A friend of mine (whom throws the awesomest parties) has one of those giant exercise balls (and she has a three story...
Wow Wade4! I can't not eat after 6pm! I usually have dinner at 7pm, but even if I stopped eating after dinner i'd get hungry again. I'm not sure how soon after dinner you go to bed though, I usually...
Wow I wonder how people do it standing up. Good shots I guess :p...
I haven't really noticed if it occurs with certain foods. But I'm going to start writing down what I eat and when It hurts when it passes through the stoma and hopefully I may be able to figure out...
I originally got my ileostomy on the 1st of Feb but it was redone about 4 weeks ago... My stomach is still swollen where the stoma is and next to it is a giant deep cut from the second round of...
Having only recently been released from hospital, my main priority at the moment is eating. I lost a lot of weight (min=44kg), didn't eat for weeks at a time and ended up having to take TPN (total...
Hey! So I was out at the shops the other day and it got me thinking... How do other people empty there bags? I was in hospital after my surgery for a little over a month. While I was in the hospital...
Hi Guys, Sorry its taken so long to reply, the last week or so hasn't been the best... I'm still in hospital and going in for more surgery tonight. But I'll get to that in a minute... I'm pretty...
I'm Back! Soo an update, had the surgery on Monday. Still in hospital. A lot of the nurses have given varying average times in hospital of a couple of weeks to 2 months. My Surgeon has told me as far...
haha, love the shirt story! And this is excellent news from all! I must ask, are Jello Shots like Jelly Shots? I think Americans call jam jelly though, so that probably confuses my question though,...
So I don't drink very often but when I do I drink a lot, like a real lot. I'm a self confessed binge drinker.... I'm honestly not one of those people who will have a beer after work and sit down...
Heeeeyyyyy! It's ok about me being confused, it is hard to explain some things over the net... and no you're not being rude :p I really do appreciate all the comments as you's are all on here in your...
Ahh ok, so it basically wont be able to get to the bottom of the bag, I think this is ok, I tried walking around with the bag she showed me on and only a small part of the bag was covered by my...
Ok so now I'm just even more confused! :( I've looked at heaps of photos on the net of people with stomas and they are basically in a pretty similar spot in relation to the belly button. I have a...
I can't really drink carbonated drinks (the gas), plus anyway, I hate the taste of beer! And before I became really sick with crohnes, I had a bad experience with bourbon.... *shudders*. As such, I...
Here's a random question: How often do you's hiccup? The reason I ask is that I don't remember a day that has gone by that I haven't hiccuped atleast once. I do still get normal 'hiccuping fits'...
Hi all thanks for the help! I went and saw the stoma nurse today and I now have a big black dot on my stomach ready for my surgery in 7 days. It's basically 2.5-3cm below and 4.5 cm to the right of...
hahaha "smells like death warmed over and killed again!" love the analogy!! Sorry I haven't replied to you all, i've been heaps busy with my new job (shame I'm guna lose it with the operation being...
I lol'd :p...