i definatly find that walking around a bit after u eat helps move everything thro. If i jst sit i feel bloated & i can feel the stoma moving etc. Its gross. If im moving around i dont really feel it....
hi guys, so i have a perm iliostomy.. and i was wondering if anyone has been on the pill with it and if the pills is still afective??? im going on the leveline i think and il be using it purly for...
hmm, interesting.. i live in Australia tho so im not sure if ppl r on top of it here like over there? i was also diagnosed like 10yrs ago after havin problems for a yr(aft i took the drug)so im...
so i was jst reading an article about an actor who is sueing a drug company after he look the drug Accutane which is an acne drug. he believed the drug caused him server Crohns or UC after(it dosnt...
ur welcome sabrina, hope ur doing ok. so far answerme its the same... the stoma is actually beta, its sits better on my tum. But the output is the same so not much diference. Do have a perm ilio??...
wow emptying hourly day n nite?? how tiring! i usually only have to get up once thro the nite depending on wat iv eatin at wat time like the rest. its not to bad,...
somtimes i get confused with the output, mind also somtimes goes from total liquid to think output... how long do u think it wld take for food to come out into the bag from the moment u eat it?? like...
well iv js had a my colon,rectum and anus removed 11 days ago and i still find it hard to sit which is expected/ Its not unbarable tho and the pain killers def help. Iv been told itl be a few more...
hi Sabrina, u poor thing, the waiting game really does suck ass but its really all u can do, that and walk. ur probably sick from hearing the word WALK but every1s right it dose help. I jst had a...
hi guys, So every1 on here has been so sweet to me prior to my big surgery. Just wanted to let ppl know that i had a protocoloctomy 10 days ago and am already home and doing ok. bum is sore as is the...
wow congrats Brian!! im a bout to have the same surgery in 2 weeks and i hope i do as well as u r so far. 80schick i jst saw that u also have had a proctocolectomy..how was ur surgery/recovery?...
wow! all such good advice, im also taking this in as like Christine.. im also have a protocoloctomy on the 28th!! my doc/surgions have been really good so i think i have all my questions answered atm...
got it...
am a little confused cecilia(or any1). Wats the diference betweeen a Colectomy aaaand a protocolectomy? which one am i having? lol. i jst say colon/rectum removed.....
am a little confused cecilia. Wats the diference betweeen a Colectomy aaaand a protocolectomy? which one am i having? lol. i jst say colon removed....
lol ta cecilia, ur a gem....
eeeeeeewwwwwwwwwwwwwww. but funny...
il second traceys questions. and welcome Adam.. u r one brave kid!! i hope u r having a speedy recovery. R u saying that u have had ur colon removed??am a bit confused wat u mean by more surgery and...
i was thinking the exact same thing summerstorm. and i dnt even know if thats the cause!!im sick of worrying about it,10yrs on and i still havnt been able to figure it out. Dam Crohns. Thankyo for ur...
thanku cecilia. ur words help alot. i jst pray that it works as well for me as it did for u. thought id jst post a diet link i see wat response i get. i dnt know why im bothering..i guess my mum has...
so i have Crohns/UC and i have a temo ilio for those who havnt read. im scheduled to have a protocoloctomy(um excuse the spelling) on the 28th of June.Im convinced that this is the right thing for me...
thankyou cecilia. i really need all the suport i can get. my mum is sitting in the room next to me reading the book now. shes become a bit obcessed with diet books and saving my colon. I luv her, i...
from Melbourne, Australia. Temp ilio. Just about to have a permanent ilio....
hehe i like the dance like a fool. So my surgery date is set for the 28th of this month. My mum(as fantastic as she is) is still kinda hounding me about the food. 'Maby its what ur eating?' she keeps...
thanks guys, really does mean alot. Im pretty anxious to get it ova n done with. This pro n con list is a good idea indeed. iv done it tones of times in my head and yes one of the big cons is the...
lol Dan. So, had an apt with my surgion n specialist this morning. Aside from the gallons of tears i think it went well.. this surgery is going to happen!!iv actally put my hand up for it, i never...
wow im amazed by that Andorable. After they took the morphine off me when my ilio was put in i was still in alot of pain.. and i thought i had a good pain threshhold.. maby not lol...
and when u guys say u have the pouch on/in ur tum that mean u have the bag on the outside? not the j pounch on the inside??...
u watched a video of a colon being removed?? omg! fascinating but i think id thro up...
wow its been so interesting reading about this! out of hosp in 4 days after having ur colon out??!!out of bed the next day??god after my ilio was put in they had to drag me out of bed,,i was so weak...
wow!! very small world.. cant beleive ud had the bag since u were 10.!!??? that is amazing!! uv come so far, well done....
hi every1, its been really good reading about every1s surgerys as im also thinking of having my colon out. il pro ask some stupid questions but bare with me. Does this mean every1 has a bag on the...
thanks andorable & shaz, im def full of questions as i feel very alone at times. all my my friends n fam r fit n healthy, sigh. so as much as they try? no1 really understands. Andorable when u say uv...
Andorable i have also been reading about u & read ur from Aus?.. would really like to know more about ur condition as i mit have to have the same surgery. Do u get pain in ur gut now?? how long ago...
hi gfkak, i was jst reading or posts & im also from Vic, Australia! im 28 & was diagnosted with Crohns 10yrs ago. I also have an ilieostomy which was put in about 8 months ago.Mines temp but im told...
hi guys. well im from Aus & i found this sight thro a friend. im not sure how dif things r ova here but it all looks pretty much the same. Am jst after some advice. im 28 & iv had Crohns for...