This is probably something he already does, but I'll mention it anyway: whenever I'm going to be out for a while, I bring a stoma bag, wet wipes and change of clothes with me, just in case. I've...
In that case, no, the physical condition isn't hindering (unless there is a problem with the stoma or the supplies being used)....
I've never felt that way. Though that's probably because I have far more abnormal awful things going on. But I always think it's quite cool being able to see my intestine on the outside....
I'm young and have a permanent ileostomy. I don't find it limits my life at all; the opposite, for me. My quality of life improved so much thanks to my stoma. I imagine it's much harder for those for...
I always use soap and mine stick fine. You just need to make sure you wash it off properly....
edit: sorry, didn't realise it was an old thread....
You should wash it. But soap and water is fine (though if your skin is sensitive, you may need to be careful about which soap)....
The NHS has never yet attempted to ration my supplies, I get whatever I ask for....
I change every day, because I like to keep everything clean and clean it every day. But I have left them three days on occasion and then still only changed because I wanted to, not because it was...
I don't use any, I found most interfered with the adhesive of the bag. I do use soap and antibacterial wipes to clean the skin and stoma, but then I just rinse it, dry with a towel and put a new bag...
I still have problems with the rest of my digestive system, and occaisionally with my stoma, so yes of course I still see doctors about my digestive system (and about all the other things wrong with...
It sounds like we have things much easier in the UK. It's free for one thing. When I have a problem or want new supplies I just ring my stoma nurses, or see my GP, and someone will sort it out for...
I was one of those who took to it right away. My bowel problems before were so bad, I loved my stoma from the beginning. I don't worry about stoma supplies changing, but I definitely have those...
This is honestly not a worry I have. My nurses and GPs have always been more than happy to provide me with supplies, no questions asked, including when I just fancy trying some new adhesive or...
Really? Every nurse and doctor I see knows about stomas. I've had all sorts of scans of my stomach or tests involving showing my stomach (abdominal ultrasound, gastric emptying study, DEXA scan,...
When I first got my stoma, NHS prescriptions were done by GPs, but they arrived within twenty-four hours of ordering, because the suppliers sent you the products and then wrote to the GP for...
It may depend which country you're in. I don't have IBD, and I still have plenty of digestive problems despite my ileostomy. Before my ileostomy, I was seeing gastros and my colorectal surgeon...
You detach your 2pc bag from the ring just to burp????? I guess no one told me this, but I caught on that I could just lift the tail of the bag higher than (most) of the rest of the bag, push the...
I hardly ever get any excess air in the bag. If I do I just open it, making sure I hold the opening upwards so only air can get out. Obviously I go to the bathroom to do this and use air freshener,...
Does the stoma shrink again when you're in colder temperatures? Are you able to see a stoma nurse?...
I had similar surgery (then later ileostomy), it doesn't cause water retention. Without a colon to absorb water from stool, it just passes out in bowel movements which are generally more liquid than...
Put quite simply, no. Unless a man is WELL into his senior years, already has that trouble, and is very unlikely to lie with a woman again, the chance of post surgical ED would be a concern for any...
Avoid high fibre ones (e.g. bran, muesli, shredded wheat) and any with dried fruit or nuts if you're prone to blockages or soon after surgery. Ones unlikely to cause issues: corn flakes, rice...
Do you wear a seat belt when driving that could rub or cut into it? I also live somewhere where we just don't have that kind of heat - air conditioning not needed, and have never noticed changes with...
I'm not sure I've followed the arguments in this thread correctly, but anyway. :p I am very grateful for the NHS, I would take waiting times over bankruptcy any day. And I have found the NHS does...
I'm not sure you had a blockage. You can have liquid output without a blockage, and volume of output varies frequently. Expect variation in volume, consistency, colour, smell.... And with recent...
It sounds like your output is normal, which is very good as it rules out blockage, and that's basically one of the most major things to rule out with any stoma issues. My stoma blockages and partial...
What is your output like? I.e. how many times a day do you empty and is it watery or thick? Are you eating a low fibre diet?...
My stoma nurses told me about using a hair dryer on the bag, but only so that you don't then have a sopping wet bag afterwards, as they don't dry that easily with a towel, not to prevent leaks. I've...
It shouldn't leak when it gets wet. Do you have leaks often besides when taking a bath? Do you put a new bag on shortly before having a bath? If so, try having a bath with a bag that's been on a...
Is it working?...
What problem are you having with it? I have baths without doing anything special to my stoma bag....
What is a chroma dye colonoscopy exactly? I've had just about every bowel test imaginable but have never heard of that before. And the doctor who ordered the test knew you were bleeding when he...
I had a total colectomy, first with my small intestine joined to my rectum, later ileostomy. Weight gain is one problem I have never struggled with! It's incredibly difficult for me to gain weight....
Yes I don't know how I'd survive (physically) without junk food. I'm so used to people online (on illness related communities) insisting on "healthy" food. If I didn't eat chocolate and biscuits...
I've not heard of anything like that before but hope it will work! Something will....
Thanks. I was surprised too, and so was my surgeon! I'm glad you were able to have your ileostomy reversed. I love mine but I know they're not everyone's first choice....
What happened when your bowel was connected to your rectum? And yeah about 99% of people on this forum had IBD. The remaining 1% had colonic inertia.[/quote] I had colonic inertia, which was part of...
Fruit juices are a healthier alternative to Coke, though if you drink a lot of them, non-acidic ones are better for your teeth! (Examples of acidic ones = orange, grapefruit; non-acidic = apple,...
I'm a lot more underweight than you, so while I know all the tips for gaining, having had the problem so long, I can't say they work well for me, but my health problems are exceptional. Your doctor...
Sammy - I've been trying to thin my output, it's too thick (even though I have an ileostomy). I keep reading about grape juice but it does nothing to me! Nor does anything else. I've tried all sorts...
A j-pouch wasn't an option for me. I have an ileostomy now and have no regrets. If I had been given the option of a j pouch I wouldn't have taken it. I had already had a previous surgery where most...
Good for you. I've had my stoma for a couple of years now and I still appreciate the freedom it gave me....
I will soon find out as I start physio in a few weeks. I have osteoarthritis and also a fractured spine. I had great success with physiotherapy for paralysis a while ago, and I'm hoping this will...
I've read that many people find it slows down. My started slow and continues to be slow, I'm trying to speed it up! You can always get a bigger bag if you want to empty less often....
I would try without the powder. My nurses gave me powder to try at one point, but I very quickly learned it caused the bags to come unstuck. Maybe I put it on wrong, but that was definitely the...
The surgery to refashion the prolapse (it sounds like that's what he had) could well mean a completely different bag is needed. Sorry if I'm confused by the time frame, but did the leaks start after...
Eating often triggers output, so the timing is probably due to that - as soon as there's significant output, it leaks. Really the stoma nurse who can see him in person will obviously be most likely...
Is that why they don't use convex after surgery? I've had three stoma surgeries (long story), after the first one, I was fine for a few weeks, then started getting leaks, stoma nurse switched me to...
I use Brava elastic tape: https://www.charter.co.uk/Charter/coloplast/brava/rings-paste-and-tape/brava-elastic-tape/...