I don't even know my frequency. Probably anywhere from 3-6. If only I could stop the leaks I have at night. Imodium sorta helps. I've been slacking on my Kegal exercises though. :/...
I've had a couple of beers so far (Ales and Stouts. None of that pissy water crap) and I've been fine. Also I made some jello shots the other day and those were ok. I haven't tried any tequila or...
I had butt burn in my first two weeks. I'm not sure what made it go away though, the bidet I bought or that my jpouch started learning to absorb more. In addition to the wet wipes and Calmoseptine, I...
I've been wanting to buy some running shoes so I can do Couch To 5k and then eventually run in my first 5k....
Have you thought about buying a bidet? I bought a simple $50 one off amazon and it has completely solved my butt burn/itching issues....
I always wondered if I actually needed the Eakin Seal. I noticed quite a few times that the Eakin seal does puff up (I guess this is the best word to describe it). It never puffed up that much...
Nupercainal is a local anesthetic ointment used for hemorrhoids. It helps quite well for me. I think the only reason the Calmoseptine sorta works is because of the menthol in it which gives a cooling...
Mostly in the Pouchitis/Need Advice Now forum. Those to I tend to avoid. Now if I can get rid of this damn butt burn I would be perfectly fine. I want to run but sweat + butt burn + running is...
Hmm well the first couple of weeks sleeping was a bit...odd. I'm a stomach sleeper so I had to learn how to sleep on my back while my wound was healing (I had an open surgery instead of...
I think it is safe to say that everyone here was scared before their surgery. I didn't have Cronh's but I had UC. I was like you; I tried all the medication, diets, enemas, etc. and nothing worked....
Ah you're on the Queensland side. I've talked to a guy that lives in Western Australia. Somewhere around Perth if I remember correctly but his yard just looks like red dirt and the occasional shrub,...
Norway, Sweden, or Japan. Also Italy. The first two I actually want to move to when I get a chance. Germany doesn't sound bad either and neither does Australia (except for the stories that involve...
My surgeon wants me to avoid fruits and vegetables that are raw for at least 3-4 weeks or so. After that he said that it would be ok to eat them again, but to try it in small amounts at first. When I...
My nurses tried to get me to drink coffee or tea while on the liquid diet. To be honest I like coffee and hot tea but not the kind they give you from the cafeteria. Coffee should work though, but...
Yep an anastomosis is the connection between two sets of tubes. In this case both the site that used to be an stoma and the part were the jpouch attaches to the anal muscles are both an anastomosis....
I wouldn't be worried about your takedown. There are many people out there that have a jpouch and they do just fine. You tend to see more "bad" things about jpouches on forums like these mostly...
I had the Hollister bags and I never really had any trouble with the velcro. The one thing I did have trouble with is ever since they changed to the "new" velcro closures (the ones with the clear...
Yep. In fact I was up and walking around the day after surgery (I did eleven laps around the floor I was on and the next day I did a bit less because they took me off the pain pump and I was feeling...
Make sure to take some of your own toilet paper and wet wipes and some diaper rash cream (I like Calmoseptine because it has menthol in it). And walk. It helps wake up your intestines and gets stuff...
Yea I don't have much pain or cramping, but when I do it is just because of a spasm which doesn't last that long but sometimes can take my breath away. I don't have any urgency either, but if I keep...
How long did it take for your son to not have jpouch spasms anymore? Those are probably the most annoying so far. The nausea with eating has went away and the gas pains have went away too, but I...
The phantom stoma issue is probably the weirdest feeling overall. That and I will occasionally reach down to check if the bag is full only to feel nothing there. Earlier today when taking a shower I...
I'm feeling alright today. I will probably start feeling better since I'm at home now and get to sleep in my own bed. Food wise, I can pretty much eat what I want as long as it is cooked completely....
Today I went maybe 5 times or so. I actually went more but those were just to urinate since they keep pumping IV fluids in me. Today was my first day of solids which I was able to eat easier than...
So I finally had my takedown wednesday. So far nothing bad has happened. I was walking the next day (11 laps around the floor). Today I took it a little easier only doing 5 laps so far. There are the...
In pretty sure it can result in pouchitis. He is allowing all the bacteria to ferment ad grow. Probiotics could prevent this. My surgeon should be seeing me this morning and I'll ask him about...
Probably swallowing air. When you breathe through your mouth it causes it to dry up and then we try to swallow to promote saliva. So she is probably inadvertently swallowing air. She should try to...
Calmoseptine is a cream that I bought that works amazing. It combines the ingredient in a diper rash cream, zinc oxide, with menthol for a soothing cool feeling. You can pick a tube up at Walgreens...
Try massaging your stomach using circular motions. Don't be afraid to use a bit of pressure either. That seems to always help when I feel a blockage starting. Mostly after I eat a lot of pasta items....
Hopefully I won't have too much problems. My takedown is tomorrow and I've got the cream and the wet wipes ready. I also have some probiotics on the way. I've been on a liquid diet all day and I'm...
Have you tried taking a fiber supplement like Metamucil or Citracel? Seems like that would help both issues....
I've had a proctocolectomy and I've had no sexual dysfunction. In fact my fiancee says that my libido has gotten better. Granted straight out of my first surgery, I had zero interest for sex. This...
I also had the surgery. Yea, I've come across lots of things since then that I thought "what if I tried that?" While it is interesting to think about, I don't dwell on it. Actually I'm pretty sure I...
I would dress up renaissance, but I don't have anything. It is a big fair that lasts for about a month and a half. They have jousting, blacksmithing, archery, lots of artisan stuff, plus rides for...
I'm only 8 days away from takedown. I'm going to do what B'Dereh did and go party this weekend. The Renaissance Festival opens up this weekend in Georgia. Giant turkey legs and mead (or ale or both)....
Have you tried massaging your stomach? I found a study online and it showed that it helped with pain and waking the intestines up....
To be honest I want to see other countries around the world. Also those four countries are more secular, and, well living in the bible belt takes its toll when you don't have the same world view as...
Ah, I didn't know you were originally from the US. I've actually been wanting to move out of the US. Probably Sweden or Norway. I've also thought about Japan or Germany. I still need to actually...
This month on the 18th actually. The last couple of days I've been sleeping straight through the night so by the time I wake up the bag is almost completely full. It doesn't help that I've also been...
Sounds like your body isn't completely used to the jpouch yet, and bio feedback should be able to completely take care of that. I think my jpouch is anxious to start being used. For whatever reason I...
Why would a jpouch have an expiration date? It is made from your own intestines....
Sounds like OP has a jpouch since they said that they had a takedown and their colon was removed. Have you had a pouchoscopy? Maybe you have pouchitis and that is causing you to go to the bathroom a...
I would just let it pass. Just make sure you stay hydrated. Pepto might be something you could take (confirm with a doctor though, because I'm not 100% sure). Imodium, however, I would think you want...
Huh? I know you aren't supposed to take live vaccines while ON Remicade but I haven't heard of a vaccine disqualifying someone for Remicade. The only thing I was tested for before Remicade was to see...
Have you tried signing up for the Remicade patient assistance program? http://www.jjpaf.org...
Hello, UCnewbie02. I was diagnosed with UC back when I was about 13-14 years old. Around 3 years ago a bad flare up struck which no medications I took helped. Almost 9 months after the flare started...
How much pain do you have? I remember the first surgery I had, and it was a pain in the ass (well stomach) to just get out of bed. I'm guessing it is mostly the incision were the stoma used to be...
I guess personal preference really. When I was asked where I wanted mine I was concentrating more on if it would be near the waist line. The stoma was placed on my right side, probably because it was...
Correct me if I'm wrong, but I could have sworn that taking laxatives while you have a blockage could cause dehydration....
Try sipping on some grape or prune juice. Make sure to stay hydrated....