Thanks for sharing, I have to say that life is getting better everyday!!...
Just wondering what emotions and feelings anyone out there had at the first anniversary of their ostomy surgery. I am having mixed emotions which isnt odd Im sure but just curious, sometimes its like...
Mine is slightly below my belly button and I frequently wish it was a little lower, for sure below the belt!!...
Could also be a crohns flare in the rectum. I have had my rectum removed and do however still feel the urge and light amounts of mucus due to what little tissue is still remaining after surgery....
Lots of fluids, no solid foods, heat, massage and get into the postition that woozie is describing. I have had many paritial blockages and three obstructions from food, mainly fruit. If you have very...
Sorry I havent been on in forever but yes Dan the bag pulls off the wafer. OHIO76 the sure seals have been the answer to my prayers!!! I cannot thank you enough for taking the time to reply. They are...
Hi I have never heard of it actually "damaging" your intestines that doesnt even make sense to me but maybe its not getting absorbed well. I have also personally been on many different narcotics over...
Hi I have a permanent ileostomy and a 1 inch stoma, I have tried alot of products and finally found a Marlen one piece works the best along with Hollister Adapt rings, my problem is the white...
Yes I was sewn shut, no packing of the wound. I had rectal drainage post op immediately that was very minor amounts this seems to be more and now with the blood I am concerned. I did call about the...
I am four months post op proctocolectomy with ileostomy for crohns disease. I have been having rectal drainage that has been samll amounts yellowish, now this week it is green and yesterday started...
I had a proctocolectomy with ileostomy on October 13 2009 for Crohns, have been doing very well since surgery but now for about 5 days I have been having sharp stabbing pains in my rectum. I have...
thanks everyone for the responses. Makes me feel alot better to talk to people that have actually been through the same thing! The pelvic pain is strange and I do think its just my body getting used...
I had a proctocolectomy with ileostomy placed on Oct 13 due to crohns proctitis. I was in hospital for 15 days after due to UTI and high white blood cell counts, plus incision infection. I am now...
I am going to travel out of state to have my proctocolectomy w ileostomy on tuesday and am wondering if there is anything in particular that I should pack and take with me??? Hope this is not a silly...
Love my blackberry and facebook on the throne!!...
I have also developed strange skin sores in the last two years. I have been told that it is alot of things, mainly they have labeled it acne, I have heard shingles, chickenpox, MRSA, and pyoderma...
Just another quick thought, if you have recurrent yeast infections they should also be testing you for diabetes. Good Luck! JenG...
Well thanks for the newsflash I guess I should have clarified further. I am tired of these GIs telling me they have seen worse and they do my scopes and say that they expected worse and then...
Well I made the trip to Cleveland Clinic and was not really impressed. I guess I am hoping for a magic wand but arent we all. I basically have 3 options 1) Cimzia (I am unable to take Humira,...
Has anyone out there been through the process of applying for SS disability for crohns disease?? I am just beginning to think about trying for disability but know nothing about it yet. Any...
Thank you for your reply. I live in Michigan and am so hoping that Cleveland will have some answers for me. I am trying to work full time and right now am off again on medical leave...am missing alot...
Has anyone been to Cleveland Clinic? If so any hotel recommendations??? Thanks in advance Jen G...
Hi I am wondering if there is anyone out there that has had surgery for ulcerative proctitis that has not responded to treatment. I was dx with crohns in 1994 have had a few peri-rectal abscess...
Anyone out there on Tysabri, I have had crohns disease for 15 years and am allergic to Remicade, tried Humira without success and am not responding to steriods, I had my first Tysabri infusion on...
I am having a lot of health issues the past month and missed a month of work in December. It first started with a rash on my neck that the first diagnosed as shingles (all of this started after a...
Like EMom your post brought me to tears. I think so many of us on this forum are tired of dealing with the disease and more importantly feeling like the medical community does not listen. It can be...
Well meowese you are not alone not that that makes it any better :)...
Thanks everyone for the responses. My doctor also recommended Align or Florastor and I havent purchased either yet. Zanne-if you could let me know how you are doing on the Align in another week or...
My GI is recommending a probiotic called Florastor. Anyone been on probiotics and had any luck with them??...
Just wondering if your on remicade if they put you on an immune modulator like methotrexate with it?? I started remicade when it was very new and was on it for about 3 years then developed an allergy...
You are not alone!! I hate the prednisone weight and for me so far its been really hard to lose. The moon face though did go away after about 3 weeks but the weight I gained at my waist is still...
I will now always ask for the propofol iv sedation, I had it the last two prior to this nightmare colonscopy and it was great, went right out then woke up quickly and wasnt sleepy or groggy at all...
I just had a horrible experience with a colonscopy. They gave me Versed, Benadryl and Fentanyl and it did not do one thing to me. I am assuming it is due to the fact that I have had so many...
Yes I need to divorced this doctor and move on to someone who listens. I have had 7 GIs now its hard to find a good one that listens all the ones I have had success with are far away which makes it...
Thanks for the responses!! That makes sense to me with my history of rectal involvement I have always been told its crohns until this Dr. He did tell me today to ignore the negative serology 7 test...
I am new here...have been diagnosed with Crohns about 14 years ago. Am currently seeing the U of M for a work up and am totally confused. My recent colonoscopy showed ulcerative proctitis, most of my...