My dentist told me of a cure for dry mouth; he swears by it! He said to buy lemon drop candy with Xylitol. He said to be sure and buy the lemon drops that contain no sugar! He said the Xylitol...
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I will let you know what dr Talamini tells me. Good luck to you and I hope you get help soon! I am still hoping you will come to San Diego and go to my apptmt with me on aug 21st! Maybe he would see...
Hi rosemary, I have thought about you a lot lately. I still think we should "double team" Dr Talamini @ my Aug. 21st apptmt. I saw him in June and had my mom with me. He didn't rush the apptmt at all...
Hi rosemary. You are not going to believe this but I am going thru the exact same thing you are! Because my whole ordeal has lasted since 2005 I just have given up! I lay in bed all day in severe...
Hi Rosemary, I feel so bad for what you have been going thru! Of course I can totally relate because my story is almost identical! As you know I was in the hospital (Scripps) for 3 days in April...
Rosemary, The surgeon at Ucsd Thornton Hospital that I told you about is [u]Dr. Garth Jacobsen (or Jacobson [/i]). UCSD Thornton is located in La Jolla, California (part of SD County). At first my...
One quick idea Rosemary. Lizzie told me recently to order a product, online, that is jello infused with 28 grams of protein. You could text her and ask for the name of the product or type in "medical...
Hi Rosemary, I can hear the fear in your words. Don't be afraid, I think there really is help out there for you. I think I told you that my problems started when I was 20 and I am turning 60 this...
I am off to the pain clinic and hope to hear back from Dr. Talamini today. I am praying for you Rosemary; don't give up! They will find a way to help you. Hey, we all have to "stick around" so we can...
Hey Rosemary, One new product I just heard of is called, Serazyme. It is an oral supplement that has been used for over 20 years in Germany (and some other countries); it breaks up adhesions, blood...
Hi Rosemary, It is very nice of you to be concerned about me! I am home after spending 3 days in the hospital last week. Now it is looking like I may have some type of surgery done by a really good...
Hi again Rosemary, I sure hope things start moving for you and soon! You said that even "clear liquids" aren't going thru to the bag; I have had that happen but usually at least "a little" comes out...
Just wanted you to know I am still thinking of you and praying for you. I think we have somewhat similar problems because we get pain in the same areas plus I know, at times I get partial blockages...
I keep thinking of "one more thing" I should tell you. My GI said if the colonoscopy of the ileo plus the rectal scope (all done while I am asleep) doesn't show anything; then he wants to order the...
Hey Rosemary, I forgot to answer one of your questions and add some more info that could be helpful. I usually get my pain (throbbing, jerky pain) about 1.5 inches above and to the left (a little) of...
Hi again Rosemary; I hope you are doing better, at least right at this moment! I have been learning to live my life; moment by moment! There are times when I am out of pain and feeling good and when...
Hi Rosemary, I am praying for you hourly! I really feel for you and want you to heal and feel better real soon. I just can't believe this but after kind of "giving up" on getting any help myself, I...
Hi Rosemary, It really has been great hearing from you again. My stoma is pretty much flush with my skin and by using the convatec moldable wafers it makes it stick out enough that it works for me. I...
Hi Rosemary & Doreen, It has been great hearing from both of you, seeing that we all face similar problems and maybe can give helpful suggestions to each other at times. I told you that I had...
You are wonderful Rosemary! You have given me a lot of good info. and just knowing someone is trying to help is so important to me! I am going to try and relax and watch a movie or something but i...
Hi Rosemary & Doreen, You both really seem to "know your stuff" and I thank-you for for your responses. Rosemary, I did have a CT Enterography in April 2010 and that is when it was discovered I...
I first had a sub-total colectomy with ileo-rectal anastamosis in 2009. For a year thereafter i was having about 15 BM's per day/very painful and I would often bleed in spite of using many "soothing...
Thanks to all who answered my question about supplies! I guess I have been lucky with my current insurance company. I may place an extra large order in the next week or so just in case Aetna is not...
I have posted this question 3 times now with a lengthy explaination of my situation and the last time I tried to submit, there was no "submit" option. I will just keep this short: can you please tell...
I typed a long post and it somehow got erased so for now I will make this short. My insurance co. lets me order as many supplies as i wish on a monthly basis; for no extra charge (I have an ostomy)....
thanks to both of you for answering my question regarding antidepressants for someone with an ileostomy. first of all, I had my loop ileostomy in Nov. 2010. I kept having problems with it (it receded...
I have tried several but I still find myself very depressed living with an ileostomy. I hate the bag, hate it that my doctor said I can no longer exercise my stomach or I could get a hernia, I am...
Before my sub-total colectomy (April 2009) I never had a problem with my bladder; I could drink 2 bottles of water and not have to urinate for hours! Things changed after the sub-total; I started to...
Thanks for everyone's replies. The output I had was I guess more the consistency of jello and it was a bright, bright yellow! It really scared me and I felt awful for several days. Then, 2 days ago i...
Hi Everyone, I know I haven't written in a while; sorry! I read all of your posts and pray for everyone constantly. Even tho we are a small percentage of the population (people with colon/ileostomy...
Hodaya, I am so glad that you will come to see me when you visit San Diego in the future! I do belong to an Ostomy Support Group here in San Diego but I still feel closer to you, Rosemary &...
Hi Hodaya & Rosemary, It was great to hear from both of you! I am glad that both of you seem to be doing well also. Rosemary, I know what you said about accepting an ileostomy rather than...
Hi Rosemary & Hodaya! It has been quite some time since I posted; thanks for asking about me. I do think of both of you often, also. As you may remember, I had 3 surgeries within a one year...
How do you put M9 drops into your bag; from the bottom (unroll velcro and try to open bottom wide enough) or do you open the circular ring a little (on a two-piece) and put the drops in by the stoma?...
Hi Rosemary, I think it is a crime that they are "investigating your actions" instead of trying to make retribution for the terrible harm they caused your body (mind, spirit). It always seems that...
I had my temporary loop ileostomy done in Nov. 2011 after my Sub-Total Colectomy didn't offer much relief (that was done in 2009). Within a month of having the temp. loop ileo my stoma retracted and...
Hi Rock, First I had a Sub-Total colectomy (2009) and I lost 30 pounds. The sub-total didn't work out for me so in Nov. 2010 I had an ileostomy. I have only been able to gain back 3 pounds since the...
There is a product called "Just a Drop" that you put into the toilet before having a BM. Supposedly it completely eliminates all odor. I am wondering if any ileostomates have tried this product? I am...
Do any of you change your wafer every day? UC wife, if I read your post correctly it sounds like your husband changes his appliance daily after his shower. I know this sounds gross but i have found i...
Thanks for answering so quickly Hodaya! Yes I do really like the Convatec Moldable Wafers; they are easy to apply and "mold" to your stoma (at least I think so; as I have stated I just have a "hole"...
Hi again Hodaya & Rosemary, Thanks for your replies. As you can tell, I am still trying to figure things out because I just have to make the best decision possible! One point I don't think either...
Hi again Hodaya & Rosemary, Thanks for your replies. As you can tell, I am still trying to figure things out because I just have to make the best decision possible! One point I don't think either or...
Thanks for your replies, Hodaya and Rosemary. Even though it may seem I may now have the worst of both worlds the main good thing about having BM's "both ways" (rectally and thru the stoma) is that I...
Hi Rosemary & Hodaya, I read many posts on this board and often see your discussions about requiring frequent suctioning to remove the mucous from the rectum. I think i told both of you that my...
I haven't posted for a while because now, after my Nov. 23rd Ileostomy; altho I am feeling much better physically . . . . I am just so severely depressed! I really hate to complain but my depression...
Hi Tracy & Rosemary, Thanks for your responses. Yes I did have a temporary loop ileostomy. My doctor originally planned for me to be in the hospital for only 3-4 days but I had to stay for 7...
It was great to hear from you Rosemary. I am still very impressed with all of the cruises you go on; so often I don't even want to leave my house. I guess I just have to get used to living with an...
Hi Rosemary, Sorry it has taken me so long to write on this Forum after getting my temporary loop ileostomy on 11/23/2010. I guess I still feel in shock that I actually did it. Unfortunately I don't...