I don't find myself running to the bathroom too often. Maybe 10-12 times a day. The hardest thing for me has been sleeping. Because of the incisions I find sleeping mostly sitting up easiest, but...
My GP and surgeon work for a place called Shepard's Hope here in FL and they work with low income individuals. My GP was telling me a story about someone with an ostomy that was reusing a bag for two...
Well it's been a while since I've posted here. My ostomy got the best of my and my depression eventually skyrocketed. I focused on getting my Crohn's under control so they could do the takedown...
I personally like Powerade. I even crave it to a point now. I was never a huge water fan but I definitely drink more now than I ever did. I never really got into Gatorade but the Powerade works...
jmhis34: I have been having a good deal of gas. What could this be? I also had some severe pain recently that seemed to go away in a day or so. My output is so high my bag actually damn near FILLED...
Thank you. I'm feeling better this morning. Not 100% but probably about 85%. But then again my pain has always been worse at night. I'm having,my coffee this morning too. I had a lot of output last...
So as most of you know I received a temporary ileostomy in September 2010 due to complications with Crohn's Disease. Long story short I went into the ER for some fairly routine abdominal pain. I was...
I started working full time again last week. Stamina and energy wise I feel like I've been doing great. But in the last week or so I feel like I've had a doubling (at least) of output. I have been a...
I was mortified with the clear bags but no one told me about opaque ones until a rep at Convatec happened to send me some on accident. BEST ACCIDENT EVER! I couldn't get intimate with my partner or...
ucfree and summerstorm I am having the same problem but I have Hollisters new velcro pouch.... it folds and theres just one velcro piece that folds over. It is hard to open and I end up using tp and...
The Convatec style that worked best for me was the one piece Active Life system. I am very active and because my stoma is ON my waist line directly across from my belly button the moldable systems...
Okay so I'm moving along and getting back to life. I've been temping lately as finding a full time job has proven difficult, although I think I'm physically ready to handle it. Getting back into the...
I'm with Trixiemom. GET SAMPLES!!! I had such a huge problem with my ileo. Its been over three months and I just found an appliance system I love. Don't spend your money on whole cases until you know...
Disneynut I have gotten samples from Convatec, Hollister and Coloplast. Coloplast and Hollister have a "get samples" page on their website. You can also call and talk to WOC nurses at Convatec or...
Thank you for that comment. It really hit me and made me realize THAT is what I wanted. It gave me something to strive towards and I appreciate it more than I could put into words. I know that it...
So as anyone knows I have had issue after issue with leaking. I read on here somewhere that someone changes their appliance on Saturday, every Saturday, so it doesn't affect work or workdays. I just...
Trigirl - this last change I probably had it off for close to an hour. And it worked with me! I do the naked shower thing (or try to) when I do a full change so I did that. Did a lot of cleaning of...
I have had leakage issues like you since the beginning. I've found the seals help me more than the past does and I like the Adapt seals better than the Eakin seals. I just put a new Hollister two...
So I have the phantom poop problem.... I have a temp ileo (for now - may be perm later) but my rectum and anus are still functional, although not in true use at the moment. I was told from the...
I know the more often you change the worse it is. I had this problem (not this bad though) when I first was out of the hospital. I had ConvaTec bags and was changing every other day if not more due...
So I finally got some samples in from Hollister. Generally, I like their product much better than ConvaTec. The tape is beige along with the bag, which I liked - it felt less "hospital" like. The...
ADHiatt28 I understand the feeling. I'm just a month past you in surgery but mine was not a choice. I have crying days often but we have to remember that this is a better step for us. I have my...
Good idea Ali. I'll run to the store today for some. I did do gatorade right after surgery for about a month but it's not my favorite. But if it might help with this salt craving I'll try it. I don't...
I am a few months out from surgery. My surgeon and GI told me that with most of my colon missing I could become dehydrated very fast. No problem - I was constantly thirsty before surgery so I ALWAYS...
Well I had my first experience with a Hollister one piece and the Adapt seal. I do like the seal better. It comes right off and didn't bother me as much while it was on. Problem is that it only...
I had put on a Convatec one piece and the Eakin Seal that I flattened out this time remember? BAD idea - well for me at least! I had the worst leakage ever last night and was up at 6am changing my...
I got flat and convex. I'm going to try them soon :blush:...
I'm only 2.5 months out or so. I know I have a LONG way to go to full comfortability but I'm trying. I love the suggestions I get from the site :cool:...
I made it flat this time but the last time I did kinda what you did except I held it between my hands to "warm" it. Then I stretched the circle just a bit, put it around my stoma, then placed the...
I have had problem after problem with leaking. I just read this whole thread and am curious to try this Hollister seal. I have my first sample from Hollister coming any day now! I like the Convatec...
I've been having a lot of problems with leaking on any type of appliance so far (have used durahesive and stomahesive 2 pieces and active life 1 piece from Convatec. have samples coming from...
So I'm quitting smoking and I'm munching more. I try to stay to healthier munchies.... but last night I was munching pretty late. I was up almost HOURLY emptying my bag. I was exhausted today and I...
I have had Crohn's for the last 5 years or so (well diagnosed... I'm sure I had it before then). I was under a county health program in California up until last year when I moved to Florida....
trixiemom - I hope you get to feeling better soon! My family will put you into our prayers. It's a shame what we have to put our bodies through sometimes but I do believe it makes us stronger in the...
GassyLassy, I had an ileo placed 2.5 months ago and I still empty my bag quite often. I'm not sure if that's "normal" per say but I know I'm still doing it. I too am looking to start work soon but I...
I haven't yet no. With no insurance and no job I'm getting by with what I'm getting as samples. Once I have a job (I'm currently looking) I'll look into one. I hadn't even thought about that. Thank...
::WARNING:: I'm grouchy this evening. So it's been about 2.5 months since my temp ileo was placed. I have read blogs and watched YouTube videos from HealingWell members and they are VERY helpful but...
I often have a thicker output that piles up. It's random and I'm not even sure if it's fiberous or not but I would be interested to know if that was it. I get the stinging sometimes too and always...
I haven't tried Hollister. I am using the Active Life one piece Convatec right now. It's definitely more pliable and moveable. I liked the moldable wafers but they just leaked too fast on me - like...
Ok perhaps this is a silly question but I'm asking nonetheless. So I've been primarily using Convatec wafers and pouches. I've had slight itching at times around where the hospital like tape is. Is...
David, Congrats on having only two weeks left! I don't know much since my ileo is new but I'm sure someone here will be able to help you with that. As for the supplies - you can donate them to...
My partner has seen me completely naked and has remarked just the same as your husband. She's truly amazing about it. The problem is all me and I know it's mostly mental.... that's one reason I...
Hello all! My name is Sara. I have had Crohn's for almost the last ten years. I've had ridiculous back pain on a daily basis for as long as I can remember. I recently had a temporary ileostomy put in...
Everyone has been so amazing here! snuggles: My CD pain is much less but I'm having pain at the stoma site. I'm pretty sure it's from my poor skin getting used to all the on again off again.... my...
I just requested a sample of the Sure Seals! I'm excited....
I'm sure there are threads about this in the past but I've spent hours looking through old posts and have yet to come across one so I thought I'd start a new post - I hope that's okay with everyone....
Brian, Your case seems somewhat similar to mine. I was denied initially for the same reasons as you were. Also, because of my age (I was 27 at the time, 29 now) and the fact that I was going to...
Brian - I'm having the same problems; more at night and no meds right now. I saw my surgeon today who said I have a slight rash (although not visible, just little goosebump type bumps) on different...
Artist Guy, I have a doctor now (my new GI) that stands FULLY behind my disability. He says "You should have been disabled years ago" so anything that B&B need he'll give them. I hope it goes...
Bev, thank you. I did find the ostomy forum and have spent a few hours there today! :yeah:...