Kansas City, MO...
I had surgery on March 17th. My surgery did not go well. This surgery was supposed to go in and "clean up" things from my last surgery where I got my ileostomy. There was some grandulation or...
More than once when I've gone to change my applicance I've had it squirt out to the point where I couldn't keep ahead of it with paper towels. All I could do is lean over the toilet and let it do its...
You definitely need to go see a colon rectal surgeon, a specialist. I don't know where you live, but it seems to me it is not a usual US insurance situation since you have to put in a request to...
What a horrible experience. Maybe what happened to me happened to you. I was having horrible pain in my groin and eventually I had two lumps wail up in my perineum. I had a massive anal abscess and...
No one else has poseted, so I thought I would. I don't know if protonics has any effect on output. I'm sure they gave it to you in the hospital to keep your stomach acid in check because of your...
Yea, I agree. Does sound like acid reflux. Is it kind of a burning pain? Either way, you might talk to a dr about it. I have problems with it and went on rx for it. I ran out and just started taking...
Tiaeight, I clicked on your name and took a look at some of your previous posts. Sounds like you are in the exact same situation I am in. You can click on my name and read my story about trying to...
Has anyone ever used Dansac? I was looking around and there was a link to their site from Evansville Ostomy News. Their Novalife product looks pretty nice: http://dansac.com/default.asp ...
No quite. This post pretty much sums it up: http://www.healingwell.com/community/default.aspx?f=33&m=2010538...
I hate that too. It's like when my dad died of cancer. I had some guy tell me he could understand beause his relative had cancer. Of course he then went on to tell me that person came though it....
I've been terribly depressed. If you click on my name you can see my previous posts. I'm trying to work past it, but I'm really struggling. Talked to the shrink and am making medication adjustments,...
I don't understand why they would tell you not to drink a lot of water. Everything I have ever read or been told is the best thing you can do is drink water. What's the reason?...
I have a regular shrink appt on Wed, so I will speak with her about all this. I appreciate both of your concern and I completely understand it. I would be too. I'm not suicidal, but I am feeling a...
My situation is different than many of yours. My ileosotmy is temporary and I only have it because I have a fistula repair. It was a last ditch effort to fix me. I hate it and can't wait to get rid...
I found my dr on there for speaking. I guess I really don't have a problem with it if the drug works. With the evils of the insurance industry and low reimbursal rates, along with high premiums for...
I don't have any hair on my belly. My skin is always clean and dry when I put it on and I really don't touch it. The only extra thing I use is a convex barrier ring. I don't wear a belt, but I do use...
I do have to use a convex wafer with a convex barrier. I tried the advice before of not using the barrier and just the wafter. What happened was the soft ring got really part around the ring got...
Once again, a leak at work. Third time. My output was really really thick for some reason, but I was making sure to pay attention to it and shake it out of the ring so it went down into the bag. What...
I traveled over Christmas and had no problem. I wasn't patted down and the airports I went through didn't have those body scanners. I went from Wichita, KS to New Orleans and had no problems either...
I don't know if it was just Hollister or what (I'm still very new to this) but I had two bags that it it was starting to seep through right under the ring on the appliance. Very strange. I imagine it...
I'm acutally using what I have left over from what they have me for pre-surgery so it's that liquid antibacterial stuff....
It does have the tape on it. I put that pink waterproof tape around the edges for extra protection otherwise the tape already on the flange pulls away from my skin....
Yes, I do use a new bag every time. My nurse saw how frustrated I was with the drainable bag because I could never get it clean and as soon as I did there was more stuff in there, so she suggested I...
I use a Hollister two piece with a closed bag. The flange in pre-cut to 7/8" which is the right size and it is convex. I also put an extra convex barrier ring on it. My stoma is round and my stomach...
I went to work today and my ileostomy leaked. Again. My first day back to work from my medical leave was Thrusday and the exact same thing happened. Was was wearing these same pants so I wonder if...
It's not a matter of concern, more of a matter of preference. It feels good to have it off. Also, I did have it start to come off once. Now I put waterproof tape around the edges before I shower and...
I know you are not flying, but for others that may be curious, you can carry on scissors that are less than 2 in long. I flew over Christmas with mine in my carry on with no problems....
Mmmmm peanut butter.... You know how there are certain foods you can't keep in the house? Well, that's one of them for us. My husband and I have PB issues. We've been know to go through a whole jar...
I was driving by three weeks. (Since that's how long it's been since your hubby's had his surgery.) I actually drove sooner then that for a short amount of time with my husband with me. I know you're...
My stoma is actually quite active first thing. I don't really understand why. I don't eat a lot before bed. It really seems to be active all the time. I've always had a "busy" stomach. It's always...
Hi Another UC Wife, I just wanted to tell you how wonderful it is that you are on here for your husband looking for answers and taking care of him. It is obvious you must love him very much. I hope...
I want to tell you all who have been plauged with chonic disease, anyone who tells you surgery is giving up is an idiot. I have a temporary ileostomy to allow a fistula heal and I hate it. I'm sure I...
Today was my first day back at work from my medical leave for my ileostomy. I was at work for an hour and a half when I went in the bathroom to discover I had a leak. It was just awful. I had to go...
Summerstorm, that is a great inspiration. I can't think of any thing I have that I can look at or think of. We don't have children and I don't have any big goals I'm working towards except getting...
I'm feeling very upset right now. I had my surgery for my ileostomy on November 10th. The reason for my surgery is to allow my fistula repair to heal, so my ilesotomy is temporary. I developed a...
My mom and I went to New Orleans for Christmas and everything I ate came out smelling bad. I had red beans and rice, jambalya, etc. Definitly a strong seafood smell. Even though I have an ileostomy,...
I started having really bad stomach cramps a few days ago and yesterday I threw up twice. I called my dr. and he said to go to the ER. After a battery of tests (and thankfully anti-nasuea drugs and...
That is so sad to hear. I am new to this forum and having an ostomy. Somehow with an online forum if feels like, yes we are all in this together, but you are all far away. I live in Kansas City, so...
I was wondering if it would be okay to take a shower without the bag on., but with the wafer on. It's not time to completly change everything, but I have been changing my bag after my shower and I...
Thanks for the words of encouragement, guys. My aid came over today and we changed the bag at home for the first time doay. I tried to be involved by taking the bagt off myself and wiping off the...
Hi everyone. I'm new to all this, and I'm sure a lot of the questions I might have have already been answered along the way. There are a LOT of posts here, so please be patient. A little background:...