I know this may sound strange, but has any one switched from having hardwater (as far as bathing) to a water softener and noticed an increase in leaks from your ostomy "appliance"? I recently moved...
I had my surgery two years ago. It was listed as a proctocolectomy, but I still have my anus (due to healing perianal fistulas). At the time I was 28 yrs old. This was my very first and only surgery...
I often have dreams where I am in public and trying to find a restroom, meanwhile my bag keeps getting fuller. So when I actually find a restroom it is crowded, there are no open stalls or there will...
Osto-ME! Fashion for the Ostomate PS Has any seen the Trendy Top (As Seen on TV) product? I thought it looked perfect for us Ostomates! Thinking about ordering it. Basically its a belly band type...
I had my surg last March and I too had really sore shoulders. I remember them hurting more that the surgical wounds! I had asked one of the residents or nurses while still in the hospital and they...
Curious if anyone has tried a Stealth Belt. There is a website for them. It looks exactly like what I would want for swimming and working out. (Neither of which I've done since the surg) They are...
I have found that for the most part I drink what I want. I have one cup of tea/coffee in the morning. I don't really drink milk or artificially sweetened stuff ( I really bothered me when I was...
well I can relate to the work place situation. Luckily though there is one bathroom that is further away from our main area and i often use that (it also has a good exhaust fan ;) I'll use the drops...
its funny how the different foods affect us all differently... I know that pizza smell your talking about! haha I was told to always take small sips of any liquid and eat crackers or something along...
My only input/thoughts would be: because you are a bigger guy you probably have a bigger appetite? maybe I'm wrong. This would lead to more output. From my experience (5'9" female with a good apetite...
I've been reading about the healing benefits of chlorophyll. It has many properties that are beneficial to the symptoms of Crohns. It acts as an anti-inflammatory, promotes red blood cell production,...
My experience with Cimzia (so far) Had severe Crohn's in entire colon and some of small bowel. Started on Imuran and Cimzia. After two months treatment insurance decided thay wouldn't pay for Cimzia...
I had a complete colectomy back in March. The incisions were tolerable post surgury. The only pain that had me keeling over was this muscle cramp in my abdomen (just lateral to my stoma running from...
So far I'm happy with the Coloplast Assura two-piece system. I also use their paste strips. I was given all kinds of hollister samples when i left the hospital and had a few leaks at random times. So...
I too had some problems with Holister wafers/paste. I thought maybe because of the summer heat, sweating was causing the leaks I had. After reading this now I not so sure. I ended up switching to...
Yeah i didn't realize how under weight i had gotton before surgery! iN two years i had dropped 45 pounds (i had a little extea to begin with;) ) Now i'm 5 months post-op and i've gained back 40!!!!...
I bought a bunch of cheap washcloths, and i'll use one of those damp to clean, then air dry or dab with toilet paper to dry. I always work over my bathroom sink. if my stoma becomes active i just...
I have a permanent iliostomy due to Crohn's. Had the surgery in March of this year. Things were goin great and still are except for the little ulcer that popped uup right next to my stoma (a circle...
I definatley had the back pain too. I think it was partly fom the bed and the fact that I couldn't stand up perfectly straight. I was a little hunched forwrd for a while because if i tried to...
not far from Chicago, IL also had surg at U of Chicago! Maybe we've had tha same surgeon, cleo35?...
I'm still new at this iliostomy thing (3 1/2 months) I've been able to eat lettuce, tomatoes, corn on the cob, asparagas, nuts, pickles...i just make sure to chew a little longer than i normally...
I've noticed the same thing. I love Coffee!! Even before my iliostomy if I drank it on an empty stomach (first thing in the morn) it would have me in the bathroom. I just thought because caffiene is...
After about a week at home (following 5 days in the hosp) i was able to do short trips to the store. I was getting these muscle spasm/cramps in my side if I pushed it too much. The tylenol 3 helped...
Thanks everyone for sharing! I'm only 3 1/2 months post colectomy and couldn't feel better. I'm excited to start a family. I think I will find a high risk OBGYN and seek out some more advice, though....
Any ladies out there had a pregnancy with your ostomy? I'm 28f had my colon removed March '10 due to Crohns. Now that I'm recovered, my husband and I are anxious to start a family. I was told that...