Kyle, I'm so glad to hear that you have an appt! Have you tried domperidone for your gastroparesis? It's not FDA approved in the US, but many doctors recommend it for gastroparesis and order it from...
Hi everyone, thank you for all your kind words. I am seeing a top motility specialist but can't get in until end of March, ugh. I'm on the cancellation list, so hopefully I can get in sooner. In the...
Hello, I've posted a few times before. I think the last time I posted I was undergoing testing to get a loop ileo done. I ended up not having it done after a traumatic experience with the...
He is aware of my condition and I plan on talking to him at length about it at my next appointment. I'm not sure when that is, sometime after my colonoscopy in a few weeks....
Oh Rosemary, I cannot believe all that you have been through! I have a rare genetic connective tissue disease called Ehlers Danlos Syndrome that affect all of my tissues. They are very fragile. I...
Thank you for your kind words and making me feel welcome! I'm so sorry for all that you've been through, Rosemary, I can't even begin to imagine! Alibee, I have put serious thought into all of this....
Hello Everyone, I am new to this site and have been reading through all the posts. I'm currently undergoing testing for CI and PFD. It's pretty clear that I have PFD and just finished a transit study...