Thank you I have tried all type of ostomy supplies available. Having an auto-immune disease such as SLE(lupus) just makes things 10x more complicated medically. I am afraid of all the horror stories...
Karen "not going well" ,I am afraid to ask what this means ?????????????? My surgeon is aware of what i went thru the 1st surgery and said I probably should be on the internet making my mindset...
Thank you for your respones. Despite the 2 years of having "the bag" ,I have not been able to adapt to the ileostomy. Having lupus, the bag erodes my skin,and I have not had the success of like...
I am a 59 y/o male with SLE and s/p total colectomy and loop ileosotomy 2 yrs ago. After 2 yrs of pelvic floor rehab.,I am schedule for surgery but due to the "everything that could go wrong did"...