Sorry you've figured that part of this disease out, but it's one true certainty. I have hated food most all my life...and stop for a second and think about when it is that food is at center...
80sChick...I think your awesome :)...
Gotta agree with the crowd...I've had my illeostomy over twenty years now...at times I've hated it (like on a 12 hour flight to mexico and it leaked...course supplies were in baggage compartment...
Thats harsh..sorry to hear. maybe try cutting away material from wafer so it's not in contact with hysterectomy incision...it will look short, but a short good seal is better than a larger one that...
Yeah...my favorites are when you meet someone new and they decide they can do a little web research and "cure" you...waaay too many times I've bitten my tongue, when all I wanted to say was 'really,...
I don't mind...but don't link yourself too tight to me...It may bring you unwanted attention from fate or what ever is running this show :)...
Ok...I will try...:)...
hey tabicat...not sure if hanging out in the doctors office would work either...the fiance who cleaned me out while I was in surgury was a nurse... best advice...just try and do the things you enjoy...
Vermont...thinking of moving someplace warm, tropical, turquise waters...love Mexico :)...
And Heather1959...can always use another friend, but I may not be a good example of how this DD works...I'm kinda rare, one of the lucky 3 to 7% who never respond to meds...I may scare you more than...
Yeah...the higher power and prayer route and I had a split in '95 when I had 11 surgeries over seven months...there was a time then that I couldn't get out of ICU with out another surgery...have one,...
No worries, my state of mind is pretty positive :) I was thinking last night, and I've had Crohns since age 6, so I really don't have any memories of life with out it. Like I said, pain has always...
been there...it hurts, alot...has happened more than I care to think about, and the last was a fiance who cleaned out my (our) savings(she had me put her on only weeks before...just in case) while I...
I had my appointment last week with my GP, my gastro, and surgeon...I've been having trouble the last 6 months or so...constant pain, weakness, etc, etc, blah blah blah...so my gastro and surgeon...
big smile here....glad for the cute surgeon...had a few lovely nurses in my time and one very beautiful female surgeon...helps somewhat :) I'm kinda bullet proof in the opposite direction...this...
well, I'm thinking your gastro will have the final answer...it's too bad sometimes that we have to jump through several docs and lots and lots of tests before they finally nail the particulars down....
After so many times in the hospital, shy just doesn't work...I've never been overly concerned where nudity or my ostomy is concerned...have belonged to many gyms and showers in some were wide...
sorry to hear. I can relate though...I've been through alot, sometimes it seemed as though Iwas put here as a practice dummy for the surgeons...in 1995 I had 11 surgeries in 7 months...didn't think I...
I've had my Ileostomy for 22 years...eat most everything, but sometimes pay the price afterwards. The only things I really avoid are fresh hard veggies...carrots, corn on the cob, chinese...
I most always sleep well...40 years in I guess I've just gotten used to ignoring most of the pain, although my ex wife and several subsequent friends have told me I still hurt while asleep as I moan,...
I smoke too...actually was tossed a pack while still in the hospital after my third surgery by my GI when I was 11 (early-mid 1970's and you could still smoke everywhere) he said it had benifits for...
yeah...transplants are a ways off, stem cell looked promising, but two terms with Bush set that way into the future... can't worry about the 'what ifs' or the 'what may be's' too much of the 'now'...
My docs "retired" me 7... years ago...and put me on social security...I wasn't good at just hanging around the house, so enrolled in college and was planning on teaching elementary school....while...
thanks...unfortunately my time is about up...guts (what little I have left) have been bad for over a year and a half now...pain is constant, it's a battle everyday to go to work and I normally...
Sounds like your doing really well...keep up the good work :)...
Don't wait til monday, and I wouldn't give him more...with that amount he should've gone alot, and with nothing happening I'd take him to your nearest hospital as a precaution...they can contact your...
As the saying goes....'stuff happens' /community/emoticons/tongue.gif I've had some wonderful nurses and assistant nurses in my many times in the hospital...they can truly make a difficult time soo...
Don't beat yourself up over the scares and worries...you're going through alot and none of it is a walk in the park. Walk as much as you can...go easy on the 'solids' and try and rest as much as you...
I've had an Illeostomy since 89 and have had many many times when I didn't do something I wanted to because I worried about what others would think...never EVER let fear stop you...Crohns will do...
I have fought with this for as long as I have memories. I vowed long ago that I would live as long as I was able to "process" nutrients like every other human on this planet. I went 6 months in the...
I have had 37 surgeries and am down to just inches seperating me from being able to live unassisted or slowly starving to death. I won't go TPN and it's back again after leaving me alone for almost 6...
it's hard for me to talk about it...I was raised not to bother others with my problems. that time my insides exploded, my parents left me in the hospital for three months...only returned when it was...
I am 44. Have had crohns since I was 6. It was misdiagnosed for the first five years and they didn't discover it was crohns until my intestines exploded at age 11. I have had 37 operations since that...