In UK you just take any unused or old meds back to the chemist and they dispose of them. Once chemist has dispensed them they cannot be reissued to anyone else and we're told not to flush anything...
I'm in the shower daily camp and also swim, use hot tubs and have regular baths and change wafer every 5-6 days. I use convatec two piece and only when I was in Spain on holiday in heatwave did I...
I had blockages every few days due to a stricture until it was removed last October. The pain you're feeling is exactly the same as I had. I think it was caused by the bowel trying to contract and...
You should tell your husband that it's all very well having this no alcohol for 30 days health kick, but it is interfering with your stoma output trials. LOL. Sometimes it's all just trial and error...
The reason they say no heavy weight training as the stoma creates a weakness in abdomen wall and you are more prone to hernias because of it. Saying that I was never very sensible when I was younger...
Don't forget that all the pulling around in the surgery makes everything swell afterwards and takes a while to go down again. Also they usually just shove everything back in and let it sort itself...
Glad I'm not only one who does it! I was lucky in that the stoma has always been well positioned even when it has been moved 3 times, my previous surgeon always made sure it was in sensible place in...
Trouble is all my illnesses have very similar symptoms so no idea which one is causing what at any one time....
The real test is how you feel on it. If after a few months you are not starting to feel better it would be good idea to check there is enough getting into your system as may need to adjust. Apart...
I only use the natura as don't like ones with built in clips and tried ones with filters years ago and found they were a total waste of time with my output but thanks for the heads up. Saying that I...
Think def need a sense of humour, seeing as I'm 6'3 and weigh at present 11st you can understand why he calls it my 'fat powder' as the hope is I'll put some weight on. I went down to 9 1/2 st last...
DMC2011. I was prescribed azathioprine (similar to 6mp) in 1995 after all other meds available at that time and surgery for ileostomy failed to get the Crohn's in small bowel into remission. I have...
Things like PPIs (protein pump inhibitors) like omeprazole work on reducing amount of acid in stomach which would help with the reflux and also reduce amount of output. Could also try peppermint tea...
I know you can't give blood within a certain time period of dental surgery due to risk of infection getting into blood stream through the gums, maybe that is what your surgeon is thinking about as...
Glad you are having some success. I use bags that the separate clip as can't stand the ones that have it built in. To stop the bag hanging down,bear with me - you have to use imagination, I fold the...
6mp can take anywhere up to 3 months and sometimes bit longer to get into the system and begin to work properly. If symptoms are really bad you could ask your doctor if you can increase pred back up...
As you can see from my tag I have quite a few immune system illnesses. It seems every year or so something new comes along. I've just accepted that my immune system doesn't really like me very much...
I have a mixed diet as need 4000 calories a day to just maintain my weight as have had some much bowel removed and the small amount of small intestine that is left is not very good quality. I have 2...
Swordswoman, how did it go wearing the trousers without the stoma guard - any problems? fdsmith, just checking - are you saying you're fed up with your stoma or the fact that some people give their...
It's the one thing that drives me bonkers. Before I got Lupus I had a fantastic memory, sort of like a video memory, where I could replay things in my mind and remember exactly what was said and what...
I sometimes get this and take omeprazole as mine is like indigestion but only in stomach and not travelling up oesphagus ( can't spell it)....
Never had an issue. I also have an international travel card that is written in the main languages saying I have an ostomy bag so if for any reason they want to do a more invasive check it says they...
The carrots can definately turn skin yellow/orange if you eat enough of them. No doubt the doctor just wants to make sure it isn't anything else. May just be a simple as reducing amount of...
If you want to see huge list of side effects I suggest you look at those for Humira. When I was prescribed it I received with it a double sided A4 sheet of paper covered both sides in small print of...
I shower every day and also swim and use hot tub regularly and get a week from one flange. I don't use a hairdryer to dry the seal afterwards as think this weakens the seal if you keep heating and...
No, I knew it was there after I had obstruction 7 years ago and they could see result of it on plain x-ray. In other words can see the huge loop of dilated bowel before it. Had MRI in June last year...
Oddly enough there was an article in a paper today on the supposed benefits of coconut oil. There is no real medical evidence on any benefits and to be honest don't see how swilling around a mouth...
A very interesting thread. Having had an ileo for nearly 23 years and never once regretted it despite the strictures, abscesses and multiple surgeries but do I love my stoma. Well, yes in that it has...
I understand how you feel. I had stricture surgery at end of October after putting up with it for 6 years. Didn't want to have it done earlier as have such short amount of small bowel left that they...
I suppose it is possible for them to have given you antibiotics, did you have any sort of drip/iv fluids running afterwards. If so they could have put them into there but surprised they didn't tell...
Had it all removed as didn't want the crohn's starting there and also meant no more scopes etc and no risk of developing cancer in any bit that is left which was a possibility so in my case glad it...
When I had my stoma first done didn't have internet or you tube. God that makes me sound so old but honest I'm only 43 yo. I was just shown a bog standard (excuse he pun) one piece bag and that was...
NanLHF, are you having any pain at any time and if so does it get worse or better when the output is thicker or more liquid. I had a stricture removed again last year and before it obstructed each...
I think from the sound of your output being that thick that you are not drinking enough. True you ideally don't want output like water but the aim should be sort of porridge like, thickish but able...
Basically they are made different sizes as people have different size stomas. The size you should order is size next up from the width of your stoma. So if your stoma measures 45mm across as it...
I had it all removed in 1999 and knew I never wanted my ileostomy reversed since I had it done originally in 1993. TBH I wasn't given a choice at the time as my surgeon said if left behind (excuse...
When I was dx with Lupus the hospital that took the blood test phoned my GP to tell her it was positive and they said they would see me in 2 months time to see how I was getting on. I was already...
When I was dx with Lupus after being put on Humira for the Crohn's Disease I was granted DLA (disability living allowance) and this means I can afford to pay for a cleaner once a week for 3 hours....
I have had chickenpox when I was 4 yo and so vaccine wouldn't do much good. The NHS has just released a shingles vaccine for people who are only aged 70 or 79yo. Weird but unless you are those two...
You may want to ask them to test you for Antiphospholipid syndrome. It isn't linked to CD but I found out I had it when our only child was stillborn. Another name for it is sticky blood or Hughes...
I have similar problem. We have had 3 members of staff at different times where I work who have had shingles. Their doctors tell them that they can come to work once rash scabbed and they are told...
I have been on azathioprine since 1995 except for 12 months in 2010 when my GI suggested I stop it. Worst thing I ever did. Had massive flare up and ended on Humira and azathioprine, the Humira gave...
May be a stupid question but are you on any morphine or codeine based medications. Reason being that morphine in particular can put the bowel to sleep and this always happened to me after surgery...
Sorry NCOT, must have been thinking of someone else. Yes it is called PIP now it changed just after I had mine granted. The question is what I'm going to ask when I see the endocrinologist in April...
TBH KayBurton3, it doesn't matter what dx they gave you whether it was CD or UC they are both IBD. Main difference is UC only effects colon downwards whereas CD moves wherever it wants to. Sometimes...
So, one of the questions asked is - do you think diet alone can heal IBD......... etc, etc, etc No. Simple and concise. it's a bit of chicken and egg syndrome. Which came first the gut flora or the...
Most doctors use the terms UC and Crohn's as if they were interchangable. My GP is forever putting UC on sick notes for work when I need them but have to point out I have Crohn's as UC flare up would...
I agree with Stef17, it depends what you want out of the surgery. I had my ileo first done nearly 24 years ago when I was 20 and even though I have had abscesses and strictures since then due to the...
Hi, my ileostomy was originally on the left but had to be moved 20 years ago as I developed an abscess around it, so they moved it onto the right. Doesn't make any difference, still works the same. I...
Hi, I've just been dx with hyperparathyroid diseasea and my score was 99. It was dx by accident as I was in hospital for 6 wks being fed via TPN due to a really bad stricture and they couldn't...